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Topic: Does having surgery affect CH ? (Read 367 times) |
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Annette
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Does having surgery affect CH ?
« on: May 17th, 2007, 5:07am » |
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Hello everyone
I have tried to search for any information on this but there does not seem to be any published literature so I am turning to the experience of the Board, thank you in advance 
Does having surgery affect CH in any way? Does it make it better? worse? Can it stop or start a cycle?
I remember a while ago someone posted that they woke up from general anaesthesia with an attack even while they were out of cycle? I cant seem to find that post again.
Thanks everyone for your input.
Painfree wishes to all
Annette
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cynjeep89
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Re: Does having surgery affect CH ?
« Reply #1 on: May 17th, 2007, 6:12am » |
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Annette,
Good morning!!
I've been thru a few surgeries with general anesthesia and am happy to report that no CHs were triggered.
I am an episodic and was not in cycle during the time that I had the surgeries.
Cyn
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Karla
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Re: Does having surgery affect CH ?
« Reply #2 on: May 17th, 2007, 7:57am » |
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I have had 5 surgeries. The last one was the only one to effect me. It brought on a short cycle of 4 weeks and stopped as suddenly as it started.
The key is to communicate to the dr, nurse, and anastesiogist that you suffer from ch, what it is, and what meds you may need on hand.
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| « Last Edit: May 17th, 2007, 7:58am by Karla » |
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Karla
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midwestbeth
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Re: Does having surgery affect CH ?
« Reply #3 on: May 17th, 2007, 8:06am » |
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I had surgery during my high cycle time ( I was getting hit 3-5 times a day). Surgery was sopposed to be outpatient, but the nurses couldn't get me to wake up and I stayed the night. I think it was because of pure lack of sleep and the anaestesia allowed me to get some much needed rest. I did get hit a couple of times, but the anaestesia was more powerful than the ch.
Beth
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Angie
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Re: Does having surgery affect CH ?
« Reply #4 on: May 17th, 2007, 8:28am » |
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Barry had Lazer eye lid surgery in December 2004.
His cluster side eyelid would not open anymore do to muscle damage in the eyelid.
He was in cycle when he had surgery and the hits came as normal. It was tough because his eyelid was full of sutures and swollen like a frog. So surgery did not change anything.
We were hoping the surgery would end his cycle but it did not.
Angie
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Annette
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Re: Does having surgery affect CH ?
« Reply #5 on: May 17th, 2007, 2:00pm » |
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Thank you very much Cyndi, Karla, Beth and Angie 
It appears that surgery and general anaesthetics dont really affect CH much, it didnt seem to help nor make it worse. I guess thats reassuring for those going into surgery.
I agree it is important to let the surgical team know about CH before getting onto that steel table . The problem is when they think they know it all ( thats its some form of bad headache , like migraine ! ) and dont listen thats annoying!
Thanks again everyone.
Annette
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Re: Does having surgery affect CH ?
« Reply #6 on: May 17th, 2007, 2:47pm » |
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After my surgery for kidney stones ( thanks to Topamax ) .. I woke up in the recovery room freaking out with a MAJOR hit. After trying to scream " IMITREX " ... the nurses finally gave me a jab and I fell back to sleep. It was a short-lived but still major hit that I'm sure was do to the pre-op meds.
I had 2 other surgeries that went fine. No attacks in sight !
Just be prepared, always !
PF Wishes
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Annette
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Re: Does having surgery affect CH ?
« Reply #7 on: May 18th, 2007, 1:56am » |
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Thanks Michael
Must have been awful coming out of general anaesthetic to feel the beast looming, and its hard to try to communicate at that time.
I am going to look a bit more into what chemicals are in the meds often given during surgery and see if they may have any effect on serotonin for example.
Annette
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Redd
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Re: Does having surgery affect CH ?
« Reply #8 on: May 18th, 2007, 7:31am » |
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It was 12 years ago, but I came out from being under after my hysterectomy with (what I know now, didn't know then) was a major hit. I was trashing on the gurney, and they strapped me down afraid I would fall off, and they were sticking me every 15 minutes with morphine to no avail. After 1 hour or so (so they told me) the hit subsided and I slept for a few more hours.
At the time they convinced me it was a reaction to the annistetic. Strapping me down was to keep me from falling to protect the internal repairs they made. (part of my bladder had to be removed as well as the uterus)
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Annette
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Re: Does having surgery affect CH ?
« Reply #9 on: May 18th, 2007, 4:54pm » |
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Wow, Pegg, that must have been bad, to be strapped down while having a hit post op ! The ultimate nightmare !
Did you continue to have more attacks afterwards? Did the surgery seem to start a new cycle for you?
Thanks for sharing your experience, much appreciated.
Annette
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michael
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Re: Does having surgery affect CH ?
« Reply #10 on: May 18th, 2007, 5:48pm » |
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I've had five operations under general aneasthetic, all thankfully out of cycle. And non have induced a hit
Mike
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Annette
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Re: Does having surgery affect CH ?
« Reply #11 on: May 18th, 2007, 5:55pm » |
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Thank you so much Michael, thats reassuring
So far from what people here shared, having surgery under general anaesthetic does not automatically induce CH attacks or starting a new cycle. However, there is still a risk that one can wake up from GA with an odd one so be prepared.
I guess also that if its elective surgery, its better to try to schedule it while in remission.
Thanks all for your reply.
Annette
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horsegirl
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Re: Does having surgery affect CH ?
« Reply #12 on: Jun 25th, 2007, 4:32pm » |
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maybe it was me your talking about i woke up from what ever they give you to relax you for a colonastapy.with a ha only it was on my r side instead of usual left after a week the switched back to normal side.i will find out what they gave me it was 3 years ago one year earlier then the normal every three years but it was a shorter and milder cycle,i have had surgery before and had no problem.
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Tara Ann
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Re: Does having surgery affect CH ?
« Reply #13 on: Jun 25th, 2007, 5:23pm » |
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Didn't make a difference for moi' and I have had quite a few minor surgeries
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