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Topic: I'm baaaaaack (Read 744 times) |
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aceserve
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I'm baaaaaack
« on: Aug 9th, 2007, 2:38pm » |
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Well, I haven't entirely been a stranger, because I did visit this great site once in a while when I was PF, which lasted from January 2005 until July 26 (two weeks ago, when I was hit by a CH after feeling shadows one in a while in the previous week or so).
But now I'm back, writing from my office after getting hit by two CHs last night, the second one bringing excrutiating pain. After four nights of little sleep, I am plumb tired. Fortunately, there is Imitrex. I'm injecting in small amounts so as not to go broke fighting this thing.
Next step is to try the oxygen route. It's a bummer that (according to this Web site) I need to get a doctors prescription just for oxygen. I now live in Puerto Rico, where just seeing a doctor is an all-day affair.
Andrew (aka "Ace"
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Ahhh, what a relief to be pain free. Hang in there. Good times are comin'.
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Brew
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Re: I'm baaaaaack
« Reply #1 on: Aug 9th, 2007, 2:59pm » |
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Welcome back.
Hope this cycles goes quickly for you. And PF.
Once it's done, stick around. There are many others who will be able to use your help, and you'll get a chance to pay it forward.
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Always remember that you're unique, just like everyone else.
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Superirish2005
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be careful dude, I came back as well this month after 11 months pain free and the regulars jump all over you if you are not one of them. Many people here are just NOT NICE!
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vietvet2tours
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Re: I'm baaaaaack
« Reply #3 on: Aug 9th, 2007, 3:24pm » |
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on Aug 9th, 2007, 3:20pm, Superirish2005 wrote:be careful dude, I came back as well this month after 11 months pain free and the regulars jump all over you if you are not one of them. Many people here are just NOT NICE!
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This puke(superirish) is a troll and has been run off before. Get oxygen Andrew.Welders o2 should be easy to come by.
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Kill em all let God sort em out
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Charlotte
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Re: I'm baaaaaack
« Reply #4 on: Aug 9th, 2007, 3:25pm » |
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perhaps Andrew did not offend as many people when he was here before.
I thought you said you were going to be good this time, SuperIrish.
Welcome back Andrew.
Charlotte
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Superirish2005
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now I am called a puke?
charlotte, what have I done wrong and yet the name calling begins....pure classlass act
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aceserve
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Re: I'm baaaaaack
« Reply #6 on: Aug 9th, 2007, 7:40pm » |
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Hi All. Yes, I did visit this site when I was pain-free. I am not just a foul-weather friend
I also visit when the weather is fair and PF. And I'm happy any time to give advice to anyone in need. I remember the sheer torture of being hit by CHs starting in 1979 and the doctor offering no help. I don't think the medical community really knew about cluster headaches then. The doctor said I was under stress (and I was not), but I guess that's what they always say when they can't figure out what the problem is. The end result was no medicine for my CHs until the late 1980s, so I had to really SUFFER during my episodes. I don't want anyone to go through that.
I will pursue the suggestion for welder's 02. Thanks very much Vietvet.
Best,
Andrew
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Ahhh, what a relief to be pain free. Hang in there. Good times are comin'.
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nani
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Re: I'm baaaaaack
« Reply #7 on: Aug 9th, 2007, 8:22pm » |
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Hi Andrew. I was wondering about you a few weeks ago. Still on the deluxe tour of Latin America?
Sorry you're back in cycle, but glad to see you again.
(I use welder's O2, works great)
hugs, nani
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Others may come and go, but MY power is MINE.
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E-Double
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Re: I'm baaaaaack
« Reply #8 on: Aug 9th, 2007, 8:27pm » |
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Whattup Andrew!
Definitely get yourself Oxygen!
It'll be a saviour.
Enjoy the beautiful island.
E
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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LeLimey
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Re: I'm baaaaaack
« Reply #9 on: Aug 10th, 2007, 5:27am » |
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Hi Andrew,
Its "nice" to see you again - just wish it wasn't 'cos you're getting hit 
How's life treating you other than that? How's the family?
I'm with everyone else in that I can't recommend Oxygen enough especially if used with a mask from here www.clustermasx.com - you won't believe the difference it makes!
Take care of yourself
Helen
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Superirish2005
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andrew good luck getting any support from people here. They will laugh at you like they are doing me right now.
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Brew
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Re: I'm baaaaaack
« Reply #11 on: Aug 10th, 2007, 8:25am » |
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See? This buttmunch also has no shame. Shamelessly hijacking threads like this.
Look how mean they are. Me-me-me-me-me-me.....
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Always remember that you're unique, just like everyone else.
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barry_sword
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Re: I'm baaaaaack
« Reply #12 on: Aug 10th, 2007, 8:29am » |
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Hi Andrew. Sorry your back in cycle. I also cannot say enough about o2, it really works!!
Barry
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QUIT SMOKING SEPT. 03 2005,
http://barrysword.blogspot.com
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aceserve
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Re: I'm baaaaaack
« Reply #13 on: Aug 10th, 2007, 9:45am » |
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I called a couple of welding supply stores and they questioned me about what the oxygen would be used for. When I fessed up to one shop that it would be for medical reasons, he said the welding o2 is not good for that because it is not purified, unlike o2 used for medical purposes. Has anyone come across a problem like this?
A question: Not long before this episode of CH began I got a constant ringing in my ear (it sounds like high-pitched insects in the background). When a CH sets in, it gets more pronounced. Has that happened to other folks?
Andrew
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Ahhh, what a relief to be pain free. Hang in there. Good times are comin'.
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aceserve
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Re: I'm baaaaaack
« Reply #14 on: Aug 10th, 2007, 9:47am » |
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Hello Nani,
Hugs right back at you. Thanks, and glad to be in touch again.
Best,
Andrew
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Ahhh, what a relief to be pain free. Hang in there. Good times are comin'.
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aceserve
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Re: I'm baaaaaack
« Reply #15 on: Aug 10th, 2007, 9:49am » |
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Hello Helen,
That's great you remember me. I remember you too..how could I forget a great handle like LeLimey?
Other than the scary CHs, I cannot complain. Wife and two sons doing marvelously, gracias a Dios.
I hope you're well.
Best,
Andrew
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Ahhh, what a relief to be pain free. Hang in there. Good times are comin'.
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nani
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Re: I'm baaaaaack
« Reply #16 on: Aug 10th, 2007, 9:56am » |
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on Aug 10th, 2007, 9:45am, aceserve wrote: he said the welding o2 is not good for that because it is not purified, unlike o2 used for medical purposes. Has anyone come across a problem like this?
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From what I understand, in order to weld, you have to have pure O2. I had my husband get it, and say it was for welding. They never asked him anything else.
I had to buy a 540 regulator from Ebay, and I also bought a clustermasx.
Hopefully Jonny, or somebody who knows more than I do will come along and offer more info.
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Others may come and go, but MY power is MINE.
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aceserve
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Re: I'm baaaaaack
« Reply #17 on: Aug 10th, 2007, 10:07am » |
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Charlotte, Brewcrew, SuperIrish, E-Double, Barry,
Thanks for your good wishes!
Brewcrew: I'm in with the name. I love brews, especially microbrews but can't touch the stuff till this episode is over.
Barry: I see from your blog you're a mountain biker. I do some of that in Bend, OR, where we have a place. It's a mountain-biking paradise and well worth a visit.
Best,
Andrew
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Ahhh, what a relief to be pain free. Hang in there. Good times are comin'.
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Jonny
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Re: I'm baaaaaack
« Reply #18 on: Aug 10th, 2007, 1:48pm » |
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on Aug 10th, 2007, 9:45am, aceserve wrote:| When I fessed up to one shop that it would be for medical reasons, he said the welding o2 is not good for that because it is not purified, unlike o2 used for medical purposes. |
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The guy is just trying to cover his ass, he could get in deep water renting welding 02 for that reason.
I own a welding company, welding tanks and medical tanks are filled from the same main tank at the gas house.
All I use is welding 02 (because I get it for free  )
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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aceserve
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Re: I'm baaaaaack
« Reply #19 on: Aug 10th, 2007, 2:13pm » |
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Jonny,
Excellent. Thanks! It's good to get word from someone who knows the score completely.
Best,
Andrew
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Ahhh, what a relief to be pain free. Hang in there. Good times are comin'.
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Brew
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Re: I'm baaaaaack
« Reply #20 on: Aug 10th, 2007, 2:39pm » |
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on Aug 10th, 2007, 10:07am, aceserve wrote:| Brewcrew: I'm in with the name. I love brews, especially microbrews but can't touch the stuff till this episode is over. |
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FWIW - The moniker is a nickname for my hometown baseball team. Even though I used to make my own beer (and not from kits - used to mash the grain by hand), I don't touch the stuff anymore. Don't get me wrong, I'm no prude. I just can't take the chance anymore - too much chance for misery to follow.
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buhrly
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Re: I'm baaaaaack
« Reply #21 on: Aug 10th, 2007, 6:30pm » |
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where i get my oxygen filled is welding and medical next to each other. walk in on one side 29 dollar exchange, the other 22 dollar exchange. they go to the same back room to get the exchange tank. guess which side i go to 
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aceserve
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Re: I'm baaaaaack
« Reply #22 on: Aug 11th, 2007, 1:07am » |
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If pain alone were fatal, I'd be dead now. I just had a CH that was one of the worst I have ever endured. 
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Ahhh, what a relief to be pain free. Hang in there. Good times are comin'.
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nani
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Re: I'm baaaaaack
« Reply #23 on: Aug 11th, 2007, 1:11am » |
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Andrew, have you read up on kudzu, or Red Bull, or taurine? All three of these have just come to our attention in the last 2 years. They work for many if us. Hang in there.
hugs, nani
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Others may come and go, but MY power is MINE.
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vietvet2tours
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Re: I'm baaaaaack
« Reply #24 on: Aug 11th, 2007, 2:44am » |
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on Aug 11th, 2007, 1:07am, aceserve wrote:| If pain alone were fatal, I'd be dead now. I just had a CH that was one of the worst I have ever endured. |
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You hang in there sunshine cuz you're special.
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Kill em all let God sort em out
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