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Topic: When To Give Up ... (RANT = UPDATED) (Read 1256 times) |
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When To Give Up ... (RANT = UPDATED)
« on: Aug 28th, 2007, 5:02pm » |
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I'm NOT one to simply give up. NO ... I WILL NOT GO QUIETLY !! So, how is it that the doctors can give up on treating the patient ? HELLO !! I"M STILL HERE AND IT STILL PHUCKING HURTS !!
I was told today ... and I quote ... " ... Tough it out ..."
.."...NO PLAN B.." ....Diamond Headache Clinic
.."...NO FURTHER SUGGESTIONS.." ....SO IN NEURO CARE
..."...SORRY..."
WTF ?? I ASKED FOR NON-NARCOTIC MEDICATIONS OF ANY KIND !! NO, I DON"T WANT YOUR VALIUM'S !! WHAT DO THEY MEAN ... "GET SOME SLEEP" ???
WTF JUST HAPPENED ?? I'LL TELL YA ... BOTH DOCS GAVE UP ON TRYING TO HELP ME !!
I still have a small supply of Trex left. As long as I can keep Trex in supply, it won't be total CHAOS . WARNING: When/if the Trex dries up .... The shit WILL hit the fan !
It seems like when it really gets tough - it's every man for himself !
GOODLUCK TO YOU !
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| « Last Edit: Aug 29th, 2007, 2:46pm by unsolved1 » |
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Ray
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Re: When To Give Up ... (RANT)
« Reply #1 on: Aug 28th, 2007, 5:31pm » |
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Have you been offered Lidocaine to instill in your nostril? That is something the Diamond clinic did with me and it was sometimes helpful. Ask if Dr. Seymour Diamond can review your case and offer suggestions.
I suspect that without reported progress, your insurance company has decided to limit your stay.
Keep that chin up, and keep on plugging.
Wishing you the best and relief,
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
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http://www.shadesgarden.com
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Re: When To Give Up ... (RANT)
« Reply #2 on: Aug 28th, 2007, 5:53pm » |
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on Aug 28th, 2007, 5:31pm, Ray wrote:Have you been offered Lidocaine to instill in your nostril?
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Yes, I been there and done that. I also did their 'Cocaine' drops. It was a nightmare (literally) ... neither helped at all.
Thanks Ray 
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Ray
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Re: When To Give Up ... (RANT)
« Reply #3 on: Aug 28th, 2007, 6:16pm » |
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This is a crying shame.... 
I'm praying hard for you!
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
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LindsayLoo
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Re: When To Give Up ... (RANT)
« Reply #4 on: Aug 28th, 2007, 6:19pm » |
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I can't offer any advice since I am so new to this but I can offer you my thoughts and prayers (I added your name to my prayer circle if thats ok with you, if not tell me.)
Also, can I PM you and ask you a question?
*Hugs*
Lindz
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“The pain of the mind is worse than the pain of the body” -Publilius Syrus
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Grandma_Sweet_Boy
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Re: When To Give Up ... (RANT)
« Reply #5 on: Aug 28th, 2007, 6:53pm » |
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Good God! Mike you won't give up and neither should the medical people. That's just a bloody cop out on their part.
Hang in there.
Carol
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E-Double
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Re: When To Give Up ... (RANT)
« Reply #6 on: Aug 28th, 2007, 6:59pm » |
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hang in there and check pm
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I can't believe that I have to bang my
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Gonna take a breath and try again.
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George_J
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Re: When To Give Up ... (RANT)
« Reply #7 on: Aug 28th, 2007, 7:04pm » |
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World's full of doctors.
If this bunch is giving up on you, maybe it's time to see someone else. Not trying to be flippant, but what's the use of keeping on with them if they don't have a plan "B"?
As for telling a chronic clusterhead to "tough it out"..... 
MRA, Michael.
Best wishes,
George
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(Ellen)
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nani
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Re: When To Give Up ... (RANT)
« Reply #8 on: Aug 28th, 2007, 9:19pm » |
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When to give up? NEVER.
hugs and prayers to you, Mike.  
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Chillrmn1
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Re: When To Give Up ... (RANT)
« Reply #9 on: Aug 28th, 2007, 9:58pm » |
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Mike,
Really hate seeing you going thru this. 
Vibes and prayers coming your way for relief.
Hang in the best you can, it has to start getting better for you soon.
Sincerely,
Bob
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starlight
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Re: When To Give Up ... (RANT)
« Reply #10 on: Aug 28th, 2007, 10:31pm » |
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Why is Diamond Headache Clinic considered best in the country? Just wondering--what do they do their special?
Unsolved, it is far away from you, but you could try New England Regional Headache Center in Worcester, MA--they are considered one of the best.
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| « Last Edit: Aug 28th, 2007, 10:37pm by starlight » |
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sandie99
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Re: When To Give Up ... (RANT)
« Reply #11 on: Aug 29th, 2007, 2:03am » |
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Mike,
Giving up is not allowed! 
Keep on fighting, bro!
Shame on your docs, though...  They should raise to the occasion and not wash their hands off...
Lots of vibes & prayers,
Sanna
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"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
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headbanger45
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Re: When To Give Up ... (RANT)
« Reply #12 on: Aug 29th, 2007, 11:37am » |
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on Aug 28th, 2007, 3:57pm, Karla wrote:| Ask for imitrix shots, nasal sprays, tablets, zomig nasal spray and tablets, frova, amerge, relpax, axert, and oxygen. You cant take any of these within 24 hours of eachother but you get the idea. Multiple perscriptions will get you through the month. That is what I do. Also I didn't see Melatonin mentioned. Many take it at bedtime to get a good night sleep with out any hits from the beast. Good luck! |
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I understand my brother - time to shift gears and doctor shop Karla makes a good point. Set up many and make sure every visit you get something different. Then stock pile. I had one @sshole doctor that wanted me to have nasal surgery for a deviated septrume (sp). Most of them (doctors) have heavy house notes, large $ hobbies, and several ex's. Do you really think they give a $hit about how you feel. Lie, cheat, beat the f-ing system. Your quality of life depends on you not those bastards. And Don't, I REPEAT - DON'T give up.
We'll beat this thing...
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BlueMeanie
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Re: When To Give Up ... (RANT)
« Reply #13 on: Aug 29th, 2007, 1:09pm » |
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Sorry to hear that nothing is still helping. Check your pm's.
VIBES
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Re: When To Give Up ... (RANT)
« Reply #14 on: Aug 29th, 2007, 2:45pm » |
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I'm headed to Chicago, back to Diamond. Arrive in Chicago @ 1:30.
I can't sit here and do nothing. I gotta at least 'throw the beast a curveball' ... so I called Diamond again ... and they will do something to try and help. We begin the fight tomorrow .. until then ....
LATER
UNsolved
PS. Taking the laptop, will try to stay in touch
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starlight
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #15 on: Aug 29th, 2007, 6:55pm » |
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Good luck! Let us now how things go, Star
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2late
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #16 on: Aug 29th, 2007, 7:00pm » |
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fight the good fight my brother...best of luck to you,keep us posted.
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sandie99
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #17 on: Aug 30th, 2007, 3:56am » |
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Lots of good luck!!!
Vibes for PF time,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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DennisM1045
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #18 on: Aug 30th, 2007, 6:56am » |
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Mike, Never give up, never give in. I'm glad to see you are still on the offensive. Good luck man.
(((((((VIBES)))))))
-Dennis-
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aloneuk
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #19 on: Aug 30th, 2007, 11:11am » |
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good luck mate
we're all rooting for you !
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #20 on: Aug 30th, 2007, 2:30pm » |
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Mike if you have a litle chance check this out...
http://es.youtube.com/watch?v=T2GVk-MuYgk
Never give up.....
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #21 on: Aug 30th, 2007, 4:50pm » |
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Mike, never EVER give up.
As I read through the thread, I was about to post GET A NEW DOC!. But, found you have already moved on to Diamond. This is good news.
This proves you haven't given up. And, for one, I'm happy.
Hang tough, hang on. We're all here for you.
Keep us posted.
Sandy
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Patrick_A
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #22 on: Aug 30th, 2007, 5:34pm » |
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Hey bro,
The only suggestion I got for you is to try completely detoxing urself. Other than that, I got nothing else to tell ya.
Good luck,
Pat
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crumpy
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Re: When To Give Up ... (RANT)
« Reply #23 on: Sep 7th, 2007, 1:23pm » |
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on Aug 29th, 2007, 11:37am, headbanger45 wrote:
I understand my brother - time to shift gears and doctor shop Karla makes a good point. Set up many and make sure every visit you get something different. Then stock pile. I had one @sshole doctor that wanted me to have nasal surgery for a deviated septrume (sp). Most of them (doctors) have heavy house notes, large $ hobbies, and several ex's. Do you really think they give a $hit about how you feel. Lie, cheat, beat the f-ing system. Your quality of life depends on you not those bastards. And Don't, I REPEAT - DON'T give up.
We'll beat this thing... |
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I have had nasal surgery for a deviated septume. It didn't help
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MJ
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Re: When To Give Up ... (RANT = UPDATED)
« Reply #24 on: Sep 9th, 2007, 12:42am » |
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on Aug 30th, 2007, 5:34pm, Patrick_A wrote:Hey bro,
The only suggestion I got for you is to try completely detoxing urself. Other than that, I got nothing else to tell ya.
Good luck,
Pat |
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Agreed. Sometimes no medicine is the very best medicine.
It aint easy but its worth a shot. You have tried all the rest it seems. Whats the worst that can happen?
Edit to add: best advice I ever got was from chief of neurology at a major university. "theres nothing more that we can do for you" this after 20 some years of searching with trial and error, countless dollars spent and many many wise docs around the country. The ten years I chose to be med free was phsycologically better than any single day on medications and far easier dealing with the pain. Yet still there was pain.
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| « Last Edit: Sep 9th, 2007, 12:57am by MJ » |
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