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Topic: painkillers . . . just wondering (Read 734 times) |
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eyepopper
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painkillers . . . just wondering
« on: Feb 1st, 2007, 3:56pm » |
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This has been one of the worst weeks I've had in a long time.
I have a brief question. Back in the day before I knew what the beast was (I was told sinus headaches) I took a Percoset that I had in my cabinet from dental surgery, thinking it would kill the pain.
Surprise! It didn't! I still had just as much pain (if not more), but I could barely deal with it because I was so groggy from the Perc.
My question is, does anyone know why painkillers don't work on these suckers?
If I get another visit from the beast, I may not be checking in for a day or so.
Thanks for your help.
Deb
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Guiseppi
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Re: painkillers . . . just wondering
« Reply #1 on: Feb 1st, 2007, 4:06pm » |
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With the exception of the injectables, the pain killers take too long to get absorbed into your system. You're at a kip 8 or 9 before your body is metabolizing any of the meds.
That's why the Oxygen is so highly thought of around here. It's in your system in seconds, for me at least it'll stop the beast in its tracks in 3 to 8 minutes. I hope you have access to something, be it oxygen or imitrrex. The thought of facing theze things naked scares the hell outta me.
Guiseppi
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Sean_C
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Re: painkillers . . . just wondering
« Reply #2 on: Feb 1st, 2007, 8:59pm » |
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on Feb 1st, 2007, 4:06pm, Guiseppi wrote:| With the exception of the injectables, the pain killers take too long to get absorbed into your system. |
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Doesn't matter, they don't work on CH.
Do you have a nuerologist Deb?
Sean.......................................
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thebbz
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Re: painkillers . . . just wondering
« Reply #3 on: Feb 1st, 2007, 9:30pm » |
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I will quote Lelimey...from a past thread on the same subject..
Dont bother
CH headaches are vascular. Aborts work by constricting blood vessels effected. Painkillers do not constrict the blood vessels and do not work on the CH..they may help in other ways for other reasons though. You would be better off with a strong cup of coffee.
I hope that's close Helen. Hope you dont mind.
all the best there  eyepopper
jb....spelling?..and I botched the accent. 
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| « Last Edit: Feb 1st, 2007, 9:34pm by thebbz » |
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Linda_Howell
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Re: painkillers . . . just wondering
« Reply #4 on: Feb 1st, 2007, 9:50pm » |
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Never nmind the accent there John. Your advice was great.
Painkillers work....for after dental or other surgery where the pain is constant for a few days. You need them for this. For CH it's a big no- no for the reasons stated above as well as this:
If your're chronic you'd have to take them in such massive dosages you'd be a physical and mental wreck.
If you're episodic for even 4 months of the year, it would become addicting in that long.... not to mention the rebounds from the Darvocet, Codeine, Lorcet, etc. would prolong your cycle.
I haven't stood on my Narcotics soap-box for some time now, since others here have done it for me.
Damn that felt good.
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| « Last Edit: Feb 1st, 2007, 9:51pm by Linda_Howell » |
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BB
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Re: painkillers . . . just wondering
« Reply #5 on: Feb 2nd, 2007, 1:52am » |
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The main mechanism for the pain here is nerve pain ( from the trigeminal nerve ) and internal nerve pathways via neurotransmitters, thats why normal pain killers even narcotics dont do much.
Its like trying to put out a massive chemical fire with normal water, it wont work. You need to use special chemical foams to put out chemical fires. If using water alone, you will need a massive amount and even then things will still have been burnt to the ground anyway.
If you use too much narcotics then you will "float" above the pain ie the pain is still there you just get too zonked out to be fully aware of whats going on but such high dose is dangerous and very highly addictive.
BB
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Sean_C
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Re: painkillers . . . just wondering
« Reply #6 on: Feb 2nd, 2007, 9:33am » |
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on Feb 2nd, 2007, 1:52am, BB wrote:| If you use too much narcotics then you will "float" above the pain ie the pain is still there you just get too zonked out to be fully aware of whats going on but such high dose is dangerous and very highly addictive. |
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Using "to much" narcotics or narcotics in any dosage will not make the pain withdraw in my case BB. I've been down all those roads, and all have lead to a dead end, only to create other issues, both physical and personal.
Anyone considering using pain killers to escape CH will not find relief, only pain and addiction.
There are alternative medications with non addictive properties, my suggestion would be to consider those before the opiates.
Cheers
Sean...............................
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| « Last Edit: Feb 2nd, 2007, 9:34am by Sean_C » |
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Charlotte
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Re: painkillers . . . just wondering
« Reply #7 on: Feb 2nd, 2007, 10:08am » |
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I am still working on educating my doc & neuro, both of whom I met this past year.
My previous doc got stuck on migraine & refused to help me, or listen, with the end of cycle high cycle, and physically turned his back on me. Peole here said "Get a new doc" and I did.
The new doc & neuro have never done that, and that is worth a lot to me. The neuro hasn't given me a diagnosis but that is preferable to a wrong diagnosis, and both fellows are working with me and I now have a good combo of meds, for me. My standards for relief are low, and my pain tolerance is high, and everyone I know is supportive, or at least tolerant. I feel very fortunate in that.
The ridiculous and typical, however, is when we ticked off the meds in December and how they worked or didn't work and got to the end of the list, I pointed to my temple and said, what about the pain here that nothing touches?, and the neuro prescribed vicodin. I think I used 3 of the vicodin in 2 months. Because of frequency of hits, I cut things in half or 4ths - except verapamil which I use according to the escalation chart.
LOL - One gauge I use as to how I'm doing is my cat. She hides and stays away when I get hard hits, and lately she has been right by me. So, I'm doing good!
Charlotte
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kcopelin
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Re: painkillers . . . just wondering
« Reply #8 on: Feb 2nd, 2007, 1:09pm » |
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 So Charlotte, you're getting regular CAT scans huh?
(i crack me up)
pfdan y'all
kathy
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LeLimey
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Re: painkillers . . . just wondering
« Reply #9 on: Feb 2nd, 2007, 2:05pm » |
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on Feb 1st, 2007, 9:30pm, thebbz wrote:
I will quote Lelimey...from a past thread on the same subject..
Dont bother
CH headaches are vascular. Aborts work by constricting blood vessels effected. Painkillers do not constrict the blood vessels and do not work on the CH..they may help in other ways for other reasons though. You would be better off with a strong cup of coffee.
I hope that's close Helen. Hope you dont mind.
all the best there eyepopper
jb....spelling?..and I botched the accent. |
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You did good JB although I have to say you sounded more like a Noo Yawker
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Sean_C
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Re: painkillers . . . just wondering
« Reply #10 on: Feb 2nd, 2007, 2:08pm » |
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on Feb 2nd, 2007, 2:05pm, LeLimey wrote:
You did good JB although I have to say you sounded more like a Noo Yawka
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I fixed it for ya Helen
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tanner
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Re: painkillers . . . just wondering
« Reply #11 on: Feb 5th, 2007, 11:44am » |
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on Feb 2nd, 2007, 1:09pm, kcopelin wrote: So Charlotte, you're getting regular CAT scans huh?
(i crack me up)
pfdan y'all
kathy |
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Kathy, you crack me up too
Not many posts from you of late  I hope you are OK ...Big Hug....Tim
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drivin_blind
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Re: painkillers . . . just wondering
« Reply #12 on: Feb 5th, 2007, 4:40pm » |
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Friend of mine (My Dr.) told me a long time ago. Pain killers work well for surgical pain, but not very well or not at all for nerve pain. These aren't hard fast rules but basically that's the bottom line. Dick
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gcormier04401
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Re: painkillers . . . just wondering
« Reply #13 on: Feb 7th, 2007, 8:47am » |
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Narcotics and other non-narcotic pain killers NEVER worked for me. Before I was diagnosed (March 2004) I spent 20 years episodic (3 years free then typically 6 weeks in hell). Every time I would go to the ER only to be prescribed narcotics (which I never liked anyway). The last trip to the ED before being diagnosed I literally begged for anything non-narcotic from the ED doctor. After an hour of trying to figure out why my eye was swelled shut and I was in pure agony he said, "You might have a cluster headache, I'd give you an Imetrix injection but your blood pressure is too high."
My blood pressure was freakin' high because I was at a kip 9-10!
He prescribed narcotics and sent me home.
I finally was diagnosed a week later by a neurologist... almost wept to finally know I wasnt crazy. The pacing and banging my head had me conviced I was...
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mynm156
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Re: painkillers . . . just wondering
« Reply #14 on: Feb 19th, 2007, 3:19am » |
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on Feb 1st, 2007, 8:59pm, Sean_C wrote:
Doesn't matter, they don't work on CH.
Sean.......................................
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Never ever Sean? HHHmmmmmmmm
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Sean_C
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Re: painkillers . . . just wondering
« Reply #15 on: Feb 19th, 2007, 10:35pm » |
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on Feb 19th, 2007, 3:19am, mynm156 wrote:
Never ever Sean? HHHmmmmmmmm |
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Opiates never ever worked for me Mynm, morphine was just as useless.
How about you? You find relief with opiates or morphine?
HHHmmmmmmming back at ya brother.
Sean...........................
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Callico
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Re: painkillers . . . just wondering
« Reply #16 on: Feb 19th, 2007, 11:02pm » |
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"Opiates never ever worked for me Mynm, morphine was just as useless.
How about you? You find relief with opiates or morphine?
HHHmmmmmmming back at ya brother.
Sean........................... "
Morphine and Demerol both made me feel really good except for the pain in my head!
Right now, nothing is working for me.  '
jc
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LeLimey
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Re: painkillers . . . just wondering
« Reply #17 on: Feb 20th, 2007, 3:41am » |
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on Feb 19th, 2007, 11:02pm, Callico_Kid wrote: Right now, nothing is working for me. '
jc
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Right now you KNOW I'm not going to let you leave it like that don't you honeybun?
What have you tried? how many hits per day, duration and time of day?
You know the routine, sometimes something really obvious is sitting right under our noses. I had that happen to me a while back. Paul 98 asked me if I'd ever tried melatonin on Jasper, I mentioned it to PG who prescribed it for him and Jasper is now reduced to approx one hit every 6-7 days from every night! I KNOW melatonin but I couldn't see the wood for the trees and it took someone else to point it out.
We're not leaving one of ours out in the cold matey, I for one will not stop until we have something that is going to help you (((HUG)))
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Sean_C
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Re: painkillers . . . just wondering
« Reply #18 on: Feb 22nd, 2007, 12:24am » |
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on Feb 19th, 2007, 11:02pm, Callico_Kid wrote:| "Right now, nothing is working for me. ' |
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Hang tough bud, I know your pain and it sucks but it can be done.
BTW just because something isn't work in the past doesn't mean it won't work now. The beast is a funny thing, sometimes one thing will beat him down, next time it won't, but will again later. 
Keep the faith bro,
Sean...........................................
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| « Last Edit: Feb 22nd, 2007, 12:25am by Sean_C » |
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hdbngr
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Re: painkillers . . . just wondering
« Reply #19 on: Feb 24th, 2007, 5:49am » |
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I'm right there with you. It's cluster season and the worst cycle is Jan-March for me. In regard to your question....it is true that most pain killers do not work on CH. They hurt just too bad for the average painkiller to address.
That being said, there are a couple that have helped folks here. If you are a chronic, ask about the Duragesic patch. It is a narcotic and it is up to you as to whether or not to set off alarm bells with your Doc. You do not want to be labeled a drugseeker. Secondly, a new one is Actiq. Like a lollipop, absorbs in five minutes through lining of the mouth, but again, be cautious. They can be addictive if used incorrectly.
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