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   Author  Topic: Clusterphobia  (Read 629 times)
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Clusterphobia
« on: Jul 3rd, 2007, 3:44pm »
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Shouldn't this be in a dictionary somewhere ??
 
Clusterphobia - The fear of cluster headaches. ie. The fear of a cluster attack. May also include the fear of sleeping.
 
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Re: Clusterphobia
« Reply #1 on: Jul 3rd, 2007, 4:00pm »
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LOL
 
Suffered by approximately .1% of the population. (and their families)
 
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Re: Clusterphobia
« Reply #2 on: Jul 3rd, 2007, 5:08pm »
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I'm one.
 
 
 
 
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Re: Clusterphobia
« Reply #3 on: Jul 3rd, 2007, 5:29pm »
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Fellow sufferer Grin
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Re: Clusterphobia
« Reply #4 on: Jul 3rd, 2007, 10:23pm »
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Is it the cluster or is it the unbearable pain of cluster that we are phobic to ?  
 
For me its the pain that is too much ....  Sad
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Re: Clusterphobia
« Reply #5 on: Jul 4th, 2007, 1:07am »
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Why split hairs?  Roll Eyes  cluster headache = pain
 
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Re: Clusterphobia
« Reply #6 on: Jul 4th, 2007, 5:21am »
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Would it be appropriate to insert the new word into famous quotes? (original authors intentionally left uncreditied for any original material bastardized in this post)  
 
"The only thing to fear is Clusterphobia itself"    
 
"The oldest and strongest emotion of mankind is fear, and the oldest and strongest kind of fear is Clusterphobia"
 
"To fear is one thing. To let Clusterphobia grab you by the tail and swing you around is another"
 
"The conquest of Clusterphobia lies in the moment of its acceptance"
 
"Clusterphobia is one of the very few monsters who warrant the fear we have of them"
 
"We will not be driven by Clusterphobia into an age of unreason"
 
Might work???
 
 
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Re: Clusterphobia
« Reply #7 on: Jul 4th, 2007, 6:06am »
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Only problem is dealing with the phobia, you can deal with hydrophobia by not going near water or by disproving the fear. Likewise you can deal with claustrophobia by not going into small places. I for one would gladly volunteer to deal with my Clusterphobia (and I am a Paranoid Clusterphobic) by not having the damn things anymore
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Re: Clusterphobia
« Reply #8 on: Jul 4th, 2007, 7:31am »
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Would that that were an option Wayne.
 
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Re: Clusterphobia
« Reply #9 on: Jul 4th, 2007, 8:04am »
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Oh yes Dennis, the eternal optimist in me coming to the surface.
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Re: Clusterphobia
« Reply #10 on: Jul 4th, 2007, 8:50am »
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A phobia is an unreasonable sort of fear that can cause avoidance and panic.  I'm not sure that this is unreasonable, nor can I avoid anything.  It is hard not to dwell on this between hits or between cycles, but we simply need to seize the good times when they happen.
 
PF wishes to all!
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Re: Clusterphobia
« Reply #11 on: Jul 5th, 2007, 6:48pm »
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definition of brave;being afraid but saddling up anyway.brave is what we all are when we walk to our beds to lay are heads down to sleep.
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Re: Clusterphobia
« Reply #12 on: Jul 5th, 2007, 7:52pm »
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when I am in cycle I am afraid just to see the night coming...I get my worst hits at night  Sad
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Re: Clusterphobia
« Reply #13 on: Jul 5th, 2007, 9:32pm »
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Being afraid of the inevitable just makes it worse....I think that clusterphobia exists in a much worse form, the general public that is afraid of CH and does not understand it.  Undecided
 
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Re: Clusterphobia
« Reply #14 on: Jul 6th, 2007, 12:12pm »
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To fear the next attack, or to accept the next attack as nearly inevitable.  Which would be better and which would be worse?
 
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Re: Clusterphobia
« Reply #15 on: Jul 6th, 2007, 12:54pm »
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on Jul 4th, 2007, 5:21am, burnt-toast wrote:

 
"The conquest of Clusterphobia lies in the moment of its acceptance"
 
Tom  

 
I think this it is, in a nutshell.  
 
I don't fear CH, because I know it won't kill me.  What I fear is the pain of CH, but that pain also will not kill me.  I have to accept that I have CH, and with that CH comes pain, so I must also accept the pain.  Once I do that, I no longer fear it.  It just "is", and I have to deal with it with whatever methods and armor I have.
 
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Re: Clusterphobia
« Reply #16 on: Jul 6th, 2007, 3:45pm »
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I remember that fear very well!!
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Re: Clusterphobia
« Reply #17 on: Jul 6th, 2007, 4:17pm »
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To add to my first comment....there is a big difference between accepting and giving up.  You can accept someting as part of your life but then do all you can to try to change it. And yes, that is much better than fearing it.
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Re: Clusterphobia
« Reply #18 on: Jul 7th, 2007, 2:02pm »
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in short term and when cycles are bad its all about pain.but in long terms its when it will hit.where,with whom and when that happens in public,trying to appear normal.i think thats the phobia.fearing not that it will come but when will it be.also not sure about the rest of u but for me if it happens to be in bad mood and it happens its somehow worser.
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Re: Clusterphobia
« Reply #19 on: Jul 7th, 2007, 4:05pm »
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A phobia can exist for decades without us ever having the feared experience. But a phobic attack, that is, powerful anxiety, can be triggeed by a THOUGHT about that which is feared; it need not be an actual CH attack.  
 
Sandy has hit it! We can learn how to control our fear so that it does not come to dominate and constrict our life (one of the major parts of the definition of phobia.)
 
While fear is an automatic response in us, it is possible to learn how to modify and reduce its impact so that we have alternatives to the prisons of avoiding and/or endless expectation.
 
http://www.ouch-us.org/chgeneral/painvsuffering.htm
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Re: Clusterphobia
« Reply #20 on: Jul 7th, 2007, 6:52pm »
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Everybody has something, CH happens to be my thing.
 
We can't make the hits stop coming, though we still seek for that.  I figure I'm going to get so many hits in a cycle; the best I can hope for is find some relief in duration and hopefully knock them down a point or two.  There is a world of difference between a 7 and a 9.  
 
We can control our response to all this, and that is what this site is all about.  We can respect the pain and deal with it.  Hang tough through the hits, embrace the PF times with gusto!
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