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Topic: a (Read 546 times) |
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black
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i have to ask.i know that condition pain of trigemenal nerve and ch are different.i read that first lasts for one or maybe 2 min.ch among with its symptoms affects parasympathitiko (not familiar with the word in english maybe one of u can help.) system(watery eye etc.).ch is headache of category trigemenal nerve.so my question is condition of pain of trigemenal nerve solved?what they take as therapy?could we use it?
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black
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a?dont ask...
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Brew
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Re: a
« Reply #3 on: Oct 17th, 2007, 9:55pm » |
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I thought it was like, "aaaaayyyyyyy":
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Always remember that you're unique, just like everyone else.
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Gator
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Re: a
« Reply #4 on: Oct 17th, 2007, 11:06pm » |
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black,
Many of the medications used to treat Trigeminal Neuralgia (TN) have been used to treat cluster headache sufferers with varying degrees of success.
The most effective medication for TN is Carbamazepine - retail name Tegretol. I have read a few people here say they tried it and it did not work. I tried it back in January of 2005. Not only did it not work, but I developed a ringing in my ears that has not gone away.
Other meds that work for selected TN patients include phenytoin (Dilantin), baclofen, gabapentin (Neurontin), Trileptol and Klonazepin.
See any names you recognize?
Paroxysmal Hemicranias is another head pain syndrome that strikes along the branches of the trigeminal nerve. Indomethacin is the drug of choice in its treatment. Unfortunately, Indomethacin is not very effective for most cluster headache sufferers.
Other medications that may provide relief include aspirin, naproxen, prednisone, celecoxib, piroxicam, acetazolamide, and ergotamine. We already know that with the exception of prednisone and ergotamine, these drugs are mostly ineffective against CH.
Basically, we can use whatever works that we can get a doctor to prescribe (and a few things that doctors cannot or will not prescribe): anti-convulsants, anti-depressants, anti-psychotics, calcium channel blockers, nsaids, vasoconstrictors and other classes of medications.
Keep looking. You will find your magic bullet one day. In the mean time, we are here to help each other as much as we can.
Wishing you some relief soon,
Mike
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black
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thanks for the info Barry and Mike.still a long road ahead of us......................................................cant we just take a taxi?............................................................
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black
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just got back from neuro.gave me lyrica and new one tegretol.damn i couldnt remember the second one although i had already read ur post Mike.what to do?give it a try?any suggestion is welcome
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Gator
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Re: a
« Reply #7 on: Oct 24th, 2007, 3:06pm » |
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We're all different. It might be a godsend for you or a curse. You won't know if it works for you until you give it a try.
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black
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i ve been on trileptal and didnt work.whats the point using another antiepiliptic with different brand??i fear it is waste of time and time is the most valuable thing we ve got. i dont want to spend it in pain.cant they make up their mind if this category helps us?the dissapointment is i never got an answer from doc and again only with hope here i am.i forget what i want to say....were is that taxi?......... 
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Re: a
« Reply #9 on: Oct 25th, 2007, 12:03am » |
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Just because one brand didn't work doesn't mean another won't. Different anti-epileptics work in different ways to do their thing. For example, gabapentin works for some people, while topiramate does nothing for them and vice versa.
I understand your fear and frustration. None of the meds I have tried (and I have tried a lot of them) have worked for me, leaving me stuck with caffeine, O2 & Imitrex jabs until something better comes along.
Never give up. The next one may be the right one for you.
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