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   Author  Topic: Feeling 90% better  (Read 1289 times)
2fast4u
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Feeling 90% better
« on: Sep 8th, 2007, 11:26pm »
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Having suffering from clusters for about 20 years now, I stumbled upon something has helped me.
My wife and I both have minor allergies, and when she is sneezing, usually I am also. Last week she was, and I wasn't. Kind of curious since I am in my cycle, I took a Benadryl. 45 minutes later, started feeling relief. I have been taking them as the package recommends, and am feeling much better. I still get the clusters, but not near as hard. Less than 5 minutes on O2, and I am back in the swing of things.
The Benadryl does make me a little drowsy, but nothing like some of the other things I've tried. I also didn't take the Benadryl for 1 day just as a test, and sure enough, they were back as hard as ever.
Don't know if this will help anyone, but if you are like me, I was willing to try anything.
Good luck.
 
LC
« Last Edit: Sep 8th, 2007, 11:26pm by 2fast4u » IP Logged
MJ
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Re: Feeling 90% better
« Reply #1 on: Sep 9th, 2007, 12:18am »
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Benadryl is an old standby that has helped a few here over the years. Just dont overdo it.
 
Glad you found a little relief.
 
Thanks for the reminder.
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Re: Feeling 90% better
« Reply #2 on: Sep 9th, 2007, 9:13am »
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Hi All,  
Just wondered if any one has tried....Not only Benadryl, but Sinutab.  Towards the end of a cycle,(guessing of course), I'll take a Sinutab once or twice, just to see if it twiks the HA's and tells them "enough is enough, time to go away!"  
I'm really not sure if it does anything, but it makes me feel better trying!
Right now I'm pf, but I'll keep the Benadryl handi
 
Thanks for the tip! Cool
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Re: Feeling 90% better
« Reply #3 on: Sep 9th, 2007, 9:45am »
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Benadryl has been a staple for many to help with overnight attacks, either alone, or in conjunction with Melatonin.  
 
When the sinuses are irritated by allergy issues, I would tend to assume that CH attacks would naturally hit harder than at other times.  I mean, if the cavity is already plugged, the add in the swelling etc. of the CH attack?  Magnification of the sinus pain would surely occur.
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Re: Feeling 90% better
« Reply #4 on: Sep 9th, 2007, 4:37pm »
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on Sep 9th, 2007, 9:13am, sue_g wrote:
Hi All,  
Just wondered if any one has tried....Not only Benadryl, but Sinutab.  Towards the end of a cycle,(guessing of course), I'll take a Sinutab once or twice, just to see if it twiks the HA's and tells them "enough is enough, time to go away!"  
I'm really not sure if it does anything, but it makes me feel better trying!
Right now I'm pf, but I'll keep the Benadryl handi
 
Thanks for the tip! Cool

 
Ive already posted something here about Melatonin and remembered that Sinutab contains Pseudoephedrine which is known to lower Melatonin production/levels.
Here's one place I read it on but im pretty sure I read it somewhere else too.
 
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=pseudoephedr ine
 
Im not saying you shouldnt use Sinutab, I just want to make sure you know theres a connection with Melatonin which as you know is one of the "goodies" for some CH'ers.
 
As for Benadryl (Which is Diphenhydramine), it is not just an antihistamine but it also acts as a SSRI (selective serotonin reuptake inhinitor) which are also known to help people with Clusters. Its not the prefered SSRI in use with CH but it works as one.
 
Hope the info was helpful
 
N
 
 
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2fast4u
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Re: Feeling 90% better
« Reply #5 on: Sep 9th, 2007, 7:57pm »
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on Sep 9th, 2007, 4:37pm, Neil_C wrote:

 
Its not the prefered SSRI in use with CH but it works as one.

 
What is?
 
Thanks,
 
LC
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Re: Feeling 90% better
« Reply #6 on: Sep 10th, 2007, 5:01am »
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on Sep 9th, 2007, 7:57pm, 2fast4u wrote:

 
What is?
 
Thanks,
 
LC

Diphenhydramine - ie Benadryl
 
N Wink
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2fast4u
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Re: Feeling 90% better
« Reply #7 on: Sep 10th, 2007, 8:05am »
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Neil, you said it is not the preferred. So I was asking what is the preferred.
 
Thanks.
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Re: Feeling 90% better
« Reply #8 on: Sep 10th, 2007, 9:40am »
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Sinutab is (or was, I don't know which in the US...haven't seen it on the shelves in awhile) a combination of acetaminophen, pseudephedrine, and chlorpheneramine maleate.  
 
About 25 years ago, there was some talk about the use of Sinutab for the prophylactic treatment of cluster headache--the result (as near as I can tell) of a letter to the New England Journal of Medicine in 1980 (see  http://www.ncbi.nlm.nih.gov/sites/entrez?cmd=Retrieve&db=PubMed& list_uids=7383062&dopt=Abstract ) .  
 
On the advice of a doctor, I took Sinutab during a couple of cluster headache cycles.  To the best of my recollection, in my particular case, it did little or nothing, good or bad.  I quit using it.
 
I still take 4 mg. chlorphenamine maleate at night with 9 mg. melatonin when I'm in cycle, as it seems to help me to fall asleep.  I suspect that the melatonin in this combination does me as much or more good than the chlorphenaramine maleate to avoid nighttime hits.
 
Best wishes,
 
George
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Re: Feeling 90% better
« Reply #9 on: Sep 10th, 2007, 11:16pm »
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There is some kind of connection between Histamine & clusters. What it is, nobody knows for sure. Although anti-histamines never helped me ... Histamine infusions did help a great deal (for awhile).  
 
Glad you're getting some relief ... But be careful  
 
Goodluck !
 
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2fast4u
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Re: Feeling 90% better
« Reply #10 on: Oct 12th, 2007, 9:05am »
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Just an update. My cycle is over. I am very thankful for that, and this website. Between the Benadryl and the O2, life was much better.
Question, I am supposed to go back to the nuerologist in a week or so to follow up my initial visit 2 months ago. He didn't help with anything he suppested, although I was able to convince hime over the phone to get me O2. Should I go? $250 for 15 minute visit doesn't make sense.
 
LC
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Re: Feeling 90% better
« Reply #11 on: Oct 12th, 2007, 1:06pm »
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Do you have health insurance?  If so, go.  If not, then you make the call.  $250.00 is a lot of money out of pocket.
 
On the other hand, you really should be mapping out your plan of attack for the next cycle.  Prednisone taper?  Verapamil?  The options should at least be explored.  You don't want your next cycle to start without a plan of attack.
 
I'm glad to hear your PF. I hope it lasts forever.  
 
-Dennis-
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Re: Feeling 90% better
« Reply #12 on: Nov 10th, 2007, 2:29pm »
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I'm glad your cycle is over and that you found something that helped a bit until it was.   Grin
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