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   Author  Topic: i have a brain tumor  (Read 1255 times)
aloneuk
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i have a brain tumor
« on: Jul 6th, 2007, 8:54am »
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not sure where 2 post this !??
 
after posting some great nows yesterday and feeling on top of the world i opened my mail this morning and there was a letter from the hospital with my mri results and  
i have a tumor on the pituitary gland its not very big but its there,  
 
i have now got an appointment with prof goadsby on the 8th aug to talk about what can be done, im feeling like i have been kicked in the bollox and could do with some love if theres any spare  
 
 Cry
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Re: i have a brain tumor
« Reply #1 on: Jul 6th, 2007, 10:05am »
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Lots of love coming your way.  
 
My 1st inclination was to congratulate you on actually finding out what was wrong, but the fact it was a brain tumor kind of takes the joy out of it. Doesn't it?
Hopefully it is a very simple procedure.
Good luck, and let know what your prognosis is.
 
Patrick_A
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Re: i have a brain tumor
« Reply #2 on: Jul 6th, 2007, 10:15am »
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on Jul 6th, 2007, 8:54am, aloneuk wrote:
not sure where 2 post this !??
 
after posting some great nows yesterday and feeling on top of the world i opened my mail this morning and there was a letter from the hospital with my mri results and  
i have a tumor on the pituitary gland its not very big but its there,  
 
i have now got an appointment with prof goadsby on the 8th aug to talk about what can be done, im feeling like i have been kicked in the bollox and could do with some love if theres any spare  
 
 Cry

 
My best wishes that the tumour will be successfully removed and that you will have a fast recovery.
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Guiseppi
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Re: i have a brain tumor
« Reply #3 on: Jul 6th, 2007, 10:19am »
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On the one hand it's no longer the unknown...but what a crummy known. Hoping it's a simple procedure, sending my families prayers and thoughts your way.
 
Guiseppi
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Re: i have a brain tumor
« Reply #4 on: Jul 6th, 2007, 10:20am »
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keep thinking positive no matter what.one step at time to cope things.it can be harmless and with one surgery to become pain free forever.try not to think it too much because sometimes things get bigger when we imagine it.work it with ur doc. and only advice ican give u is that.one step at time.best wishes and keep the spirit through hard times Wink
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Re: i have a brain tumor
« Reply #5 on: Jul 6th, 2007, 10:24am »
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Oh man...You have every spare vibe and thought I got....
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Re: i have a brain tumor
« Reply #6 on: Jul 6th, 2007, 11:52am »
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I can't find the words to express how sorry I am for your diagnosis.  Stay strong and know that you will be in my thoughts and prayers.  Please check back and let us know how things go.
 
-Dennis-
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Ray
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Re: i have a brain tumor
« Reply #7 on: Jul 6th, 2007, 11:54am »
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My very best wishes for a good outcome.  Prayers and more are headed your way.
 
Ray
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Paul98
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Re: i have a brain tumor
« Reply #8 on: Jul 6th, 2007, 11:56am »
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Take things one step at a time and learn what your options are for treatment.  Sending lots of vibes and prayers.
 
-P.
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Re: i have a brain tumor
« Reply #9 on: Jul 6th, 2007, 12:00pm »
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Ike - I don't know where to start hon.
 
I'm away from sunday night until the 25th but once I'm back any help or support I can give you and Tami is there okay? If you need help with anything or if the two of you just want a break you're more than welcome to come and stay.
 
By the sounds of it they've caught it early so thats good. What with early diagnosis and the strength of this place you've got the best team going mate.
 
If you want to talk before sunday pm me your number and I'll give you a shout.
 
Lots and lots and lots of love
Helen xxx
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Re: i have a brain tumor
« Reply #10 on: Jul 6th, 2007, 12:37pm »
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I am truly, deeply sorry to hear about your tumour.
 
It can be hard to see a bright side to such news, but there is one:  You have all of our best wishes, prayers and strongest vibes.  You are with people who genuinely care and who genuinely want to make sure you beat that little lump of good for nothing sheit!
 
My friend beat (5 years' remission now) a very serious case of Lukemia through, he believes, visualising a little Pacman steadily gobbling up the extra white cells; try to imagine your own little pacman steadily munching his way through your tumour... believe it, and do it. ALL the time.
 
Kind regards
 
Paul
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Re: i have a brain tumor
« Reply #11 on: Jul 6th, 2007, 12:46pm »
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Holy crap!  When we all search for a diagnosis, nobody wants to hear this kind of result.  I'm so sorry, and I, too, hope it's an easy procedure.
 
I'm sending every vibe I've got to you, not to mention a few prayers.
 
Sandy
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Re: i have a brain tumor
« Reply #12 on: Jul 6th, 2007, 12:58pm »
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Sorry to hear the news mate Cry
 
Strength will be in support and there'll be plenty here.  PM me if you would like to chat/get together, whatever - I'm in Herts too.
 
Wishing you all the best
 
-Lee
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Re: i have a brain tumor
« Reply #13 on: Jul 6th, 2007, 1:24pm »
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Ike much as I'm always slating Lee its only in fun, he's one of my very best friends in the whole world and I would trust him with my life. If you get the chance to meet him - DO! (Just not on whatever day me and you meet up 'k?!  Wink )  
 
He has forgotten more about CH and brain pathology than I will ever know and if anyone can shed a little light on this for you he can. Much as it hurts me to admit it I really cannot praise this bloke enough and you can't go wrong listening to him.
 
lots of love
Helen
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Re: i have a brain tumor
« Reply #14 on: Jul 6th, 2007, 1:54pm »
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lots of praying going on here!!
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Re: i have a brain tumor
« Reply #15 on: Jul 6th, 2007, 1:54pm »
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Oh dear, not good Ike Sad
This not fair after yesterday.
PM or mail me if ya need to chap,even if ya just need to rant..................
 
   Paul.
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Re: i have a brain tumor
« Reply #16 on: Jul 6th, 2007, 5:37pm »
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I have some to spare. You now have it. More love less tumor. Good luck with DR. G
all the best
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Re: i have a brain tumor
« Reply #17 on: Jul 6th, 2007, 7:11pm »
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So sorry to hear of this news and sending all prayers and vibes that I have to you.
 
I am amazed they broke the news to you by mailing the result directly to you! In Australia, such diagnosis has to be given in person by a doctor, preferably your GP so that not to shock the patient and so that any question can be answered satisfactorily.
 
I hope it makes you feel a little bit better to know that the pituitary is the most accessible gland of the head. It makes surgery a lot easier than other parts of the brain. Pituitary gland tumours often respond to hormone treatments very well. There are many ways they can shrink it either by meds or by radiation. Surgery may not be necessary.  
 
http://www.pituitary.org/faq/
 
I am very glad you have Prof Goadsby. You are in good hands and I wish you all the very best for a successful, quick and easy treatment and complete recovery.
 
Annette
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Re: i have a brain tumor
« Reply #18 on: Jul 6th, 2007, 8:58pm »
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hug hugGood luck from my whole family.Keep your head up
 
 
 
 
 
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Re: i have a brain tumor
« Reply #19 on: Jul 7th, 2007, 7:29pm »
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ike ,  
 
thankyou for you recent support to me , you are obviously a gorgeous person.  
im sorry to hear your news and so hope its going to get sorted out for you really soon .
 
sending you alot of love and squeezy hugs too xxxx
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Re: i have a brain tumor
« Reply #20 on: Jul 7th, 2007, 8:30pm »
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I'm hopeful that your appointment with Dr. Goadsby yields some good options for you--a better, more competent physician would be difficult to imagine, from all I've heard.
 
Best wishes always,
 
George
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Re: i have a brain tumor
« Reply #21 on: Jul 8th, 2007, 12:03am »
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Ike,
Prayers and lots of hope from  here. One day at a time...and know we are with you in spirit.
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Re: i have a brain tumor
« Reply #22 on: Jul 8th, 2007, 1:36am »
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Dear Ike,
 I am lost for words Cry Cry,sending all my vibe's your way with a big hug (heto-style) Grin....Lenny
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Re: i have a brain tumor
« Reply #23 on: Jul 8th, 2007, 3:46am »
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I am so sorry for the news... hug
 
If you need to talk about it, I'm here. My father and my uncle both had brain tumors, so I know a bit about living with it. And I know that it makes a huge difference in what type of tumor you have and where it is located. This is the moment to fight!
 
I must admit that it is a surprise to me as well that you got the news via mail; my dad was told it personally by his doctor. These things do vary.
 
Hugs & prayers,
Sanna
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Re: i have a brain tumor
« Reply #24 on: Jul 8th, 2007, 7:08am »
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Sending every vibe I can muster from down under, stay strong friend.
Kind Regards
Barry
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