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Topic: clusterheadache~ (Read 791 times) |
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daniel96
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clusterheadache~
« on: Feb 12th, 2007, 1:01am » |
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Hello all, its been a nice and informative forum here. I was diagnosed with cluster headaches 2 years ago and now I am still on medication like most of you do. I read up that caffeine do helps during CH periods and I am going to try out during my CH period which is now. I hope it can somehow reliefs me from the headaches as my medication seems to take much longer time to subside the headaches. I am keen to know more CH friends out there, and hopefully to know more about this headache and more ways to counter to CH.
This is my brief information of my CH record.
Age:25
Gender: Male
Medication: Verpamil (40mg) & SumaTriptan (50mg) Imigran
CH Periods: During Spring. February to March Period. Normally occurs around 10am in the morning. Attack lasts for 1 - 2 hours.
Just to check if there's anyone from singapore here... 
Cheers.
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George_J
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Re: clusterheadache~
« Reply #2 on: Feb 12th, 2007, 1:17am » |
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on Feb 12th, 2007, 1:01am, daniel96 wrote:
Age:25
Gender: Male
Medication: Verpamil (40mg) & SumaTriptan (50mg) Imigran
CH Periods: During Spring. February to March Period. Normally occurs around 10am in the morning. Attack lasts for 1 - 2 hours.
Just to check if there's anyone from singapore here...
Cheers. |
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Welcome, Daniel.
As far as I know, you're the first from Singapore here.
I'll defer to those with more knowledge of the medications you're taking. I'm sure they will be along shortly to greet you as well.
Again, welcome--it's a pleasure to meet you.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
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It all comes to light in the sheer
Debonair.
(Ellen)
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duckie
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Re: clusterheadache~
« Reply #3 on: Feb 12th, 2007, 3:28am » |
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Hey Daniel,
I'm not from Singapore but will an Aussie help! Just on caffeine, a lot of people have tried Red Bull or other energy drinks with caffeine and taurine with some success. I've tried it only a couple of times but it seems to lessen the attack somewhat. Trick is to "slam it down fast", won't work as well if you don't scull. Like George I will defer to the more experienced CHers here for medication information.
I've only just recently started posting messages and I can say that you'll find everyone really helpful and supportive.
PF vibes to you
Lii
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daniel96
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Re: clusterheadache~
« Reply #4 on: Feb 12th, 2007, 5:38am » |
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Great. Hope we can share more information around here.
And for every CH cycle,there's a difference in terms of time/no.of attacks right? cause for the past 2 years I seems to experience different time of the day & no. of attacks per day.
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seasonalboomer
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Re: clusterheadache~
« Reply #5 on: Feb 12th, 2007, 6:41am » |
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Yes, Daniel, CH seems to constantly "morph". Just when you think you got it's schedule down it'll throw you a curve ball.
Welcome to the site. Thee's a lot of info on the main site but also in looking at a lot of the past threads.
Are you using injectable sumitriptan? (In the U.S. we have "Imitrex" which is injectable that can extinguish a hit in less than 5 minutes.) The pills take too long.
Scott
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daniel96
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Re: clusterheadache~
« Reply #6 on: Feb 12th, 2007, 6:49am » |
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on Feb 12th, 2007, 6:41am, seasonalboomer wrote:Yes, Daniel, CH seems to constantly "morph". Just when you think you got it's schedule down it'll throw you a curve ball.
Welcome to the site. Thee's a lot of info on the main site but also in looking at a lot of the past threads.
Are you using injectable sumitriptan? (In the U.S. we have "Imitrex" which is injectable that can extinguish a hit in less than 5 minutes.) The pills take too long.
Scott |
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Hi Scott, currently I am still using pills. Its used to take about 15mins for it to take effect but sad to say this morning It didn't worked. I have to look into the cost too as I still a student else I would have look into other treatments.
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daniel96
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Re: clusterheadache~
« Reply #7 on: Feb 12th, 2007, 7:27am » |
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+ a update for all
- almost have 2th attack of the day.
* quickly open a can of red bull + put in one glass of ice and glup it down.
The headache aborted in roughly 10-15mins.
COOL. hope this continues. 
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Guiseppi
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Re: clusterheadache~
« Reply #8 on: Feb 12th, 2007, 10:08am » |
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Hey welcome to the board, it is a great forum for swapping what works and doesn't work. Have you tried oxygen yet? For me it will abort a headache in as little as 3-4 minutes if I start it at the first sign of a headache.
It must be used at a high flow rate, up to 15LPM and using a non- rebreather or "cluster" mask.
Glad the energy drink worked for you, wishing you a short cycle this time around!
Guiseppi
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froggy
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Re: clusterheadache~
« Reply #9 on: Feb 12th, 2007, 11:07am » |
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Hi Daniel,
If you're here, you're definitely doing something right!
Welcome
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froggy
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Turts
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Re: clusterheadache~
« Reply #10 on: Feb 12th, 2007, 3:21pm » |
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Gday Daniel,
welcome aboard
TUrts
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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chewy
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The verapamil dosgae is the same as mine and it is effective for me. Others require a higher dosage.
Have you considered imitrex injections rather than pill form?
Also melatonin is a good sleep aid and is available over the counter in the US. Dont know about Singapore.
Another option that may break a cycle entirely is a prednisone taper. Ussually only effective if done in conjunction with a theraputic dose of a preventative.
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daniel96
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Re: clusterheadache~
« Reply #12 on: Feb 12th, 2007, 8:02pm » |
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on Feb 12th, 2007, 10:08am, Guiseppi wrote:Hey welcome to the board, it is a great forum for swapping what works and doesn't work. Have you tried oxygen yet? For me it will abort a headache in as little as 3-4 minutes if I start it at the first sign of a headache.
It must be used at a high flow rate, up to 15LPM and using a non- rebreather or "cluster" mask.
Glad the energy drink worked for you, wishing you a short cycle this time around!
Guiseppi |
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I have not yet try on oxygen yet cause need my neuro to refer me to the vendor and I yet to find out the cost too. If its too expensive I have to consider.
Yeah the energy works pretty fine for the first time, will be trying out it again. But bad thing is cant sleep well cause too awake in the night lol.
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BB
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Re: clusterheadache~
« Reply #15 on: Feb 12th, 2007, 8:11pm » |
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Hi Daniel,
Welcome to the Board and painfree wishes to you.
I am glad to hear that the Red Bull is working well for you. Have you tried ice on the neck during a hit ? It can help a lot with the pain too.
My husband who has CH is also called Daniel, I hope that its just a popular name and not a common trait !    
All the best.
Annette
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Barry_T_Coles
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Re: clusterheadache~
« Reply #16 on: Feb 12th, 2007, 8:19pm » |
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Hi Daniel
Welcome aboard 
Cheers
Barry
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daniel96
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Re: clusterheadache~
« Reply #17 on: Feb 12th, 2007, 9:14pm » |
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on Feb 12th, 2007, 8:11pm, BB wrote:
Hi Daniel,
Welcome to the Board and painfree wishes to you.
I am glad to hear that the Red Bull is working well for you. Have you tried ice on the neck during a hit ? It can help a lot with the pain too.
My husband who has CH is also called Daniel, I hope that its just a popular name and not a common trait !
All the best.
Annette |
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Hi Annette, the pain at the neck is towards the slightly left of the neck right? cause I always have pain over there. So far I haven't tried ice pack, Daniel is a powerful name hehe I feel.
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daniel96
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Re: clusterheadache~
« Reply #19 on: Feb 12th, 2007, 9:20pm » |
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Hi dear friends, I have a question here.
Just to check .. does anyone of you family's members have such issue on CH? its not heritable from parents right?
Cause according to my family history, I seems to be the first who got CH. There's some of my family members who have migraines. And I just went for my Thalassaemia DNA test to check if I have it, cause my aunt's have it and its can be along with the family tree.
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BB
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Re: clusterheadache~
« Reply #20 on: Feb 12th, 2007, 9:44pm » |
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CH is not strongly inheritable in comparison to other medical conditions but there are families with more than one member with CH. Its more common to find migraine in the relatives of a CHer.
In my Daniels case, he is the only one diagnosed with CH but he has many relatives with migraines.
BTW, are you a smoker? Most CHers are or were ( heavy ) smokers. Whether smoking was causative or just a by product of CH, the debate continues.
Wishing you PFDAN
Annette
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AussieBrian
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Re: clusterheadache~
« Reply #21 on: Feb 12th, 2007, 9:48pm » |
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A firm and accurate diagnosis of CH really is important because firstly we tend to take quite strong medications which do you no good if you don't need them and, secondly, because if you're being treated wrongly then another condition is being left un-treated completely.
Just keep asking questions, mate, because knowlege is our best weapon.
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daniel96
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Re: clusterheadache~
« Reply #22 on: Feb 12th, 2007, 10:27pm » |
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on Feb 12th, 2007, 9:44pm, BB wrote:
CH is not strongly inheritable in comparison to other medical conditions but there are families with more than one member with CH. Its more common to find migraine in the relatives of a CHer.
In my Daniels case, he is the only one diagnosed with CH but he has many relatives with migraines.
BTW, are you a smoker? Most CHers are or were ( heavy ) smokers. Whether smoking was causative or just a by product of CH, the debate continues.
Wishing you PFDAN
Annette |
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Hi Annette, I used to be a smoker during my army days. But nowadays I don't touch it anymore. As for beer & wine also very seldom. But I know when I used to smoke or drink, its doesn't trigger it as my CH is episodic , It come in periodic form.
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daniel96
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Re: clusterheadache~
« Reply #23 on: Feb 12th, 2007, 10:28pm » |
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on Feb 12th, 2007, 9:48pm, AussieBrian wrote:A firm and accurate diagnosis of CH really is important because firstly we tend to take quite strong medications which do you no good if you don't need them and, secondly, because if you're being treated wrongly then another condition is being left un-treated completely.
Just keep asking questions, mate, because knowlege is our best weapon. |
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Yeah I agreed with you. I don't like medicines at all. Make me feel weaker.
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duckie
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Re: clusterheadache~
« Reply #24 on: Feb 13th, 2007, 3:03am » |
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Hey Daniel,
Just to add to Annette's post I have a family history of migraines on my mother's side but the first CHer in the family that i know of. Ice packs help (or frozen peas!!) and I just put it where it hurts. From reading some other posts some people get a lump on the neck/mouth/head etc when they get an attack.
PF vibes, Lii
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