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   Author  Topic: How many  (Read 357 times)
keithr1024
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brainstew anyone?

   


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How many
« on: Nov 16th, 2006, 6:27pm »
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  How many of you generally just feel like complete and utter dog doo while in cycle...pred taper made me feel pretty good but after taper was done .....dog doo 89% of the time i feel like i'm sliding in and out of shadows... sometimes minutes sometimes just a few seconds.. dizzy sensations.. exshustion...dazed....just crap . there are periods of the day i feel fine but mostly not .7 weeks in and feeling toatally spent physically, emoitionally . anyway i'd like to know
« Last Edit: Nov 16th, 2006, 6:46pm by keithr1024 » IP Logged
BarbaraD
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Hugs to ya

   
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Re: How many
« Reply #1 on: Nov 16th, 2006, 7:01pm »
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Your symptoms don't sound "unusual" to me. Doesn't everyone feel that way (I'm chronic - going on 9 years now)?  Wink
 
Yes, you're tired, feel rotten, exhausted, etc., etc., etc. but in a few more weeks you'll be out of cycle and will feel better. Just look for the end of the tunnel.  
 
Try Melatonin (9-12mg) at night to get some "much needed" rest. It takes a week or so to start working right, but it's worth the effort to stay on it. Resting at night will help you get thru the days. You can get it at any drug store (look in the vitamin isle).  
 
Hope you're feeling better soon. And I'm just laughing with you -- we all feel this way. Just one of the perks of being a Clusterhead.  
 
Hugs BD
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What don't kill ya, Makes ya stonger!

keithr1024
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brainstew anyone?

   


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Re: How many
« Reply #2 on: Nov 16th, 2006, 7:06pm »
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thanks just checking
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yikes-another-one
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  dancenshout2002   joyflheart2004
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Re: How many
« Reply #3 on: Nov 16th, 2006, 10:14pm »
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Smiley
 
3 most bothersome feelings:
 
1) Ladck of energy
 
2) lack of memory
 
3) Lack of organizational skills.
 
I went 10 plus months in a abnormal cycle...
at least 4 headache every day....
and had to go onto a steroid for three days...
(I got a wisdom tooth extracted...not hoping
to reduce theheadache...wink...)
what ever they put me on was amazing....
 
for three days I had plans and memoeries and energy
and felt like my old old self....
then the steroid tapered off....and whamm
hit the wall again....back to feeling tired out
after standing for ten minutes....
back to carrying pen and paper everywhere I went...
 
Now I had had the CH for about 9 years up to 2005
when I got the widom toot h pulled....
and it prooved to me that this thing doesn't
really cause "brain damage" but the brain damage
is a "side-effect" of the disorder....
 
SO now, how to get our "selves" back without  
taking a steroid....hmmmmmmmmm
that would be the next research grant I would pay for.
hugs,
Tamara
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Richr8
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Re: How many
« Reply #4 on: Nov 16th, 2006, 10:28pm »
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on Nov 16th, 2006, 6:27pm, keithr1024 wrote:
  How many of you generally just feel like complete and utter dog doo while in cycle...pred taper made me feel pretty good but after taper was done .....dog doo 89% of the time i feel like i'm sliding in and out of shadows... sometimes minutes sometimes just a few seconds.. dizzy sensations.. exshustion...dazed....just crap . there are periods of the day i feel fine but mostly not .7 weeks in and feeling toatally spent physically, emoitionally . anyway i'd like to know

 
I could have written this.  Very typical.  It will improve again.
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pf wishes,

Rich



...because yesterday is history and you never know what tomorrow will bring.
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aura
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Posts: 13
Re: How many
« Reply #5 on: Nov 18th, 2006, 3:18am »
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I feel the same way. I get dizzy, I loose coordination, and so on. I think part for me is that all I can do is eat sleep when I don't have pain. I do not drive out of the city cause what would i do with my little girl on the highway when I have a headache, so I stay home which depreases you more and the cycle continues.  
 
The thing i do is say out loud through the cycle, this will end, it will go away, because sometimes in the middle you forget that they end. Anyways the point is I feel the same. Just remeber that they will end, and after you feel great. Grin
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sailpappy
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  sail_pappy   sailpappy1
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Re: How many
« Reply #6 on: Nov 18th, 2006, 9:45am »
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Grin Roll Eyes  Cycle's----I don't have no stinking cycles!  I know what you mean though!  Being Chronic (7 days a week, 365 a year, I only wish I had cycles!)with Chronic Hep C I live in a state of exhaustion!
      I have been taking 24 mg of Melatonin(Yep 8/3mg tab's) at night to help with the sleep, still have the 3 or 4 night time hits, but I can actually rest when I am asleep!
      I am wondering now if the Melatonin is part of the exhaustion problem though?  anyone, anyone??
                                                   Pappy
« Last Edit: Nov 18th, 2006, 9:45am by sailpappy » IP Logged
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