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Topic: finally got a verbal diagnosis (Read 292 times) |
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Charlotte
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finally got a verbal diagnosis
« on: May 30th, 2007, 11:10pm » |
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the neuro gave me a verbal diagnosis of ch, but not typical ch, based on verapamil helping, and paroxysmal hemicrania and sunct are still possibilities.
I am doing fairly well on 320 mg verapamil, 100 mg indocin, and daily kudzu. I still get hit every 2 hours or more, but some low cycles are so low that it feels pf. During the high cycles, maxalt melt helps. Of course, sometimes nothing helps.
But I am doing so much better. I just wanted to share the news. I had 5 pf days in April.
Charlotte
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| « Last Edit: May 30th, 2007, 11:11pm by Charlotte » |
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MR_FLOOR
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Re: finally got a verbal diagnosis
« Reply #1 on: May 31st, 2007, 12:41am » |
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author=Charlotte link=board=chspecific;num=1180581036;start=0#0 date=05/30/07 at 23:10:36]the neuro gave me a verbal diagnosis of ch, but not typical ch, based on verapamil helping, and paroxysmal hemicrania and sunct are still possibilities.
I am doing fairly well on 320 mg verapamil, 100 mg indocin, and daily kudzu. I still get hit every 2 hours or more, but some low cycles are so low that it feels pf. During the high cycles, maxalt melt helps. Of course, sometimes nothing helps.
But I am doing so much better. I just wanted to share the news. I had 5 pf days in April.
Charlotte
Quote:| I still get hit every 2 hours or more |
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Charlotte thats way to much theres got to be something that works better like maybe more Verapamil I feel so sorry for you Also no o2 or Imitrex for you good luck to you I hope you start to feel better. 
Dave
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Wayne
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Re: finally got a verbal diagnosis
« Reply #2 on: May 31st, 2007, 1:32am » |
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Hi Charlotte
I must say that getting hit every two hours would have me running for cover. It seems that it takes a lot of experimentation to figure what really works. I'm on 720 mg Verapimil in 3 equal doses and it seems to be helping although I have only been taking it for a week and a half so it may be to early to make a call on it. Never the less between that and Taurine I'm managing a lot of PF days. There also seems to be a general opinion here that kudzu intereferes with other meds but i'm sure that some more learned people will be able to comment on that.
Wayne
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| « Last Edit: May 31st, 2007, 1:35am by Wayne » |
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thebbz
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Re: finally got a verbal diagnosis
« Reply #3 on: Jun 10th, 2007, 2:44pm » |
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That is good news your doing better and I am glad to hear it.
Keep up the fight and hope to see you again one of these days.
It helps to get some form of diagnosis. Even if it is vague.
all the best to you and yours
jb
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