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KANSAS_SISTER
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Questions...Help
« on: Feb 16th, 2007, 8:42pm » |
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Once upon a time...well ok 4 days ago
Day 1..... I went to spin class at 7pm. It was my first time and less than 1 1/2 minutes into it I got this pounding, stabbing, excruciating pain in the back of my head on the right side only. I couldn't hardly keep my eye open.
Pounding lasted for about 2 hrs, but not the excruciating pain. It was the left over pain, what someone might call a horrible painful headache. (check BP, no problem, that was my first thought)
Day 2..... 9:45 at work. Walking down the hall. Bang. Hit me. Same pain. The severe pain lasts about 5 minutes then the left over pain for about an hour...after the 800mg ibuprofen.
5:45pm at the gym. less then 1 minute on the eliptical and Wham! AGAIN. Severe Pain lasts 5 minutes...I started to think that something was REALLY WRONG with me. Like tumor wrong.
Day 3.... Make an appointment for the next day. "No you don't need to work me in. I'm sure they aren't as bad as I thought. Tomorrow is soon enogh." 4:45pm Walked out to my van after work and WHAM! This one is worse. I can't keep my right eye open and it makes me cry. (Tears out of my right eye only.) I can only decribe it as a pain that would make you want to kill yourself rather than live with it. That is the best description. I hits me like a baseball bat to the head. Above my right ear and in back of my head on the right side. I could draw a circle around where it hurts. Again the most severe pain is 5 minutes. Just when I think I need to call someone to come get me and take me to the ER (Ironically I work at the hospital..I was in the parking lot) the pain eases. (after about 5 minutes) It's still pounding and every once in a while the pounding makes me physically flinch. 4 Ibuprofen and 1 1/2 hrs later I feel normal again.
Day 4..... I am sitting in the doctor's office talking with the PA and she says "Are you having cluster headaches?" OH MY GOD ITS STARTING. I had an attack right there. Severe disabling pain that makes tears roll down my face. Still in the same place. The worse part was about 5 minutes long. The left over pain lasted longer, but I went straight to MRI and couldn't take ibuprofen. With the severe after headache pounding I was flinching so much I was almost leaning over the left side of my chair to get away from the pain on the right side INSIDE MY HEAD (Yeah, I'm sure I looked like an idiot!) After I got home and took ibuprofen for the after headache and an hour later I felt almost normal.
Day 5.... (TODAY) The MRI is normal. The PA talked to the doctor and right away the doctor said "Cluster Headache" He put me on Cardize LA 180mg daily and gave me Axert to take when the next attack starts. Monday the Neurologist is in clinic. My PA said she will check with me.I've gone more than 30 hours without an attack. (THANK GOD!!!)
Help me. I think suffers are a great source of information. You live it. You learn all you can about it.
The pain isn't behind my eye. I don't feel a hot poker in my eye. The most severe pain only lasts 5 minutes.
Does this sound like cluster headaches?
Is it possible to have a few and never again? (I hope)
I'm sorry this post has gotten so long.
Can you help me with your opinion...I know it isn't medical advice, but it is valuable.
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| « Last Edit: Feb 16th, 2007, 10:48pm by KANSAS_SISTER » |
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God, You know I'll need it,
So please put your hand over my mouth
And your arm around my shoulder again today.
Love, Me
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Linda_Howell
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Hearing is one thing. Listening is another.
  
 
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Re: Questions...Help
« Reply #1 on: Feb 16th, 2007, 8:56pm » |
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Hi and welcome sister,
One of the most telling signs of cluster headaches is that stabbing pain behind the eyes. You don't have that.
Look at this list:
SUNCT:
Diagnostic criteria:
A. At least 20 attacks fulfilling criteria B–D
B. Attacks of unilateral orbital, supraorbital or temporal
stabbing or pulsating pain lasting 5–240 seconds
C. Pain is accompanied by ipsilateral conjunctival
injection and lacrimation
D. Attacks occur with a frequency from 3 to 200 per
day
E. Not attributed to another disorder
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Paroxysmal Hemicranias:
Diagnostic criteria:
A. At least 20 attacks fulfilling criteria B–D
B. Attacks of severe unilateral orbital, supraorbital or temporal pain lasting 2–30 minutes
C. Headache is accompanied by at least one of the following:
1. ipsilateral conjunctival injection and/or lacrimation
2. ipsilateral nasal congestion and/or rhinorrhoea
3. ipsilateral eyelid oedema
4. ipsilateral forehead and facial sweating
5. ipsilateral miosis and/or ptosis
D. Attacks have a frequency above 5 per day for more than half of the time, although periods with lower frequency may occur
E. Attacks are prevented completely by therapeutic
doses of indomethacin
F. Not attributed to another disorder
Please let us know...we care and want to help.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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