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Topic: Here We Go Again ... (Read 444 times) |
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The beast is slowly but surely sneaking back in. I'm getting sporadic hits both in the daytime and during the night. Last jab 4 hours ago and I'm already shadowing again. (this may even turn into something within the next cpl of minutes). It seems that my Histamine ride is over once again ... last stop is Cluster Hell !! 
BTW, I got a 3 - 3.5 week break from hits thanks to the last treatment ... but I was hoping for a longer break again this time.  ( Longest break so far, about 8 or 9 weeks )
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Ray
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Re: Here We Go Again ...
« Reply #1 on: Jun 26th, 2007, 7:13pm » |
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Sorry for the pain, but just take it one moment at a time and NEVER let the beast win. My best hopes, wishes, and blessings are headed your way.
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
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Redd
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Re: Here We Go Again ...
« Reply #2 on: Jun 26th, 2007, 7:20pm » |
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See Mike, this is where I disagree with INHS criteria. Remissions that are forced by medications, and must be maintained by the use of medications are not remissions in my opinion but simply successful medical interventions.
A spontanious end to a cycle that needs no medications to continue the period of PF time would in my opinion be a true remission.
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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MR_FLOOR
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Re: Here We Go Again ...
« Reply #3 on: Jun 27th, 2007, 8:38am » |
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on Jun 26th, 2007, 7:20pm, Redd wrote:See Mike, this is where I disagree with INHS criteria. Remissions that are forced by medications, and must be maintained by the use of medications are not remissions in my opinion but simply successful medical interventions.
A spontanious end to a cycle that needs no medications to continue the period of PF time would in my opinion be a true remission. |
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I agree red when I wen't through my so called remission it was after my histamine desensitization,don't get me wrong I cherished my pain free time but it was not true remission it was induced by meds.But believe me I'm not complaining I loved every minute of it.  .........................Dave
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LeLimey
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Re: Here We Go Again ...
« Reply #4 on: Jun 27th, 2007, 9:35am » |
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I agree with Redd too
Michael hang in there hon - kick it's arse and hopefully next time will be another marathon pain free session for you - I'll have my fingers crossed!
Helen
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DennisM1045
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Re: Here We Go Again ...
« Reply #5 on: Jun 27th, 2007, 11:08am » |
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Hi Michael,
I’m sorry to hear the beast is rearing his ugly head again. Hang tough man. We’re all with you. Make sure you have your abortives lined up. Good luck and keep us posted.
-Dennis-
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Dancing the dance since 1995 ... Family member since 2007 ... No longer alone
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Re: Here We Go Again ...
« Reply #6 on: Jun 27th, 2007, 12:26pm » |
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Thanks everyone. Last night was a rough one with 2 attacks (both requiring a 'jab')  I seen my local neuro yesterday and we both agreed that I'd stay out of the hospital for as long as I can handle it. Just before I'm about to CRACK, I'll go back in and do another round of histamine.
Hope you all had a better night than I did !
PF Wishes
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Shedz
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Re: Here We Go Again ...
« Reply #7 on: Jun 27th, 2007, 12:29pm » |
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Hang in there chap, and give the beast hell.
Wishing you some PF time Michael.
Paul.
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I push my fingers into my eyes, It's the only thing that slowly stops the ache, But it's made of all the things I have to take, Jesus it never ends it just works its way inside, If the pain goes on, I AM gonna make it.... http://www.youtube.com/watch?v=Xps7AM8HbjE
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Buzz
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Re: Here We Go Again ...
« Reply #8 on: Jun 27th, 2007, 12:29pm » |
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Keep strong!
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The cure is out there somewhere...
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Barry_T_Coles
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Re: Here We Go Again ...
« Reply #9 on: Jun 28th, 2007, 4:27am » |
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Hi Michael,
Sorry to hear the beast is back; looks like we will be doing the dance together, I started again last Saturday with nightly hits but so far nothing above a KIP 7.
Looks like if the Taurine & Magnesium routine was working it’s stopped now.
At least I had 240 days PF so I can't complain.
Ah well ain't life grand.
Let’s hope it’s a short one
Cheers
Barry
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| « Last Edit: Jun 28th, 2007, 4:29am by Barry_T_Coles » |
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jcreedy
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Re: Here We Go Again ...
« Reply #10 on: Jun 28th, 2007, 10:52am » |
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on Jun 28th, 2007, 4:27am, Barry_T_Coles wrote:Hi Michael,
Sorry to hear the beast is back; looks like we will be doing the dance together, I started again last Saturday with nightly hits but so far nothing above a KIP 7.
Looks like if the Taurine & Magnesium routine was working it’s stopped now.
At least I had 240 days PF so I can't complain.
Ah well ain't life grand.
Let’s hope it’s a short one
Cheers
Barry
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I've been going with Kudzu, Calcium/Magnesium and Taurine every day for almost two weeks now. I've had two bad headaches in that time period wheras before the supplements I was having one or two CHs every day. I got a bad one a couple of nights ago when I had a few pints, but that's my fault.
Take care Michael.
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Wayne
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Re: Here We Go Again ...
« Reply #11 on: Jun 29th, 2007, 5:07am » |
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on Jun 28th, 2007, 4:27am, Barry_T_Coles wrote:Hi Michael,
Sorry to hear the beast is back; looks like we will be doing the dance together, I started again last Saturday with nightly hits but so far nothing above a KIP 7.
Looks like if the Taurine & Magnesium routine was working it’s stopped now.
At least I had 240 days PF so I can't complain.
Ah well ain't life grand.
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Howzit Barry
Sorry to hear this, I really thought you were on a good wicket with this. I hope the cycle is short and manageable.
Cheers,
Wayne
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midwestbeth
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Re: Here We Go Again ...
« Reply #12 on: Jun 29th, 2007, 6:59am » |
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Sorry to hear the beast is rearing it's ugly head. Hang in there.
Beth
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Do more than exist - live
Do more than touch - feel
Do more than look - observe
Do more than read - absorb
Do more than hear - listen
Do more than listen - understand
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BarbaraD
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Re: Here We Go Again ...
« Reply #13 on: Jun 29th, 2007, 7:47am » |
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Sorry Michael
Just when we think it's safe to go back in the water .....
And Redd, I agree -- even when we're in "remission" we're not really "thur" with the beast - we're just on "hold" till he decides to pop in again. But I love the remission periods.
Hang in there Michael...
Hugs BD
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What don't kill ya, Makes ya stonger!
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