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Topic: A little help from my friends (Read 478 times) |
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brian trudeau
New Board Newbie
his arms are around me and his tounge in my eye
 
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Posts: 27
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A little help from my friends
« on: Nov 13th, 2006, 4:41pm » |
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Hello I originally posted in Getting to Know Ya area under the Subject "hello cluterheads" and was hoping for some feedback before trying some meds out that I was perscribed
http://www.clusterheadaches.com/cgi-bin/yabb/YaBB.cgi?board=knowya;actio n=display;num=1163127007;start=0
or if you could just go to the message board and let me know what you think that would be great
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...but then you make me crawl..and I cant be holding on to what you got...when all you got is hurt...
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George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
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Posts: 4222
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Re: A little help from my friends
« Reply #1 on: Nov 13th, 2006, 4:50pm » |
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Hi Brian,
Don't worry. We saw it there. Most of us check all the areas looking out for new people. I'm sure you'll get some valuable responses. I don't medicate, so I'm not the best person to respond to your queries--but there will be others, I'm sure, whose answers will be more to the point.
Best wishes, and welcome,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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chopmyheadoff
New Board Old Timer
Its only a headache, deal with it - SMACK
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Posts: 481
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Re: A little help from my friends
« Reply #2 on: Nov 14th, 2006, 10:00am » |
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on Nov 13th, 2006, 4:50pm, georgej wrote:
 
cant or wont ?
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George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
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Posts: 4222
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Re: A little help from my friends
« Reply #3 on: Nov 14th, 2006, 10:28am » |
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on Nov 14th, 2006, 10:00am, chopmyheadoff wrote:
cant or wont ?
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Won't. But I'm not the only one, chop. 
It all depends on what is the best decision for a particular person. For some, choosing to medicate is not an option--their CH is simply too tenacious and too disabling to do anything else. Others (like me) have had the experience that medication itself has extended cycles or increased the frequency of hits, and have chosen not to medicate.
This point has been discussed several times in recent threads. You and I have talked about this before, for that matter.
I don't advocate either way. For me, the best choice was to cease treating them aggressively. For others, for whatever reason, that is not an option--or, perhaps, their experience with medication has been more positive. I don't discuss more contemporary treatments for CH, because I simply don't use them, and have no experience with them.
We can make the choice not to medicate with this condition--it won't kill us outright if untreated. People have lived with this, unmedicated, for thousands of years. For some of us, it's been the better choice. For others, of course, that is not true.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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sailpappy
New Board Old Timer
 
Gender:
Posts: 349
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Re: A little help from my friends
« Reply #4 on: Nov 15th, 2006, 7:17am » |
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 I fully agree with GeorgeJ on this matter!
What are you going to do when the Verapamil stops working, thats what happened to me.
when you reach the point of making a decision based on result of the med's, its a personal thing.
Been through %98 of all the medications and I find it much easier to deal with them and then move on, with some med's your consumed with worry about getting to the medication when needed and keeping the Pill schedule!
I had to ask myself, is it worth all the side affects to try for a treatment at all, when nothing has worked?
So its Med free for me! Hurrah! Pappy
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roy21302
CH.com Alumnus
New Board Old Timer
I love YaBB 1G - SP1!
Gender:
Posts: 348
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Re: A little help from my friends
« Reply #5 on: Nov 15th, 2006, 10:50am » |
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George and Pappy,
I agree with you guys, I have learnt over the years that the least meds the better. I still use Verap, but stop them when ever I can. I must have tried nearly everything on the list, but now find less is best. Mind you having said that, I swear by my O2. As you say though---- every one is different, I least I don't feel like a guinea pig any more. PF wishes to all
Cheers Roy
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