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Topic: Residuals (Read 463 times) |
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outwitt
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22 Years into this.... Its profile changed on me two years ago. Previous winter-time episodes........switched to June.......along with an uptick in allergies and sinus congestion. IgE elevated to 800. New this year........not one, but two episodes; the latter peaked at some pretty high Kip #'s.......I'm left with a periodic "shadow" or residual pain where the devil did his dance. Not intense; nor daily; just there for a month now. Anyone experienced a post-CH residual? I'm off to the allergist soon to get these swollen sinuses dealt with! Stay well out there!
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swimchica623
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Get hit. Hit back harder. That's life.
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Re: Residuals
« Reply #1 on: Dec 27th, 2006, 11:34am » |
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yeah i get residiual pain as well as some shadows. i also have a sunburn feeling and numbness in the area. i have bad allergies and severe asthma with a high IgE number..I'm on xolair. i just had sinus surgery last week i'm hoping that's gonna bring some releif! trying not to put my hopes up tooooo high because ive heard its done squat for some i know at the least its gonna help my sinuses though. pf days for you. Lisa
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BigCoffinHunter
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The man in black fled across the desert
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Re: Residuals
« Reply #2 on: Dec 27th, 2006, 12:00pm » |
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Yup, about halfway through my cycle my hits get so bad that after the hit ends, the whole one side of my head aches for a good six hours. It's sore and tender with a pain around a kip7. Not a cluster, but just feeling like I got kicked in the face by a horse. It's awful. My neuro had me start taking 4 Aleve before bed so that the pain killer would be in my system ahead of time (just for the residuals, not the clusters). That did help quite a bit.
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« Last Edit: Dec 27th, 2006, 12:01pm by BigCoffinHunter » |
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mynm156
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hope life isn't a big joke, because I don't get it
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Re: Residuals
« Reply #3 on: Dec 27th, 2006, 2:08pm » |
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I too have this and I thin that this is pretty common to us. It really wipes me out onn days were I am getting abused by the beast. Every so often he has to remind me that he can make me his bitch anytime.
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BigCoffinHunter
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The man in black fled across the desert
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Re: Residuals
« Reply #4 on: Dec 27th, 2006, 6:38pm » |
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In some ways the residuals (I like that term, I've always referred to them as 'hangover headaches', like the CH gave me a hangover, but that doesn't translate well to normal folks) are almost as bad as the CH. The pain's not as focused and intense, but it's more than enough to ruin sleep for the night. Lack of sleep is what takes its toll on me the worst.
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sailpappy
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Re: Residuals
« Reply #5 on: Dec 27th, 2006, 6:40pm » |
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I have always suffered residual pain in one upper area on my skullcap. Kind of feels like its bruised and also I have a lingering nueralgia on the cheek bone under my eye on the affected side, Being chronic: its a little different I think, since I have a sort of cycle within my normal daily pattern. It seems to be only present when I increase from my average of 6 to 7 hits a day (3 usually at night) into the 10 to 12 a day range. I also find that after my attacks, it takes about 20 to 30 minutes to regain normalsy, I kind of have to rest from the effort it takes physically to endure the hits. Ok I'm babbling again! Pappy
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« Last Edit: Dec 27th, 2006, 6:45pm by sailpappy » |
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BigCoffinHunter
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The man in black fled across the desert
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Re: Residuals
« Reply #6 on: Dec 27th, 2006, 6:59pm » |
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Holy friggin crap, I cannot even imagine that many hits a day. Man you have my serious respect for being able to deal with that.
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Ob1kanobee
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Re: Residuals
« Reply #7 on: Dec 27th, 2006, 11:40pm » |
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I had residual pain from an attack that lasted several hours. I was trying for the first time not to take any pain medication. I drank a Red bull before the attack. I finally broke down and drank a Coke with a Goody's Powder and that residual pain went away in less than an hour completely.
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Ob1kanobee
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Re: Residuals
« Reply #8 on: Dec 28th, 2006, 4:57am » |
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Has anyone ever tried breathing o2 for residual pain? Or would that plain just be waisting o2?
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Sandy_C
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Re: Residuals
« Reply #9 on: Dec 28th, 2006, 1:14pm » |
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on Dec 27th, 2006, 6:40pm, sailpappy wrote: Being chronic: its a little different I think, since I have a sort of cycle within my normal daily pattern. It seems to be only present when I increase from my average of 6 to 7 hits a day (3 usually at night) into the 10 to 12 a day range. Pappy |
| Pappy, you have my utmost respect and admiration! I'm thankfully episodic with 2 hits on a good day, and 4 hits on a bad day with 18 to 24 MONTHS of pain free time between cycles. I cannot even pretend to imagine how I would cope with your number of hits every single day, 24/7/365. I wish that there were some way that I could give you some of my pain free time. Sandy
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Lean on me when you're not strong And I'll be your friend I'll help you carry on For it won't be long Till I'm gonna need Somebody to lean on
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TonyG1
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on Dec 27th, 2006, 6:40pm, sailpappy wrote: ;; Being chronic: its a little different I think, since I have a sort of cycle within my normal daily pattern. It seems to be only present when I increase from my average of 6 to 7 hits a day (3 usually at night) into the 10 to 12 a day range. Pappy [ |
| Pappy -- Ditto on what everyone else has said ... you have my utmost respect and make me feel lucky to be episodic with PF breaks of about 24 months
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sailpappy
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Re: Residuals
« Reply #11 on: Dec 28th, 2006, 11:00pm » |
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Respect and admiration is Good, Pain Free would be better! but all I want is to continue as part of this Great Family, this is how I cope, this and knowing each hit will end as sure as it started. After 36 years of this, I just dont think about it, I just have to live it! Thank God no one threw the "Pity" word in there! Svenn is the other daily sanity gauge I use! What a Friend!!!!!! Pappy
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« Last Edit: Dec 28th, 2006, 11:01pm by sailpappy » |
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MorDog
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Not Again!
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Re: Residuals
« Reply #12 on: Dec 29th, 2006, 10:04am » |
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on Dec 27th, 2006, 6:38pm, BigCoffinHunter wrote:In some ways the residuals (I like that term, I've always referred to them as 'hangover headaches', like the CH gave me a hangover, but that doesn't translate well to normal folks) are almost as bad as the CH. The pain's not as focused and intense, but it's more than enough to ruin sleep for the night. Lack of sleep is what takes its toll on me the worst. |
| I too always thought of them as "hangover headaches" but residuals probably does describe them better. I am suffering through residuals right now. I only seem to get them when I have had 7 or 8 or higher. Last nights CH was an 8.
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Everyone is entitled to their own opinion, but not their own facts.
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