Author |
Topic: Interesting Statistic. [I thought] (Read 560 times) |
|
DannyV
New Board Junior
Save Deadwood
Gender: 
Posts: 92
|
 |
Interesting Statistic. [I thought]
« on: May 9th, 2007, 12:54am » |
 Quote  Modify
|
An article on headache that I read in a magazine called" Hospital Physician-Neurology Board Review" was titled[of course] "Migrane And Related Syndromes"
Part of the article focused on CH. The doctor who wrote the article stated [briefly] how unbareable the pain is and how it does not recieve nearly as much attention in the medical community as Multiple Sclerosis does, even though just as many people suffer from each in this country. He showed identical numbers.
Could that be possible? I have known a couple people who had M.S. I Never met anyone with this.
|
|
 IP Logged |
My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
|
|
|
birdman
New Board Old Timer
Will try anything once!
Gender:
Posts: 313
|
|
Re: Interesting Statistic. [I thought]
« Reply #1 on: May 9th, 2007, 8:47am » |
Quote Modify
|
I had always been under the impression that Ch's are rare. In 20 years of suffering, I have only meet one person who is also a sufferer. I personally know 3 MS patients closely.
|
|
IP Logged |
|
|
|
chrisw
New Board Veteran
I love bunnies
Gender: 
Posts: 119
|
|
Re: Interesting Statistic. [I thought]
« Reply #2 on: May 9th, 2007, 10:41am » |
Quote Modify
|
I dont believe it. I know three people with MS, and have never met another clusterhead.
Chrisw
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: Interesting Statistic. [I thought]
« Reply #3 on: May 9th, 2007, 10:46am » |
Quote Modify
|
It's true. MS gets a lot more press, and generally, it's easier to diagnose. Think of how many of us spent years being misdiagnosed. Dr Andrew Sewell, formerly of Harvard McLean, and currently collecting data for a potenial study on LSA and kudzu's efficacy for CH, told us that at the OUCH convention in July. That may be his article. He is currently working independently and being funded by MAPS. Harvard McLean is still handling the pending psilocybin and CH study.
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
LeeS
CH.com Alumnus
New Board Hall of Famer
I love C12 H16 N2O!
Gender:
Posts: 588
|
|
Re: Interesting Statistic. [I thought]
« Reply #4 on: May 9th, 2007, 12:23pm » |
Quote Modify
|
With all due respect to Dr Sewell nani, I do believe it was Goadsby et al who first mentioned similar prevalence levels (based on UK stats though):
Quote:
However, the latest figures quoted by the IoN for CH is between 0.2%-0.4% for CH. I don't believe MS has increased so significantly in such a short space of time 
-Lee
|
|
IP Logged |
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: Interesting Statistic. [I thought]
« Reply #5 on: May 9th, 2007, 12:32pm » |
Quote Modify
|
I don't know who said it first, Lee... I just said that Andrew told us in his presentation.  
I also thought that the article mentioned might be Andrew's. But I'm not sure about that. 
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
LeeS
CH.com Alumnus
New Board Hall of Famer
I love C12 H16 N2O!
Gender:
Posts: 588
|
|
Re: Interesting Statistic. [I thought]
« Reply #6 on: May 9th, 2007, 1:09pm » |
Quote Modify
|
Hey nani, not having a go at you, and certainly not supporting that lot at the IoN
Calm down love and have a fag 
-Lee
|
|
IP Logged |
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: Interesting Statistic. [I thought]
« Reply #7 on: May 9th, 2007, 1:12pm » |
Quote Modify
|
just ignore Lee, Nani. I bet he's the kind of guy who paper clips his socks together in the drawer.
I think him telling you to become homosexual is a little over the line though....
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
LeeS
CH.com Alumnus
New Board Hall of Famer
I love C12 H16 N2O!
Gender:
Posts: 588
|
|
Re: Interesting Statistic. [I thought]
« Reply #8 on: May 9th, 2007, 1:38pm » |
Quote Modify
|
Oh no! It's like waiting for a bus. Two menopausal women on my back now; all we need now is that limey-bird
|
|
IP Logged |
|
|
|
DannyV
New Board Junior
Save Deadwood
Gender:
Posts: 92
|
|
Re: Interesting Statistic. [I thought]
« Reply #9 on: May 9th, 2007, 1:48pm » |
Quote Modify
|
Just so y'all know ,this particular article was written by Dr. Paul Rizzoli also from Massachusetts. He is head of the Graham Headache Center. I believe he is also on the Board Of Neurology @ Harvard Medical School.
Fag means cigarette in England.
|
|
IP Logged |
My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
|
|
|
Margi
CH.com Alumnus
New Board Hall of Famer
Nuthin like a good neck rub!
Gender:
Posts: 3757
|
|
Re: Interesting Statistic. [I thought]
« Reply #10 on: May 9th, 2007, 1:58pm » |
Quote Modify
|
Yes, I did know that, Danny. But, hey, thanks for stepping on my punchline! (I'm just teasing).
As an aside to Lee ... your callous nomenclature and presumptive labelling is duly noted and filed for future reference/retribution. Be warned. So tell us Lee....where DID you come up with your screenname?
|
|
IP Logged |
http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
|
|
|
nani
CH.com Alumnus
New Board Hall of Famer
Got kudzu?
Gender:
Posts: 7953
|
|
Re: Interesting Statistic. [I thought]
« Reply #11 on: May 9th, 2007, 5:35pm » |
Quote Modify
|
LOL... I stepped away and missed all the fun.
Lee, darling, I've given up fags... they were bad for my health, and self-esteem.
Danny, don't mind Lee and Margi... they like to play.
|
|
IP Logged |
Others may come and go, but MY power is MINE.
|
|
|
DannyV
New Board Junior
Save Deadwood
Gender:
Posts: 92
|
|
Re: Interesting Statistic. [I thought]
« Reply #12 on: May 9th, 2007, 6:23pm » |
Quote Modify
|
Sorry. I saw that Canadian flag and just assumed that you were not very cultured. I will however be forever endebted to you for Bobby Orr.
Wow this place is fun. You are all hot shits.
|
|
IP Logged |
My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
|
|
|
Rosybabe
CH.com Alumnus
New Board Hall of Famer
"Too much of a good thing can be wonderful!!
 
Gender:
Posts: 3470
|
|
Re: Interesting Statistic. [I thought]
« Reply #13 on: May 9th, 2007, 6:35pm » |
Quote Modify
|
|
|
IP Logged |
 Believing is just the beginning!
|
|
|
BlueMeanie
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 1178
|
|
Re: Interesting Statistic. [I thought]
« Reply #14 on: May 9th, 2007, 11:41pm » |
Quote Modify
|
You probably HAVE met a few Clusterheads and just not known it. The ones that i've known (prior to finding this board) I knew for a few years before we discovered we where BOTH Clusterheads. Unless they are in cycle, its' hard to tell.
|
|
IP Logged |
|
|
|
Charlotte
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1932
|
|
Re: Interesting Statistic. [I thought]
« Reply #15 on: May 9th, 2007, 11:54pm » |
Quote Modify
|
One of the guys I work with is episodic ch. Like blue meanie says, you wouldn't know unless someone is in cycle or sees you getting hit. My friend Reg has had a couple of pf years.
Charlotte
|
| « Last Edit: May 9th, 2007, 11:56pm by Charlotte » |
IP Logged |
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
test rss