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Topic: Botox? (Read 258 times) |
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horsegirl
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Cluster Headaches
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I have heard insurance pays for Botox for migraines, and clusters on the news once.
Has anyone tried this with cluster headaches?
I was going to but I'm so close to my usual time of it ending for hopefully a couple years like usual.
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Bob_Johnson
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Re: Botox?
« Reply #1 on: Jun 22nd, 2007, 7:40am » |
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Medical literature is scant on the subject and outcomes reported are not encouraging. Look elsewhere for more effective treatments.
Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
http://www.brightok.net/~mnjday/chtherapy.pdf
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| « Last Edit: Jun 22nd, 2007, 7:41am by Bob_Johnson » |
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Bob Johnson
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Jonny
CH.com Alumnus
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Give me a shovel Ill dig my own grave!
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Re: Botox?
« Reply #2 on: Jun 22nd, 2007, 8:12pm » |
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Bob knows what he posts, he probably has done more research on CH than anyone on this site.....and thats saying ALOT! (because there are alot of reseachers here)
Welcome to the house of pain 
BTW: whats your name, im not going to call you what your loggin is. 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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horsegirl
New Board Veteran
Cluster Headaches
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Posts: 106
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Re: Botox?
« Reply #3 on: Jun 22nd, 2007, 9:30pm » |
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my name is eve
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PollyPocket
CH.com Alumnus
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Someone I am is waiting for my courage.
 
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Re: Botox?
« Reply #4 on: Jun 22nd, 2007, 9:37pm » |
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Eve, I've considered the botox thing too, just as a long-shot, but I'll stick to what is currently working for me: verapamil as preventive. So far, I've not been too lucky in the abortives but going to push the dr for a script for O2 (he turned me down the last time I asked).
And when that Bob guy or that Jonny guy tell ya something- listen.
Jen
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“Life is all about timing... the unreachable becomes reachable, the unavailable become available, the unattainable... attainable. Have the patience, wait it out It's all about timing.” - Stacey Charter
"If I don't remember it happening, it never happened. " - Tori
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horsegirl
New Board Veteran
Cluster Headaches
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Posts: 106
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Re: Botox?
« Reply #5 on: Jun 22nd, 2007, 9:43pm » |
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I just realized on the post board or whatever ,i wrote all not alone instead of not alone,how stupid .
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horsegirl
New Board Veteran
Cluster Headaches
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Posts: 106
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Re: Botox?
« Reply #6 on: Jun 22nd, 2007, 9:52pm » |
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thank you all for writing back,ill try to get better at this,by the way Im on verapamil 120 3 times a day and o2 i dont understand why your doctor would say no on the o2,.Its been 4 nights without a ha Id like to stop taking the pills cause they make me tired,but im to chicken there not over
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horsegirl
New Board Veteran
Cluster Headaches
Gender:
Posts: 106
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itRe: Botox?
« Reply #7 on: Jun 22nd, 2007, 10:10pm » |
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hi jennifer, its about the oxygen again there realy is no reason i can think of why a doctor could refuse you ,it helps me alot the first week of my ha it just took it away in minutes then it seemed like all it was doing was postponing ,id wake up put it on fall back to sleep ten minutes later wake up with another,third week no help Id throw down the mask and do the dance but mines more of a scoot i sit on my but push myself around with my heels sometimes till they bleed with rugburn and ofcourse my ice pack my husband chases me with the 02 get it the hell away from me i scream,poor guy,4th week it worked great for me,who knows enough about me im going to bed
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vegas1002
New Board Newbie
It is what it is.........
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Re: Botox?
« Reply #8 on: Jun 23rd, 2007, 9:35am » |
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It is probably just a coincidence but I went for Botox injections about a month ago for vanity and my CH's came back 2 weeks ago. Of course I will look for any reason to blame them on. I will never do that again either way. Great to hear that your so close to the end!
Alex (Alexandria)
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horsegirl
New Board Veteran
Cluster Headaches
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Posts: 106
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Re: Botox?
« Reply #9 on: Jun 23rd, 2007, 4:12pm » |
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alex. may be a coincadence,who knows with these crazy headaches, i went in for a colonostopy 3 years ago and woke up from the drugs with a cluster ha and to boot it was on the oppisite side of my head that they always had came on.,i was ticked.for one cause they wernt due for another year,but sure enough they went away 6 weeks later,and think god back to 3 years again.weird,if i was to tell that story to anyone but you guys theyd think i was crazy and a hypocondreact,anyway did it dull the pain at all for you?
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