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Topic: New user's experiment (Read 451 times) |
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jcreedy
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New user's experiment
« on: Jun 21st, 2007, 9:08am » |
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Hi all!
I'm so glad that I've found this website. It's great to be able to share stories and learn from each other, especially when my doctors appear to be so hopeless.
I've had my last lot of headaches for the past four weeks but before that hadn't had any since the age of 20 (I'm 27 now). Despite what my doctor said, I don't bother with pointless paracetamol or ibuprofen as they don't work on my cluster headaches.
Because I'm not keen on steroids/injections, I've been reading the forums for a week or so and was very interested to hear about the Taurine trial that Bob Coles did last year. In Holland and Barratt I bought 500mg of taurine tablets, combined 500mg calcium/250mg magnesium tablets and finally 500mg of kudzu tablets.
I've been taking the above since Sunday lunchtime and I've had two cluster headaches since then, wheras before I was on the pills I had one or two a day every single day. I've also been on a few cups of coffee a day and the odd red bull when I feel the 'shadows' before a headache. I am slightly concerned that one of the two headaches was about ten minutes ago and it was almost as strong as the ones I had before the pills.
Have any of you had any success with the above remedies and if so, how many do you take a day? I take two of each a day.
To the more mature users, have your headaches got better or worse with age? Does this hell ever end?!
Many thanks.
James
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| « Last Edit: Jun 21st, 2007, 10:08am by jcreedy » |
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Ray
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Re: New user's experiment
« Reply #1 on: Jun 21st, 2007, 12:48pm » |
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Quote:| To the more mature users, have your headaches got better or worse with age? Does this hell ever end?! |
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If you are referring to age, I'm 49, went from chronic to episodic after 15 years. Been episodic for 5 years.
I can't speak to the suppliments, but I have been using the Redbull/Monster drinks occasionally, but they taste like crap and I'm not sure they work better than a strong cup of coffee for me.
Wishing you PF days and nights,
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
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vegas1002
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It is what it is.........
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Re: New user's experiment
« Reply #2 on: Jun 21st, 2007, 4:25pm » |
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As for the age - I turned 50 this year. I have had clusters since I was 19. I would have 1 - 2 a night and they would come every 3 years.
I was PF for 4 years and foolishly thought this has finally come to an end. My season started last week and I now get 3 a night. I am sure this is not the answer that you wanted to hear - I'm sorry.
Good luck and wishig you PF days/nights
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mabus
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And the Beast shall be named Mabus - Nostradamus
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Re: New user's experiment
« Reply #3 on: Jun 21st, 2007, 10:02pm » |
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I'm 47 and have had CHs episodically since my early twenties, though it's my understanding that many post 50 CH sufferers see a marked decline in intensity. I just finished a cycle, and it was not as intense as those I remember from when I was your age. But that was before Imitrex, and for many of us that is a miracle drug. I respect your desires to remain injection free, but life in cycle was pretty bleak before 'trex. Now it's manageable. But each us us are different, and I wish you PF times soon.
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.mm
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Rosybabe
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"Too much of a good thing can be wonderful!!
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Re: New user's experiment
« Reply #4 on: Jun 21st, 2007, 10:39pm » |
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you mention all those supplements but...have you try Oxygen??
It works for many of us and does not require injections and is not a steroid.
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 Believing is just the beginning!
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jcreedy
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Re: New user's experiment
« Reply #5 on: Jun 22nd, 2007, 8:44am » |
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I have a neuro appointment in a month, so will speak to him about some O2. I guess because the supplements seem to have made an improvement I'm keen to stick with them.
No headache today so far and I usually get mine between 10am and 12pm! 
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George_J
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Re: New user's experiment
« Reply #6 on: Jun 22nd, 2007, 10:39am » |
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I've been taking 500 mg calcium and 250 mg magnesium since the middle of my last cycle. (Early 2006). Pretty typical cycle, really, except that it ended more abruptly than most. I also took 9 mg. melatonin nightly, (I've used it during the last three cycles), which seemed to decrease the number of nighttime hits.
As far as I'm concerned, the melatonin's a definite keeper, but the jury's still out on the calcium and magnesium--haven't taken them long enough to say anything one way or the other. I've continued to take them, out of cycle. They don't seem to do any harm, anyway.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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ClusterChuck
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The BEAST rises again, and again, and again, and .
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Re: New user's experiment
« Reply #7 on: Jun 22nd, 2007, 8:30pm » |
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on Jun 21st, 2007, 9:08am, jcreedy wrote:| To the more mature users, have your headaches got better or worse with age? Does this hell ever end?! |
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MATURE users? Is that a polite way of saying OLD FART?? LOL!!!
on Jun 21st, 2007, 10:02pm, mabus wrote:| it's my understanding that many post 50 CH sufferers see a marked decline in intensity. |
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Well, this "mature user" shows how obstinate the beast CAN be. I have had these for about 28 years, and I am now 57. These last four years have been absolutely the WORST in all my years.
Some of us old geezers DO notice a slowing down, or even stopping, but there are also plenty of us that have NOT had that pleasure.
I guess the beast either can't read, or refuses to read the instruction book! The BA$TARD!!!
Chuck
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"No man can be happy without a friend, nor be sure of his friend till he is unhappy."
Thomas Fuller
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jcreedy
New Board Newbie
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Re: New user's experiment
« Reply #8 on: Jun 26th, 2007, 11:43am » |
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Sorry for the lack of updates. I'd been headache free since my last post on the 22nd until this afternoon when I had a minor CH. It was painful but nothing compared to what I've had in the past.
I'll stick with the supplements until I go a week without a headache! I'll also try a few pints tonight and see how things go.
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