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Topic: all not alone (Read 353 times) |
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horsegirl
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Cluster Headaches
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all not alone
« on: Jun 22nd, 2007, 9:24pm » |
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hi,I have gotten so much info from this site,mostly i dont feel so alone anymore i mean with the cluster ha.from being shuned in work places to my first two husbands not even trying to understand,luckily my third husband of ten years is an angel when it comes to my ha's.sense there so rare Ive never met anyone that had them.research has come along way,when i was 15 i got my first one,and thought i had a sinus ha,then when i was 20 i finaly was diagnoised I looked them up in a headache book and it said the profile for a person with cluster headaches was a 40 year old man that drinks and smokes heavily with a red bulbus nose,maybe one of you read that to but that was 20 some years ago.I'd sure like to get ahold of that person that wrote that.we still got along way to go.Ive read many post from many of you and notice attitude wich is well earned im sure it was annoying having that lady junebug or whatever the hell her name was act like she had the answers when youve all read and tried everything or close to it anyway just begging please dont be to hard on me like that if i say something stupid cause im reall sensitive lol [
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PollyPocket
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Someone I am is waiting for my courage.
 
 
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Re: all not alone
« Reply #1 on: Jun 22nd, 2007, 9:31pm » |
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Hi Horsegirl and welcome!
Yep, 22 years ago I had the same misdiagnosis and was told the same characteristics! We musta had the same dr!
Get to know everyone here cuz this is the most wonderful group of people you'll ever find. (and don't worry, I say lotsa stupid stuff and they kinda like me anyway)
Welcome to the nut house!
Hugs,
Jen
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
"If I don't remember it happening, it never happened.  " - Tori
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Jonny
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Give me a shovel Ill dig my own grave!
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Re: all not alone
« Reply #2 on: Jun 22nd, 2007, 9:33pm » |
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on Jun 22nd, 2007, 9:24pm, horsegirl wrote:| Ive read many post from many of you and notice attitude wich is well earned im sure it was annoying having that lady junebug or whatever the hell her name was act like she had the answers when youve all read and tried everything or close to it anyway just begging please dont be to hard on me like that if i say something stupid cause im reall sensitive lol [ |
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This is where I take very special notice on this post.
You be the judge!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: all not alone
« Reply #3 on: Jun 22nd, 2007, 10:18pm » |
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Eve, welcome to the Nut House !!!!
You feel so good just reading these posts. Wait until you get to MEET a fellow clusterhead!!! THAT is just AWESOME!!! If you ever get a chance, especially if there are SEVERAL getting together, GO!!! MOST of us leave our ax and ax-murderer tendencies at home when we meet other clusterheads ... Well SOME leave them home ... OK, OCCAISIONALLY they are left home ...
I have met MANY of these people, that you see posting, in person, and the bond is unbelievable!!! AND instantaneous!
BUT, I MUST warn you. All the rest of the people here, except for you and I (of course), are NUTS!!! You and I will have to work EXTRA hard to keep these loonies in line! 
LOL
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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horsegirl
New Board Veteran
Cluster Headaches
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Posts: 106
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Re: all not alone
« Reply #4 on: Jun 22nd, 2007, 11:10pm » |
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thanks for the welcome, every time i take an interest in someone and press the deal to read all there post to get to know there story it goes so slow it wont connect,oh well ill just gradualy get to know you all,i cant tell if johnny likes me much and i even told him my name,my daughter sighned me on and gave me the name horsegirl cause i love horses.
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Sean_C
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Jonnys part horse Eve, well................. thats what Chewy says anyway.
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horsegirl
New Board Veteran
Cluster Headaches
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Posts: 106
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Re: all not alone
« Reply #6 on: Jun 22nd, 2007, 11:28pm » |
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oops another reason for him not to like me misspelled jonny horses are very foregiving even if there only part horse
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Linda_Howell
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Hearing is one thing. Listening is another.
 
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Re: all not alone
« Reply #7 on: Jun 22nd, 2007, 11:39pm » |
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Only people who have been here a while know that Jonny doesn't like his name being mis-spelt. Especially new people, but you seemed to know that without being told. hmm
Quote:| just begging please dont be to hard on me like that if i say something stupid cause im reall sensitive lol [ |
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You're real sensitive? o.k. then.so I'll just say welcome.
luinda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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GrandPotentate
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mmmmmmmmmm
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Re: all not alone
« Reply #8 on: Jun 22nd, 2007, 11:50pm » |
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I'm glad you found this group. These folks have been a wonderful source of comfort. It is pretty scary going through the unknown phase with docs who don't know what is going on. I went through that, even though I might be described as "a 40 year old man that drinks and smokes heavily with a red bulbus nose"
Beer doesn't agree with me while I'm in cycle, but I enjoy otherwise. I did give up the smokes on the doctor's advice, while he had me doped up. The nose is a family thing.
Bummer that the beast can hit a sweet young thing like you, too.
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Jon
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