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Topic: Still blows my mind (Read 622 times) |
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bruce802
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Still blows my mind
« on: Jan 31st, 2007, 9:42am » |
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I have been suffering from CH’s since I was about 18 years old. I am now 38 years old and I still I sit here and shake my head at how ridiculously weird of a sickness this is. To think that these headaches are so excruciating at times and not knowing why we get them and how they can hit you like clockwork is just F****** weird to me.
Bruce
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Brew
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Low Four!
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Re: Still blows my mind
« Reply #1 on: Jan 31st, 2007, 1:38pm » |
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It's still a McMystery.
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Always remember that you're unique, just like everyone else.
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5yearsteve
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My head is like a sieve !!
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Re: Still blows my mind
« Reply #2 on: Jan 31st, 2007, 3:24pm » |
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Yeah, I think of this a lot also. Maybe our brains are performing a scan disk, defragging, and then replacing missing clusters. HAHA
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George_J
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Re: Still blows my mind
« Reply #3 on: Jan 31st, 2007, 4:52pm » |
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I'm still astounded when I come out of one that it hasn't killed me outright.
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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starlight
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Re: Still blows my mind
« Reply #4 on: Jan 31st, 2007, 5:17pm » |
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Bruce, I have been getting them for almost 20 years too since I was 14 yrs. old. The nature of them, their clockwork nature, the "unexplained" nature of them and also how badly they suck has also caused me to try to find some meaning or explanation--perhaps even a kind of spiritual pondering. I would be curious if anyone had any thoughts. I mean--they are definitely weird--especially how they come at night (for me anyway).
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Turts
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Ever danced with the devil by the pale moonlight
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Re: Still blows my mind
« Reply #5 on: Jan 31st, 2007, 6:26pm » |
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I think the wierdness of how they come, work, and go makes it all the more difficult for "outsiders' to understand or appreciate how severe they are aswell.
Turts
as for the title????
I think " still explodes my mind"
"still excruciatingly, agonisingly, tormently destroys my mind and livelyhood"
could have worked aswell. 
Turts
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'I'm very brave generally,' he went on in a low voice: 'only today I happen to have a headache.' (Lewis Carroll)
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Tara Ann
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It's always darkest before the dawn.
 
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Re: Still blows my mind
« Reply #6 on: Jan 31st, 2007, 9:40pm » |
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Yup still blows my mind how I haven't blown my brains out yet............ oooh sorry kinda dark but I come from a family with a dark sense of humor, so naturally when I read the title I though that immediatly!
Quote:| I was about 18 years old. I am now 38 years old |
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I was pre-first child and I am still going ... not 10 yrs yet but it feels like a million. If this "affliction" isn't titled yet completely and properly the one thing it sure is, is depressing!
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Skyhawk5
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Re: Still blows my mind
« Reply #7 on: Jan 31st, 2007, 11:39pm » |
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I do believe there is a light out there but it would sure be nice if I didn't need the Hubble Telescope to see it.
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MJ
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Re: Still blows my mind
« Reply #8 on: Feb 1st, 2007, 12:28am » |
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And now the freaking hubble broke. But there is still a light out there.
Your right Bruce its a pretty strange affliction.
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MJ
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Filbert
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Re: Still blows my mind
« Reply #9 on: Feb 1st, 2007, 4:46am » |
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A year or so ago AussieBrian described the pain of CH as being like pure white pain. Pain in its purest form. It's a description that struck a chord with me. Sorry Brian if I didn't remember your description spot on.
Fil.
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Tara Ann
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It's always darkest before the dawn.
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Re: Still blows my mind
« Reply #10 on: Feb 1st, 2007, 4:52pm » |
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on Jan 31st, 2007, 11:39pm, Skyhawk5 wrote:I do believe there is a light out there but it would sure be nice if I didn't need the Hubble Telescope to see it.
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My dad helped build the Hubble.......LOL funny it's had so many problems.
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Chillrmn1
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Yep, I can't imagine there's not one of us that doesn't think and wonder the same things.......the whys, whats, and how this disorder manifests and can't be cured in this day and age of science, technology, and medicine. Hopefully one day soon.
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Barry_T_Coles
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Re: Still blows my mind
« Reply #12 on: Feb 2nd, 2007, 8:05am » |
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If I was a masochist and experienced this pain I would have a serious look at myself and say Your one sick Puppy. 
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
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TonyG1
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Bruce -- Been doing this 20+ years as well.... never fails to amaze me when a new cycle starts... 
Can't do a darn thing but arm yourself with meds / O2 and ride it out...
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ccbiggsoo7
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Re: Still blows my mind
« Reply #14 on: Feb 17th, 2007, 3:40am » |
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kinda reminds you of a unhappy marriage doesn't it.
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chris
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BrianJ
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Take It Easy
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Re: Still blows my mind
« Reply #15 on: Feb 17th, 2007, 5:22am » |
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I say to my wife every single time im coming out of a CH
"what a f*****g stupid illness it hurts so bad then just goes away"
I cant believe that summin that hurts me so much that i cry like a little girl isnt going to kill me
This Beast we suffer from has a wacked sence of humor that is for sure.
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ccbiggsoo7
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Re: Still blows my mind
« Reply #16 on: Feb 17th, 2007, 1:11pm » |
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I think it shows just how strong the fight can be in an individual, when one has no other choice. Never in my life have i experienced, or would want my worst enemy to experience the pain of these god awful things. When first diagnosed i remember walking into the pawn shop and staring at the handguns, contemplating that "it" was the only way out.Six a day, was taking its toll on me. I didn't want to live anymore and i wasn't going to suffer like this, life just wasn't worth it. Then luckily i found a good neuro and imitrex got me threw the physical , and the good ol people and stories of this site pulled me threw the mental aspect. Knowing that i wasn't alone and had other people that was going threw this and had tuffed it out made me fighter! I still get my ass knocked off but your bet your ass im not laying down!!
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chris
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Phil L
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Re: Still blows my mind
« Reply #17 on: Feb 17th, 2007, 3:21pm » |
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Amen
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When I get up in the morning and have to look down to see the grass
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TonyG1
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on Feb 17th, 2007, 1:11pm, ccbiggsoo7 wrote:| Knowing that i wasn't alone and had other people that was going threw this and had tuffed it out made me fighter! I still get my ass knocked off but your bet your ass im not laying down!! |
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You said it .... 
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