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Topic: Possible Reversal for Cluster Headaches! (Read 1566 times) |
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bonniebluebug
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Possible Reversal for Cluster Headaches!
« on: Jun 15th, 2007, 1:32am » |
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Just as an introduction, I am engaged to a man who has suffered from cluster headaches for over 13 years now.I made it my priority to research everything I could on cluster headaches...and I do mean everything!
Just the last couple of months I have made some interesting connections in various wordwide studies that lead to a couple answers for possible (VERY POSSIBLE) reversal of the condition.
My sweetheart is eginning these supplements tomorrow and hopefully this time....(If you are a sufferer, you know all too well how many doctors, specialists, narcotics..etc that a person dealing with cluster headaches will go through to find anything to help.)
Here is what theresearch has pointed at (or lack of taking up this whole website I will not post everything, just the main points) Due to a low Melatonin levels in cluster headache patients, the circadian cycle (which regulates out sleep times...it's like our internal clock) is not regulated properly. Also, research has demonstrated that low testosterone levels also effect the onset of cluster headaches. (even women have testosterone levels)
Please look at the following web addresses for further information. I hope it helps you regain a normal life. I pray for all of you! Copy and paste the web addresses into your address bar to view them. (I am in no way affiliated with these, they just really state what all the research points to) Hopefully my sweetheart will be finally free rom the "demon" and I pray you will too.
http://www.usdoctor.com/cluster.htm
(watch the video by clicking your mouse on the photo of the man!)
http://headaches.about.com/gi/dynamic/offsite.htm?zi=1/XJ&sdn=headac hes&zu=http%3A%2F%2Fwww.current-reports.com%2Farticle_frame.cfm%3FPubID%3DPA10-2-2-06%26amp%3BType%3DAbstract
Take Care,
Blue Bug
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Annette
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Re: Possible Reversal for Cluster Headaches!
« Reply #1 on: Jun 15th, 2007, 2:43am » |
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Hello Bonnie and welcome
Just like to let you know that we have had in depth discussions before here about melatonin supplement and low testosterone in association with CH.
My husband's testosterone was found low during his last cycle and he was given Sustanon injections until the level was normal again. He also took melatonin 12 mg at night to help the sleep cycle. Both helped but did not completely stop the attacks. He continued to have daily attacks. The intensity may have been less with the correction of the testosterone level but since he was on other medications it was unclear how much was the effect of the sustanon. The melatonin helped block most of the night hits but some were still breaking through.
What helped the most was the combination of neurontin, verapamil and lithium. This blocked more than 2/3 of the normal attacks. Oxygen, ice, imigran or zyprexa took care of the rest.
However, he didnt become painfree ( no attack, no shadow ) until the cycle finished by itself.
I hope you your fiance has better luck with melatonin and testosterone supplement.
Painfree wishes to both of you.
Annette
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Bob P
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Re: Possible Reversal for Cluster Headaches!
« Reply #2 on: Jun 15th, 2007, 7:39am » |
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Low testosterone and melatonin are more likely effects than causes. Look to what regulates the levels normally and you will be a step closer to the cause.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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thebbz
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Re: Possible Reversal for Cluster Headaches!
« Reply #3 on: Jun 15th, 2007, 4:25pm » |
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I have to agree with Bob. Dammit! 
all the best
jb
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Pinkfloyd
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Re: Possible Reversal for Cluster Headaches!
« Reply #4 on: Jun 15th, 2007, 4:54pm » |
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on Jun 15th, 2007, 4:25pm, thebbz wrote:I have to agree with Bob. Dammit!
all the best
jb |
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Well...I'll agree with Bob P too as long as nobody tells him I did.
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Bob P
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Re: Possible Reversal for Cluster Headaches!
« Reply #5 on: Jun 15th, 2007, 6:24pm » |
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Hey, even a blind hog finds an acorn if he roots long enough.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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thebbz
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Re: Possible Reversal for Cluster Headaches!
« Reply #6 on: Jun 15th, 2007, 6:33pm » |
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You da man Mr. P  Lovely words of wit.
jb
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Jonny
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Re: Possible Reversal for Cluster Headaches!
« Reply #7 on: Jun 15th, 2007, 9:23pm » |
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Hey Bonnie,
Laughing my mother-fucking ass off! (I typed that out just for you) 
Do you REALLY think you have found more than Dr Goasby?, he has been researching this for decades....and we only know what we do because of him.
" Reversal of the condition?".....to reverse it you have to know what started it.....Laughing my mother-fucking ass off once agian!!!
Go sell your shit elsewhere, bitch.....we can spot you walking in the door!
Your a fucking who.re, thats all you are!
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| « Last Edit: Jun 15th, 2007, 9:24pm by Jonny » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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thebbz
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Re: Possible Reversal for Cluster Headaches!
« Reply #8 on: Jun 15th, 2007, 9:54pm » |
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Damm Jonny quit beatin around the bush..say it like it is 
jb
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gMike
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Re: Possible Reversal for Cluster Headaches!
« Reply #9 on: Jun 15th, 2007, 9:58pm » |
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He keeps holdin his emotions in like that, he's gonna explode!! 
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I used to care, but things have changed!
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Ray
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Re: Possible Reversal for Cluster Headaches!
« Reply #10 on: Jun 15th, 2007, 11:14pm » |
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I take it that you suspect this person is a Troll?
Ray
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
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Jonny
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Re: Possible Reversal for Cluster Headaches!
« Reply #11 on: Jun 15th, 2007, 11:20pm » |
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on Jun 15th, 2007, 11:14pm, Ray wrote:| I take it that you suspect this person is a Troll? |
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No one SELLS any HA cures on this site.....ok, Ray?
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| « Last Edit: Jun 15th, 2007, 11:20pm by Jonny » |
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Ray
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Re: Possible Reversal for Cluster Headaches!
« Reply #12 on: Jun 15th, 2007, 11:28pm » |
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Point taken, and I'll defend it to the death if need be.
Ray
PS Jonny, I needed the comic relief, by the way! Thanks!
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You have my prayers and compassion-I'm right there with you.
Dum tempus habemus, operemur bonum
*While we have the time, let us do good*
http://www.myspace.com/rayplace
http://www.shadesgarden.com
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UN solved
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Re: Possible Reversal for Cluster Headaches!
« Reply #13 on: Jun 16th, 2007, 1:56pm » |
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I was LMMFAO just reading the title to this thread !
I also took Melatonin 12mg nightly and had Testosterone injections @ the hospital for awhile and it did NOTHING for the attacks 
Too bad there's not a reversal for this thread !
PF Wishes
UNsolved
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bonniebluebug
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Re: Possible Reversal for Cluster Headaches!
« Reply #14 on: Jun 17th, 2007, 5:09pm » |
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Just to let you know, Yes, I do know what causes low levels of Melatonin and Testosterone...perhaps you'd suffer less if you educated yourself more! These levels are low due to growing older. The levels drop naturally...this is not an effect of Cluster Headaches...and Yes it has been proven to have a direct link in causing them! Also, if your so called doctors actually worked on "curing" you, where would their income be? The majority of the medical professionals are not interested in you, only your money. They don't care what the pills do, they only care about getting your money, your insurance money, and the kick backs from the drug companies they prescribe for! Research that!
I thought I'd pass of some useful information, but I guess it does no good to help those who like feeling sorry for themselves and want the rest of the world to do the same. And for all those of you who swore at me, get off your lazy uneducated butts and help yourself!
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Redd
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Re: Possible Reversal for Cluster Headaches!
« Reply #15 on: Jun 17th, 2007, 6:15pm » |
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[quote author=bonniebluebug link=board=chspecific;num=1181885587;start=0#14 date=06/17/07 at 17:09:51]Just to let you know, Yes, I do know what causes low levels of Melatonin and Testosterone...perhaps you'd suffer less if you educated yourself more! These levels are low due to growing older. The levels drop naturally...this is not an effect of Cluster Headaches...and Yes it has been proven to have a direct link in causing them! Also, if your so called doctors actually worked on "curing" you, where would their income be? The majority of the medical professionals are not interested in you, only your money. They don't care what the pills do, they only care about getting your money, your insurance money, and the kick backs from the drug companies they prescribe for! Research that!
I thought I'd pass of some useful information, but I guess it does no good to help those who like feeling sorry for themselves and wther fav of mine. I'd go just to hear Neil Peart bang the skins!!!
Trees always reminds me of this place
One thing I forgot to mention about Waters.
Almost all concerts now do not allow any cameras. Waters allows "small disposable" cameras so there was plenty of flashes going off. They just don't want people walking in with "professional" equipment with zoom lenses etc. and I saw plenty of people having to "check" their equipment at the door.
I'm sure though that if someone has a small digital with a zoom that would fit into a pocket.......it would get it.
Bobw
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BlueMeanie
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Re: Roger Waters Concert
« Reply #16 on: Jun 13th, 2007, 1:16pm » |
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I was lucky to watch Pink Floyd perform "Divison Bell" in Chicago years ago. Just bought the DVD called "Pulse" which is the exact same concert footage performed in the U.K. If you want to see a high quality Pink Floyd DVD, it is definately wniebluebug link=board=chspecific;num=1181885587;start=0#0 date=06/15/07 at 01:32:54]answers for possible (VERY POSSIBLE) reversal of the condition.
My sweetheart is eginning these supplements tomorrow and hopefully this time.... [/quote]
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Kevin_M
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Re: Possible Reversal for Cluster Headaches!
« Reply #17 on: Jun 17th, 2007, 6:30pm » |
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on Jun 15th, 2007, 1:32am, bonniebluebug wrote:| that lead to a couple answers for possible (VERY POSSIBLE) reversal of the condition. |
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Answers should come after the question mark of your research.
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George_J
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Re: Possible Reversal for Cluster Headaches!
« Reply #18 on: Jun 17th, 2007, 7:12pm » |
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on Jun 17th, 2007, 5:09pm, bonniebluebug wrote:Just to let you know, Yes, I do know what causes low levels of Melatonin and Testosterone...perhaps you'd suffer less if you educated yourself more! These levels are low due to growing older. The levels drop naturally...this is not an effect of Cluster Headaches...and Yes it has been proven to have a direct link in causing them!
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Hm.
So howcome I started getting them at thirteen and cycled twice a year when I was younger? It's only now that I'm older that they've begun to subside--at the same time that my testosterone and melatonin levels are apparently dropping.
I'm not the only one whose CH has followed this pattern.
For your clusterhead's sake, I hope whatever supplement cocktail he gets does something positive. But I doubt that it will.
Best,
George
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Ah! The foreigners put on such airs
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The pain they inspire
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It all comes to light in the sheer
Debonair.
(Ellen)
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LeLimey
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Re: Possible Reversal for Cluster Headaches!
« Reply #19 on: Jun 17th, 2007, 7:24pm » |
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Our only hope is that with time they lessen.
You cannot "reverse" cluster headaches - an unfortunate turn of phrase at best.
Its not just my little boy who has CH, sadly we know of many kids with this horrific condition.
My sons neuro is one of the most eminent and respected CH specialists in the world. When Jasper described his headaches to him this man was sitting on the floor with him and struggling to swallow the lump in his throat (I had tears running down MY face)
I defy you to say doctors don't want to CURE clusters because they do. Anyone who has seen someone getting hit is horrified by what we go through - doctors included. Yes the money in medicine s good but the hours are crap, watching people suffer is not my idea of how to spend my days and their malpractice insurance is rocketing daily - being a doctor isn't all it's cracked up to be.
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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AlienSpaceGuy
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Re: Possible Reversal for Cluster Headaches!
« Reply #20 on: Jun 17th, 2007, 8:34pm » |
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on Jun 17th, 2007, 5:09pm, bonniebluebug wrote:| ... Also, if your so called doctors actually worked on "curing" you, where would their income be? The majority of the medical professionals are not interested in you, only your money. They don't care what the pills do, they only care about getting your money, your insurance money, and the kick backs from the drug companies they prescribe for! ... |
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Now, if that isn't a typical 'research result' from someone of the snake oil fraction.....
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BobG
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Re: Possible Reversal for Cluster Headaches!
« Reply #21 on: Jun 19th, 2007, 11:56am » |
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on Jun 17th, 2007, 5:09pm, bonniebluebug wrote:Melatonin and Testosterone... These levels are low due to growing older.
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Hmmmm....my clusters started when I was about 26 years old. That's about the peak time "to be a man". My clusters were at their worst until about age 50. Now that I've entered my sixth decade of life my melatonin and testosterone levels (may) be down a little but so are my clusters. Actually they have almost disappeared.
Not to change the subject but I do have a question. My hair has been thinning for the last 10 years and the clusters have are few and far between. What's up with that? Do we need new research? Any bald clusterheads out there?
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michael
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Re: Possible Reversal for Cluster Headaches!
« Reply #22 on: Jun 19th, 2007, 2:36pm » |
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I lost most of my hair in my 20's......a year after I got married!
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Sandy_C
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Re: Possible Reversal for Cluster Headaches!
« Reply #23 on: Jun 19th, 2007, 3:36pm » |
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on Jun 17th, 2007, 5:09pm, bonniebluebug wrote:Just to let you know, Yes, I do know what causes low levels of Melatonin and Testosterone...perhaps you'd suffer less if you educated yourself more! These levels are low due to growing older. The levels drop naturally...this is not an effect of Cluster Headaches...and Yes it has been proven to have a direct link in causing them! Also, if your so called doctors actually worked on "curing" you, where would their income be? The majority of the medical professionals are not interested in you, only your money. They don't care what the pills do, they only care about getting your money, your insurance money, and the kick backs from the drug companies they prescribe for! Research that!
I thought I'd pass of some useful information, but I guess it does no good to help those who like feeling sorry for themselves and want the rest of the world to do the same. And for all those of you who swore at me, get off your lazy uneducated butts and help yourself!
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perhaps you'd suffer less if you educated yourself more!
How dare you. The people on these boards, many of whom have spent the majority of their lives researching about, learning about, attempting every possible remedy to CH that has ever been proposed to them, including brain surgery!
How DARE you come in here as a "guest" and tell us to get off our lazy butts and educate ourselves.
I truly wish your sweetheart the best of luck and hope he will find pain free time. But, he is going to have a hard row to hoe with a supporter such as yourself.
BEGONE!
Sandy
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Lean on me when you're not strong
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LeLimey
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Re: Possible Reversal for Cluster Headaches!
« Reply #24 on: Jun 19th, 2007, 6:39pm » |
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Cor bloody blimey - I have NEVER seen Sandy get pissed before - impressive isn't she?!
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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