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Topic: It started three years ago. When does it end? (Read 516 times) |
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NoMoreCH
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ClusterHeadache Exorcist
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It started three years ago. When does it end?
« on: May 31st, 2007, 3:20pm » |
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Anyone in here who is longer painfree now than the total period they suffered from CH? Or at least three years without attacks?
I would like to know if CH can go away again and never return, or that I am stuck for life with this crap....
Any succes stories or is this a life sentence?
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Sandy_C
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Re: It started three years ago. When does it en
« Reply #1 on: May 31st, 2007, 3:44pm » |
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Well, NMCH, I'm not really sure what your are asking us to answer here.
I'm guessing your bottom line question is are you stuck with CH for life. Correct?
CH is a life sentence. Accept it. Now, learn to deal with it. Many CH sufferers have lived literally three decades and more with this affliction. The key word here is
lived.
Yes, CH has gone away for a few people. Never to return? No. I don't think so. CH is what it is, and it's different for everyone.
If you choose to look at your CH as a "life sentence" then that's exactly what it will be. If you choose to look at your CH as something that is part of you, part of your life, then you will look at CH as nothing more than something that is you, something that you have to deal with, no more.
Yes, it may be a lifetime sentence. It's what you do with that knowledge that makes the difference.
Sandy
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Wayne
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Re: It started three years ago. When does it end?
« Reply #2 on: May 31st, 2007, 3:55pm » |
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I think that if anyone had told me that this time a year ago I probably would have shot myself. It does seem to be manageable though, knowledge is an excellent ally, so is caffiene!
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aprilbee
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Re: It started three years ago. When does it end?
« Reply #3 on: May 31st, 2007, 4:11pm » |
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You're stuck for life....but it is who you are...embrace it and learn from it become the strongest person you know! 
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billyjoe
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Re: It started three years ago. When does it end?
« Reply #4 on: May 31st, 2007, 4:16pm » |
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All I can tell you is I had 6 years pain free prior to this attack. Not sure if being smoke free for 5 years had anything to do with it, but I started up a year ago and here I am again. Needless to say, I'm on the wagon again.
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BarbaraD
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Re: It started three years ago. When does it end?
« Reply #5 on: May 31st, 2007, 4:44pm » |
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some go for years without an attack and some are chronic for years and years and then just stop (for how long who knows). The beast is just not something you can make book on. He hits when he gets ready and you accept it as such.
But when you're pain free you make the most of your PF time and don't anticipate his coming back until he does.
Attitude Attitude Attitude.
Hugs BD
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What don't kill ya, Makes ya stonger!
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Paul98
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Re: It started three years ago. When does it en
« Reply #6 on: May 31st, 2007, 4:45pm » |
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on May 31st, 2007, 3:44pm, Sandy_C wrote:Well, NMCH, I'm not really sure what your are asking us to answer here.
I'm guessing your bottom line question is are you stuck with CH for life. Correct?
CH is a life sentence. Accept it. Now, learn to deal with it. Many CH sufferers have lived literally three decades and more with this affliction. The key word here is
lived.
Yes, CH has gone away for a few people. Never to return? No. I don't think so. CH is what it is, and it's different for everyone.
If you choose to look at your CH as a "life sentence" then that's exactly what it will be. If you choose to look at your CH as something that is part of you, part of your life, then you will look at CH as nothing more than something that is you, something that you have to deal with, no more.
Yes, it may be a lifetime sentence. It's what you do with that knowledge that makes the difference.
Sandy |
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Ditto
And to add to it, CH has opened doors for me in life. If I did not have Ch I would not have understood some opportunities and made friends with a broad specrum of people.
-P.
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George_J
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Re: It started three years ago. When does it en
« Reply #7 on: Jun 1st, 2007, 3:07am » |
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on May 31st, 2007, 4:45pm, Paul98 wrote:
And to add to it, CH has opened doors for me in life. If I did not have Ch I would not have understood some opportunities and made friends with a broad specrum of people.
-P.
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Right, Paul. Can't say that I'd choose to do this again (as if choices are given) but I wouldn't be the same person if CH wasn't a thread throughout my life.
It's not a sentence--it just is.
Will it continue for you, NMCH? No one can answer that. Perhaps yes, perhaps no.
But then again, nothing is certain, eh?
Best wishes always,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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BC_Battler
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Stay strong
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Re: It started three years ago. When does it end?
« Reply #8 on: Jun 1st, 2007, 4:03am » |
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It might never end, sadly.
I've been fighting CHs for a couple of years and have fairly frequent cycles of pain that last for months. Right now I am in the middle of a tough cycle and am having absolutely no fun. I dread going to sleep because I know the beast will return. But I also know that better days lie ahead and despite the pain I have a pretty good life.
Keep your head up. CHs are tough, but I guarantee that you are tougher.
Here's to a pain-free night! Cheers
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Tara Ann
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Re: It started three years ago. When does it end?
« Reply #9 on: Jun 1st, 2007, 2:00pm » |
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Expect the worst, hope for the best. That said, my grandpa outgrew them. So I am hoping for the same but expecting to be stuck with them for life so that way I always have good coping mechanisms. I have come a long, long way with coping better. 9 years ago I was a mess and I was episodic back then. I would freak out over a kip 4. Now I am chronic and I can handle a whole hell of a lot more! It takes quite a bit to freak me out now. Unless it's the dentist 
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MR_FLOOR
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Re: It started three years ago. When does it en
« Reply #10 on: Jun 5th, 2007, 12:24am » |
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on May 31st, 2007, 3:44pm, Sandy_C wrote:
CH is a life sentence. Accept it. Now, learn to deal with it. Many CH sufferers have lived literally three decades and more with this affliction. The key word here is
lived.
If you choose to look at your CH as a "life sentence" then that's exactly what it will be. If you choose to look at your CH as something that is part of you, part of your life, then you will look at CH as nothing more than something that is you, something that you have to deal with, no more.
Sandy |
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You are so right Sandy if there is one thing I learned from this site is you can't let it beat you.Like Chuck always says Attitude Attitude Attitude.
Dave
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| « Last Edit: Jun 5th, 2007, 12:26am by MR_FLOOR » |
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