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Topic: 21 Days ... (Read 254 times) |
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TonyG1
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Well, I've been reluctant to say anything as I didn't want to jinx myself but I've been PF for 21 days ... I'm thinking the cycle is done for another two years ... <fingers crossed>  I'm on a low enough dosage of verap that it doesn't always stop the CH so I'm pretty sure its not the medicine. I'm always cautious about saying such things as I know the beast has a mind of its own and can resurface at anytime of its choosing. 
I do plan to stick around here and help where I can.
PFDANs to all !!
Tony
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sandie99
New Board Hall of Famer
Wish it, dream it, do it - inspite the pain!
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Re: 21 Days ...
« Reply #2 on: Feb 11th, 2007, 1:40pm » |
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Tony,
it's always fantastic to hear that a fellow clusterhead is PF!  Congratulations! Enjoy each PF moment and I wish loads of them your way.
PF wishes,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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froggy
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Don't rain on my parade
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Re: 21 Days ...
« Reply #3 on: Feb 11th, 2007, 3:27pm » |
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I'm absolutely happy for you!
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froggy
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BB
CH.com Alumnus
New Board Newbie
I love YaBB 1G - SP1!
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Re: 21 Days ...
« Reply #4 on: Feb 11th, 2007, 4:01pm » |
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Thats fantastic news Tony
My man's cycle also seems to be comming to an end. He has had 5 days painfree, not even a slight shadow. His medication is still the same. While on all these medications he was still getting hit at least once a day so I am sure its not the medication.
Prayers and painfree wishes to you. Hopefully your 21 PF days will last 2100000000000000000 days .... 
Annette
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Guiseppi
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Re: 21 Days ...
« Reply #5 on: Feb 11th, 2007, 5:05pm » |
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Congrats...what BB said only add 6 more days for good measure!!!!
Guiseppi
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Why are all sensors, seeking intelligent life, pointed AWAY from earth?
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George_J
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White-Breasted Nuthatch
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Re: 21 Days ...
« Reply #6 on: Feb 11th, 2007, 5:20pm » |
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Boy, this is the kind of news I really like to hear.
Hoping for a looooong remission for you, Tony.
Best,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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TonyG1
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Thanks All !!
BB - I saw from your post -- Daniel seems to coming to the end of a cycle too ... I'm very happy for him and you !!  Mine went from everyday to every other day with the kip levels getting less and less and then they simply stopped <fingers still crossed>
This condition is terrible for both the sufferer and those who support them! I sincerly hope and pray for all of my cluster family that you all will find respite from this monster as well ! For those that are continuing the fight, keep fighting. I know when in mid-cycle and getting hit hard, it is sometimes difficult to see the light at the end of the tunnel -- makes you wonder who said "what doesn't kill you only makes you stronger..." ?
For our chronic friends, I would tip my hat to you if I wore one...  for now incense and flowers will have to do !!
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