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Topic: Social Security Disability and Cluster Headaches (Read 2120 times) |
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kcopelin
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good grief
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Social Security Disability and Cluster Headaches
« on: Apr 13th, 2007, 11:36am » |
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 The Social Security Administration has agreed with me. I'm a 3940 or 3490 ? diagnosis code which is neurological disorder-Other. First try-has been so long that I assumed they were going to deny me. The VA also concurred that the clusters make me 50% disabled (because I have my own business I'm not unemployable-unless I fire my butt for incompetence , which I should do immediately)
My point is, should anyone else be trying this or thinking about it, there is hope.
I am a little conflicted about this. I look around at people who are really injured-missing limbs, wounded in Iraq or Afganistan or Vietnam, people with brain damage and fatal diseases and I'm not even in their league. It's almost like survivor's remorse, or something.
However, this will enable me to use my time for something bigger than myself. I believe it is God opening a door-
Peace out y'all
PFDAN
kathy
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chrisw
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Re: Social Security Disability and Cluster Headach
« Reply #1 on: Apr 13th, 2007, 1:51pm » |
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unbelievable!!!!
I am a clusterhead, but I also have epilepsy. Now my seizures are under control, but for a while a few years ago, they were out of control, and I couldnt drive, I had to quit college, and i couldnt get a job because I was haveing 10-12 seizures a day.
I was turned down for ss. It is inconceivable that I could have been eligible if I would have mentioned that I had clusters.
Maybe I will try again.
chrisw
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Skyhawk5
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Re: Social Security Disability and Cluster Headach
« Reply #2 on: Apr 13th, 2007, 3:21pm » |
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It makes me happy to hear this and it's hard to smile in peak cycle. I was denied I think because I'm episodic. Are you Chronic?
You have earned it, Skyhawk5 (Don)
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Sandy_C
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Re: Social Security Disability and Cluster Headach
« Reply #3 on: Apr 13th, 2007, 4:22pm » |
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on Apr 13th, 2007, 1:51pm, chrisw wrote:unbelievable!!!!
I am a clusterhead, but I also have epilepsy. Now my seizures are under control, but for a while a few years ago, they were out of control, and I couldnt drive, I had to quit college, and i couldnt get a job because I was haveing 10-12 seizures a day.
I was turned down for ss. It is inconceivable that I could have been eligible if I would have mentioned that I had clusters.
Maybe I will try again.
chrisw |
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No maybe, baby! Go for it. Tell me one thing that you have got to lose by not trying.
Love ya
Sandy
And, Kathy, I'm so happy to hear that you are finally getting some help that has been much needed.
Love you too,
Sandy
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| « Last Edit: Apr 13th, 2007, 4:24pm by Sandy_C » |
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kcopelin
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good grief
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Re: Social Security Disability and Cluster Headach
« Reply #4 on: Apr 13th, 2007, 4:40pm » |
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Chris, no doubt about it-apply again.
Don, I was episodic for 24 yrs, chronic for 2.
Sandy, thanks 
Keep a good headache log, and track what activities you miss because of CH. (school, work, church, family holidays...) Be very clear in your description.
I wish no one ever had to go through this, but there is life between hits and it is good.
PFDAN y'all
kathy
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DannyV
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Re: Social Security Disability and Cluster Headach
« Reply #5 on: Apr 13th, 2007, 7:06pm » |
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I was turned down for cch. After an appeal, with medical reports from several docs I was accepted, but they said it was because of my respritory disease. Im pretty sure that if they set a president and allow clusterheads disability , that would open the floodgates for every chronic headache sufferer in this country to qualify. They NEED to change the name of Cluster Headache. Any Ideas? Crippling Cranial Attack?
Debilitating Head Seizures?
Unbearable fucking...I dont know.
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My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
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UN solved
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Re: Social Security Disability and Cluster Headach
« Reply #6 on: Apr 13th, 2007, 7:58pm » |
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on Apr 13th, 2007, 7:06pm, pinkeye wrote:| Im pretty sure that if they set a president and allow clusterheads disability , that would open the floodgates for every chronic headache sufferer in this country to qualify. |
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They do give disability for chronic cluster headaches
UNsolved
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chrisw
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Re: Social Security Disability and Cluster Headach
« Reply #7 on: Apr 14th, 2007, 9:43am » |
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on Apr 13th, 2007, 7:06pm, pinkeye wrote:I was turned down for cch. After an appeal, with medical reports from several docs I was accepted, but they said it was because of my respritory disease. Im pretty sure that if they set a president and allow clusterheads disability , that would open the floodgates for every chronic headache sufferer in this country to qualify. They NEED to change the name of Cluster Headache. Any Ideas? Crippling Cranial Attack?
Debilitating Head Seizures?
Unbearable fucking...I dont know. |
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how about exploding eyeball syndrome?
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Rockcoat
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Re: Social Security Disability and Cluster Headach
« Reply #8 on: Apr 14th, 2007, 1:06pm » |
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They NEED to change the name of Cluster Headache. Any Ideas? Crippling Cranial Attack?
Debilitating Head Seizures?
Unbearable fucking...I dont know.[i][/i]
How about "flossing your eye socket with a hot poker syndrome"
maybe thats descriptive enough.
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BarbaraD
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Re: Social Security Disability and Cluster Headach
« Reply #9 on: Apr 14th, 2007, 2:00pm » |
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I was applying for medicare and got turned down. Think I'll reapply. Hell, by the time they get around to me, I'll be drawing medicare. Oh well...... Maybe then I can afford to get some medical help 
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gore2424
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Re: Social Security Disability and Cluster Headach
« Reply #10 on: Apr 15th, 2007, 12:24am » |
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I am on SSD due to my Chronic Cluster Headaches since the fall of 2003. Took 7 months because first time said no and on first appeal they said yes. Terry
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DannyV
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Re: Social Security Disability and Cluster Headach
« Reply #11 on: Apr 15th, 2007, 12:24am » |
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There was a movie with Brando and Val kilmer"The Island Of Doctor Moreau" I believe it was astory by H.G. Wells.
Anyho, in it, there were wild half man half beasts roaming free on the Island. Dr. Moreau [Brando] had implanted a chip into their brains, and if they threatened to attack him, he had a little clicker that would,when pressed, drop these huge ferocious beasts to their knees screaming and crying and grabbing at their heads in agony.
Maybe in re-naming CH we could make reference to this? Dr. Moreaus Attack Disorder?
Moreaus Brain Disease?
Moreaus Cranial Syndrome?
Definately need something with more punch.
I like Moreaus Attack Disorder.
Who ever chose Cluster Headache as a name for this thing obviously never had one.
There is a man in Cali. named Dr. Lee Kudrow who wrote a book completely devoted to the study of CH. He was a sufferer as well. A pioneer in the field. I believe it was he who first found some success with oxygen therapy. He was mentor to a great headache specialist that I was lucky to have for 10 years until he retired.
Fun Fact-- Dr. Lee Kudrow is the father of Lisa Kudrow from Freinds. Little known fact there Normie
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My life is like water, swirrling down the drain.
Gonna get me a shotgun, and disconnect my brain.
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Phil L
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Re: Social Security Disability and Cluster Headach
« Reply #12 on: Apr 15th, 2007, 2:47pm » |
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Kathy, congratulations on working thru the official morase of both Social Security and the VA. Nothing to feel "remorse" over as your are certainly entitled to the compensation and it is not a gift, but rather appropriate
for your situtation and deserved. Phil
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clusterwife
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Re: Social Security Disability and Cluster Headach
« Reply #13 on: Apr 17th, 2007, 9:28am » |
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Very funny Barbara!
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Linda_Howell
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Re: Social Security Disability and Cluster Headach
« Reply #14 on: Apr 17th, 2007, 11:18am » |
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Quote:There is a man in Cali. named Dr. Lee Kudrow who wrote a book completely devoted to the study of CH. He was a sufferer as well. A pioneer in the field. I believe it was he who first found some success with oxygen therapy. He was mentor to a great headache specialist that I was lucky to have for 10 years until he retired.
Fun Fact-- Dr. Lee Kudrow is the father of Lisa Kudrow from Freinds. Little known fact there Normie
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Kudrow was my Doctor and gave me my official diganosis. It really isn't a little known fact, Normie...lmao People here know more about facts like these than you're giving us credit for. 
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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