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dave.....
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steroid treatment ??
« on: Nov 20th, 2006, 12:48pm » |
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i am about to start the steroid treatment...... what can i expect ?? will it work ??.........
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vig
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Re: steroid treatment ??
« Reply #1 on: Nov 20th, 2006, 12:55pm » |
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It probably WILL work as long as you stay on them.
It WILL take a toll on your body and your mind too.
Use it as a stepping stone to something else...
Like Verapamil.
It will probably make you hungry and ornery.
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vietvet2tours
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Re: steroid treatment ??
« Reply #2 on: Nov 20th, 2006, 12:56pm » |
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Oxygen first and foremost
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dave.....
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Re: steroid treatment ??
« Reply #3 on: Nov 20th, 2006, 1:05pm » |
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the neurologist gave the script for the steriod's on friday.. i am going to start them tomorow... she didnt want me to start untill after my mri and mra.. i had those done this morning........ i think it is a 6 day program 6 pills one day 5 the next 4 the next etc........ will it stop my cycle ????????...also i have started taking depokote again..... and ultracet for pain..... i dont think they are working ??
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E-Double
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Re: steroid treatment ??
« Reply #4 on: Nov 20th, 2006, 1:07pm » |
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on Nov 20th, 2006, 12:55pm, vig wrote:It probably WILL work as long as you stay on them.
It WILL take a toll on your body and your mind too.
Use it as a stepping stone to something else...
Like Verapamil.
It will probably make you hungry and ornery.
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be prepared to eat your first born or at least your car.
Get oxygen and some jabs of trex.
the ultracet will probably not help.
Depakote is a crpshoot.
verapamil is more likely a better alternative if your boddy can handle it. Standard release NOT extended
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dave.....
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Re: steroid treatment ??
« Reply #5 on: Nov 20th, 2006, 1:28pm » |
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great as if i dont eat too mutch as it is.... i didnt think the ultracet was working..... tried the jabs of imitrex... did not work..........??
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BigCoffinHunter
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Re: steroid treatment ??
« Reply #6 on: Nov 20th, 2006, 1:28pm » |
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on Nov 20th, 2006, 1:05pm, dave..... wrote:| the neurologist gave the script for the steriod's on friday.. i am going to start them tomorow... she didnt want me to start untill after my mri and mra.. i had those done this morning........ i think it is a 6 day program 6 pills one day 5 the next 4 the next etc........ will it stop my cycle ????????...also i have started taking depokote again..... and ultracet for pain..... i dont think they are working ?? |
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The steroids will probably keep you pain free while you are on them. You should get on Verapamil or one of the other regular preventatives. Narcotic painkillers will do nothing but make your pain worse. You need Imitrex or one of the other triptans, and oxygen to kill the pain.
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E-Double
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Re: steroid treatment ??
« Reply #7 on: Nov 20th, 2006, 1:31pm » |
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on Nov 20th, 2006, 1:28pm, dave..... wrote:| great as if i dont eat too mutch as it is.... i didnt think the ultracet was working..... tried the jabs of imitrex... did not work..........?? |
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Zyprexa 
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I can't believe that I have to bang my
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Gonna take a breath and try again.
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AfraidOfTheDark
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Re: steroid treatment ??
« Reply #8 on: Nov 20th, 2006, 1:41pm » |
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The steroid taper has always worked for me with no noticable side effects. At least none I have noticed. Usually one week of steroids killed my cycles, though occasionally I'd have to take two weeks worth. However, on my last cycle I did two weeks of steroids (with a week in between, I think) and the CH came back with a vengence. Afterwards, instead of only having attacks at night, I started getting them during the day as well. I wasn't allowed to try another taper so I tried Verapamil. It worked well. I'm heading into a new cycle and I'm hoping the Verapamil will help this time around too.
Good luck!
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dave.....
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Re: steroid treatment ??
« Reply #9 on: Nov 20th, 2006, 1:46pm » |
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yeah i get them day and night......sometimes realy bad... just got over one that lasted about a hour
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BigCoffinHunter
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Re: steroid treatment ??
« Reply #10 on: Nov 20th, 2006, 1:51pm » |
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The steroids can have nasty side effects. This past cycle I went 2 rounds of dexamethasone, two weeks each. Horrible heartburn, enough to make me stop what I was doing for a few minutes. I broke out all over, shoulders and chest were (and are still recovering), some other stuff that my doctor thinks was aggravated by the steroids. On the other hand I was CH free for the time. I'd do it again, but just be aware the side effects can really suck.
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dave.....
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Re: steroid treatment ??
« Reply #11 on: Nov 20th, 2006, 2:15pm » |
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thank you for the heads up on the side effects...... but right now........ anything is better than these headaches.......
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kcopelin
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Re: steroid treatment ??
« Reply #12 on: Nov 20th, 2006, 2:35pm » |
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Dave,
Sounds like a good taper, but you really need to be starting the preventatives. Can't stay on Pred or whatever steroid for long without SERIOUS side effects. This cycle I did three tapers CH returned after each one. Have done a total of about 20 tapers since this started 1/4 of a century ago-I now have ospeopenia-pred eats bones. Have just recently lost the 25 lbs I gained from the last go round with pred. HOWEVER, there is a reason its called a pred holiday-it usually will give you a few days painfree.
Hope it works for ya!
PFDAN y'all
kathy
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dave.....
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Re: steroid treatment ??
« Reply #13 on: Nov 20th, 2006, 2:52pm » |
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will the depakote help ??
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vietvet2tours
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Re: steroid treatment ??
« Reply #14 on: Nov 20th, 2006, 3:11pm » |
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on Nov 20th, 2006, 2:52pm, dave..... wrote:| will the depakote help ?? |
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oxygen will help and ya never mention it
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| « Last Edit: Nov 20th, 2006, 3:11pm by vietvet2tours » |
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dave.....
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Re: steroid treatment ??
« Reply #15 on: Nov 20th, 2006, 3:16pm » |
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how do i get oxygen ??? from the d.r. ??
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vietvet2tours
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Re: steroid treatment ??
« Reply #16 on: Nov 20th, 2006, 3:19pm » |
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Yep or jest lease yer own tank at a welders supply store.
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Tara Ann
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Re: steroid treatment ??
« Reply #17 on: Nov 20th, 2006, 3:52pm » |
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yup what they all said.......STARVING, moody (well actually more accurately put as SUPER BITCH) my face swells some and breaks out ALOT....
BUT I am a very, very med resistant chronic and steroids give me a break more often than anything else I've tried (I'd estimate about 75% of the time it works for a week or two) and thats an awesome # for me personally.....
Like others said it's good to used while a prevent kicks in, .... hopefully you have a good WORKING prevent to try......
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chewy
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Re: steroid treatment ??
« Reply #18 on: Nov 20th, 2006, 5:23pm » |
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Quote:Use it as a stepping stone to something else...
Like Verapamil.
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Stepping stone? I wouldn't.
I would get on the verapamil before or at least during the pred taper so that the preventative will reach a theraputic level by the time you get to the lower doses of of the pred.
Caution: Prednisone will induce you to consume neighborhood domestic pets.
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chopmyheadoff
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Re: steroid treatment ??
« Reply #19 on: Nov 22nd, 2006, 5:15am » |
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on Nov 20th, 2006, 5:23pm, chewy wrote:
Stepping stone? I wouldn't.
I would get on the verapamil before or at least during the pred taper so that the preventative will reach a theraputic level by the time you get to the lower doses of of the pred.
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i think this is whats meant by "stepping stone"
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psycofemale0403
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Re: steroid treatment ??
« Reply #20 on: Nov 22nd, 2006, 9:43am » |
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Dave~
Prednisone does stop my cycle.. HOWEVER.. The side effects kill me. It kills my muscles. My face turns into a basketball, which hurts like a SOB, and I have this HORRIBLE taste in my mouth the whole time I'm on it! Also, my head feels like It's trying to push through the front of my face. I've been off of it for four days now, and they have come back. I'm waiting to get into a new neorologist to try something new, I refuse to go back on steroids. The last one was a quack! I also take Maxalt as an abortive.. The ones that melt on your tounge. I'm also taking 200 mg of Topamax per day. That's a migrane preventative. ( I get those too.)
And.. I've taken Depakote before.. did nothing for me.
Good luck to you.. and HAPPY TURKEY DAY!
Lisa
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dave.....
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Re: steroid treatment ??
« Reply #21 on: Nov 22nd, 2006, 10:19am » |
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day 2 of the steroid treatment....... a few medum hits last night and today....so far it seems to be working..... although i feel a little stoned ??? is that normal ??
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Lafinwolff
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Re: steroid treatment ??
« Reply #22 on: Nov 22nd, 2006, 2:03pm » |
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I am in my second week of a 5 week steroid cycle. I am still getting hits, though I am missing a few and the ones that get through are not quite as bad.
My mood has been good, considering. I thought they might be going away! Now I am afraid that the steroids are just covering it up and they will come back full force when they are done!
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BigCoffinHunter
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Re: steroid treatment ??
« Reply #23 on: Nov 22nd, 2006, 2:21pm » |
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on Nov 22nd, 2006, 2:03pm, Lafinwolff wrote:
My mood has been good, considering. I thought they might be going away! Now I am afraid that the steroids are just covering it up and they will come back full force when they are done! |
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That is generally what happens. Usually when you taper off the steroids the CHs come right back, unless you had started another preventative during the steroid run.
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dave.....
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Re: steroid treatment ??
« Reply #24 on: Nov 27th, 2006, 8:37am » |
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yesterday was the last day of the steroid plan...... last night they started again....... not bad.......... yet ??
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