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   Author  Topic: Out Of Cycle  (Read 313 times)
ClusterChuck
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Out Of Cycle
« on: Apr 12th, 2007, 12:52pm »
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I posted this in the general section, but I was asked to put it here, too ...
 
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What to do, when NOT in cycle?
 
First and foremost, CONGRATULATIONS!!!  Most of us LOVE to hear that news!  You really make my (our) day when I (we) read of this!  Enjoy your pain free time!  Live life to its fullest.  Spend time with your family, loved ones, and friends.  Do those things you were leery of doing while in cycle.  
 
Second, quit worrying and panicking about when your next cycle will be.  There is nothing you can do about it, so quit worrying, and get back to enjoying life, pain free!  When the cycle starts, it will start.  Quit worrying!
 
Third, make sure you are fully armed to deal with the beast, the next time he comes.  Have your game plan in place.   Inform your loved ones, of what to expect.  Have your meds available.  For those in the USA, where we have so much trouble getting all the imitrex that we need, DON’T stop filling your imitrex prescription!  This is a HUGE point!  Build up your supply, so you have plenty on hand, next cycle.  Imitrex has a long shelf life, and many of us have used them, up to two years after expiration date.  Beside, you may discover that it is not all YOUR imitrex.  Maybe your buddy clusterhead left THEIR supply at your house, when they visited.  (wink wink)  And you have to mail it out to them.
 
Fourth, just because you are pain free, and out of cycle, that does not mean that you have to leave the web site.  Many are here in and out of cycle, and we value those!  While you were in cycle, people were always here for you.  Now pay it forward and do the same for those that are in cycle.  Lend your support and experience to those in need, just as others did for you.  We value your input and support.
 
Also, if there is any breakthrough in treatment, believe me, you will find the full details HERE, first.  None of us know EVERYTHING about clusters, regardless of how long we have dealt with them.  We all can learn a new trick or whatever.  So stay with us.  Keep up to date.  There are plenty of chairs available.  Let us know how, and what you are doing.  You ARE our family, and we care, in and out of cycle.
 
But, most of all, KICK your heels up, and DANCE!!!  Enjoy your pain free time!
 
Congratulations on surviving another cycle!  We KNEW you could do it!  We are proud of you, and happy for you!
 
Chuck
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Re: Out Of Cycle
« Reply #1 on: Apr 12th, 2007, 1:00pm »
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Words were never spoken truer.  I'm here and will remain here.  When we are in a black hole we need people like the ones that helped us to drag us back into the light.
 
I still have other health problems that I'm dealing with but beating one down gives way for the others to get fixed also.
 
I'm here.  I'm staying.  I will try to help.
Sami
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Re: Out Of Cycle
« Reply #2 on: Apr 12th, 2007, 3:45pm »
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This is a wonderful time to consider learning how to help yourself  when the next cycle comes.
 
http://www.ouch-us.org/chgeneral/painvsuffering.htm
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Bob Johnson
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Re: Out Of Cycle
« Reply #3 on: Apr 12th, 2007, 8:55pm »
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I am also out of cycle already but I will still hang in here for a while....
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