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Topic: My Cluster Cure (Read 4927 times) |
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ghostwriter
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| « Last Edit: Jan 21st, 2007, 6:14pm by ghostwriter » |
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| « Last Edit: Jan 21st, 2007, 6:14pm by ghostwriter » |
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George_J
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Re: My Cluster Cure
« Reply #2 on: Oct 13th, 2006, 1:31am » |
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on Oct 13th, 2006, 1:20am, ghostwriter wrote:Hi again, I have been reading some of the posts in the thread and I hope none of you think I am trying to sell anything here. LOL...
Maybe I will be flamed for posting what I did, but after teo years of no episodes I thought I waited long enough. (my cycles average 10-14 months between and the last was Spring/Summer 2004.)
Like I said, I will get a translator and post the recipe and if any of you try it I pray it brings you the relief it has brought me. (Assuming it was the brew and not some temporary respite. << Now, there's cynical for ya!!) |
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I'm listening, but you'll pardon me if I reserve having an opinion about this until some other people try it, and there comes a reasonable explanation why it might work. Fair enough?
After all, it is entirely possible on the basis of one anecdotal experience that the reason your cycle came to a halt could be something other than the brew.
Sound reasonable?
Best,
George
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| « Last Edit: Oct 13th, 2006, 1:42am by George_J » |
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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BB
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Re: My Cluster Cure
« Reply #3 on: Oct 13th, 2006, 1:48am » |
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Just a thought :
If some Chinese medicine brew can cure CH, I thought that someone in China would have been a billionaire by now patenting and selling it!
CH and medication for CH are being studied in many universities and hospitals in China. I dont think the Chinese doctors and specialists would bother to do so if they already have the cure in their backyard.
Your lovely wife would have bought the herbal ingredients from a Chinese herbalist shop, why dont you go there and talk to the dispenser and ask for more details as to whats in there, how do they work and what are the side effects and long term effects please before recommending it as a "cure" for CH in a public forum?
I have no intention to flame anyone but whoever wishes to post medical and pharmaceutical advices on a public board , especially as a "cure", should do so with caution in case your good intention bring unexpected harm to others.
Painfree wishes to all
Annette
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Chillrmn1
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Interested to see the ingredients of your brew and hopefully Flo will be by to offer his analysis.
Glad it seems to be working for you!
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Giovanni
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Re: My Cluster Cure
« Reply #5 on: Oct 13th, 2006, 8:06am » |
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on Oct 13th, 2006, 6:35am, Chillrmn1 wrote:Interested to see the ingredients of your brew and hopefully Flo will be by to offer his analysis.
Glad it seems to be working for you! |
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If it works for you great  Let us know what the brew is when you can.
John
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Sandy_C
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Re: My Cluster Cure
« Reply #6 on: Oct 13th, 2006, 2:43pm » |
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Welcome to the boards. I'm glad your wife's "medicine" seems to have helped you. I think it might be a little too early to use the "cure" word, which you've learned from reading these boards, makes all us us somewhat skeptical.
I would be very interested in learning her recipe, as I am sure many of the rest of us are too. Please try to post it here as soon as you can translate it.
Again, welcome.
Sandy
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floridian
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on Oct 13th, 2006, 1:48am, BB wrote:
Just a thought :
If some Chinese medicine brew can cure CH, I thought that someone in China would have been a billionaire by now patenting and selling it!
Annette |
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My take is a little different - if kudzu has been used for treating headache in Asia for thousands of years, why did we only learn of it 2 years ago? Maybe since it has been used for so long, it isn't eligible for a patent, and there is a financial dis-incentive for any western company to even consider it??
I was in Chinatown-Orlando a while back and got some herbal migraine stuff ... angelica was a key herb, don't remember the other ingredients.
I'm also curious to see what was in the brew that ghostwriter quaffed.
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Jonny
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Re: My Cluster Cure
« Reply #8 on: Oct 13th, 2006, 4:49pm » |
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Some how the word "Cure" does not fit here 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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no-one
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Re: My Cluster Cure
« Reply #9 on: Oct 13th, 2006, 6:16pm » |
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Hi,
Look here this might interest you.
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Keishi-bukur yo-gan
Good luck with keeping them at bay, let us know what is in the tea, as soon as you find out
PF wishes
b
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BikerBob
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Re: My Cluster Cure
« Reply #10 on: Oct 13th, 2006, 6:46pm » |
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on Oct 13th, 2006, 4:13pm, floridian wrote:
My take is a little different - if kudzu has been used for treating headache in Asia for thousands of years, why did we only learn of it 2 years ago? Maybe since it has been used for so long, it isn't eligible for a patent, and there is a financial dis-incentive for any western company to even consider it??
I was in Chinatown-Orlando a while back and got some herbal migraine stuff ... angelica was a key herb, don't remember the other ingredients.
I'm also curious to see what was in the brew that ghostwriter quaffed. |
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Good points, Floridian. I agree.
There's a huge Chinese medicine store in central Chinatown, San Francisco. It has thousands of jars/bottles/boxes of stuff. I'll stop in some time next week, describe CH in detail, and see what the Chinese "pharmacist" has to say. I'll also ask about the ingredients in ghostwriters brew and what they're used for if he posts them by then.
BB
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BB
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Re: My Cluster Cure
« Reply #11 on: Oct 13th, 2006, 8:56pm » |
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on Oct 13th, 2006, 4:13pm, floridian wrote:
My take is a little different - if kudzu has been used for treating headache in Asia for thousands of years, why did we only learn of it 2 years ago? Maybe since it has been used for so long, it isn't eligible for a patent, and there is a financial dis-incentive for any western company to even consider it??
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My DH has not tried kudzu so I am not sure of how well it works.
People who have used Kudzu can you please advise whether or not it can block or stop a cycle from developing as our new friend's herbal brew described as above?
Thanks and painfree wishes to all.
Annette
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kcopelin
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Re: My Cluster Cure
« Reply #12 on: Oct 13th, 2006, 9:03pm » |
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I'm sorry Annette, kudzu didn't work for me, and it gave me such bad gas that I drove my husband and son outside one night 
but it helps some folks-let's hear from them...
kathy
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Melissa
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Annette, if you look on the Medications & Treatments section of the website, you can read about peoples experiences with Kudzu.
I had bumped up the threads earlier.
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Jonny
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Re: My Cluster Cure
« Reply #14 on: Oct 13th, 2006, 9:19pm » |
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What works (If it does) for one dont work for all.
Calling anything a cure is pure BS.......tell me about a cure when it has worked for YOU for twenty years!!!!
Dr Goadsby has not worked for years to be out done by some herb......LOL 
Good luck to you, Ghost dude.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Charlotte
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Re: My Cluster Cure
« Reply #15 on: Oct 13th, 2006, 9:39pm » |
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on Oct 13th, 2006, 8:56pm, BB wrote:
My DH has not tried kudzu so I am not sure of how well it works.
People who have used Kudzu can you please advise whether or not it can block or stop a cycle from developing as our new friend's herbal brew described as above?
Thanks and painfree wishes to all.
Annette
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I will PM you, but I won't discuss kudzu on this thread.
Charlotte
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BikerBob
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Re: My Cluster Cure
« Reply #16 on: Oct 13th, 2006, 9:48pm » |
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on Oct 13th, 2006, 9:19pm, Jonny wrote:
Dr Goadsby has not worked for years to be out done by some herb......LOL
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He already got outdone by a mushroom LOL
BB
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Jonny
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Re: My Cluster Cure
« Reply #17 on: Oct 13th, 2006, 9:52pm » |
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on Oct 13th, 2006, 9:48pm, BikerBob wrote:| He already got outdone by a mushroom LOL |
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Big diff between a prevent and an a cure.......No?
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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BB
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Re: My Cluster Cure
« Reply #18 on: Oct 14th, 2006, 1:53am » |
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Hi everyone,
I went to the biggest Chinese herbal shop in Chinatown in Sydney and asked for some remedy for clusterheadache. This led to a most interesting experience to say the least.
By the way, I am half Chinese and my dear Chinese mother had cooked and fed me various Chinese herbs through the years so I am not that unfamiliar with them.
( Maybe thats why I studied medicine so that she could stop giving me these awful tasting brews?  ) So I am not looking at this from a racist point of view by any mean.
I got to see the "doctor" who by the way has no recognisable qualification. Upon questioning he told me that his great grandfather was a physician in China and his various " medicinal secrets" have been handed down through the generations now to him. He has never studied medicine. Also the secret formulae can only be passed onto sons and not daughters so he is trying very hard to "get" a son so that the business can continue! He was quite reluctant when asked about what are the ingredients and how they work. He was suspicious that I had been sent from one of his competitors to "steal" his great grandfather 's secret formulae!
Anyhow, we got to the examination part. I told him that its for my DH and explained the symptoms. I asked him if he should see and talk to and examine my husband to get a better idea of the general health and of his condition. I was told no, there is no need to see the patient ! I gather Ghostwriter wasnt seen by whoever prescribed his wife the herbs either. To me this is quite irresponsible and potentially dangerous. What if my DH has a deadly allergy to some of the ingredients in the herbs?
After listening to my description of CH, the "doctor" went off and collected from the various jars and drawers bundles of dried herbs and weighed them and put them into a paper bad for me. Again he evaded my questions of whats in them and how they work. All that I could get out of him was that they lower blood pressure and some are pain killers and muscle relaxants. The main ingredients thats going to "cure" the headache must remain a family secret!
I was then taught how to cook them in an earthern urn, a special one that I needed to buy from him as cooking in metal utensils will render the herbs useless  . I was to add 1.2 L of water, bring it to the boil then simmer until most of the water has vaporised and only 1 smal bowl of the brew is left. He also stressed that I must give it to my DH to drink while its still hot, as once its gone cold it wont work anymore.
My last question to him was is this only for clusterheadache or can I use it myself in case I get a really bad headache. To this, without asking me what sort of headache I have or whether or not I may be pregnant, he cheerfully said that I indeed could use it too, its very good for all "bad" headaches but I would need to buy another dose. What he had sold me was for one dose only and people often need several doses before they are "cured".
I have the paper bag with all its ingredients here if anyone would like to try. My DH decided he would pass!
If anyone else takes a trip to your Chinese herbalist in the same quest, would you please be so kind as to post your experience here? I hope someone else will get better information than I did.
Thank you all for reading. Sorry about the long post.
Painfree wishes to us all.
Annette
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George_J
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Re: My Cluster Cure
« Reply #19 on: Oct 14th, 2006, 2:21am » |
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on Oct 14th, 2006, 1:53am, BB wrote:
I went to the biggest Chinese herbal shop in Chinatown in Sydney and asked for some remedy for clusterheadache. This led to a most interesting experience to say the least.
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Hmm.
Interesting, indeed.
Thank you, Annette.
Best wishes,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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BikerBob
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Re: My Cluster Cure
« Reply #20 on: Oct 14th, 2006, 3:37am » |
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on Oct 14th, 2006, 1:53am, BB wrote:
To me this is quite irresponsible and potentially dangerous.
What he had sold me........
I have the paper bag with all its ingredients here if anyone would like to try. My DH decided he would pass!
Annette |
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Why did you buy it and offer it to your DH if you didn't know what it was? Are you really a doctor?
BB
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| « Last Edit: Oct 14th, 2006, 4:02am by BikerBob » |
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BB
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Re: My Cluster Cure
« Reply #21 on: Oct 14th, 2006, 4:25am » |
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on Oct 14th, 2006, 3:37am, BikerBob wrote:
Why did you buy it and offer it to your DH if you didn't know what it was? Are you really a doctor?
BB
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You really like me dont you Bob ? You seem to follow me around the board posting the most ridiculous questions trying to get my attention.
Dont know what you want but if you are trying to upset me or flame me then you need to try much much much harder than that !
Annette
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sandie99
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Re: My Cluster Cure
« Reply #22 on: Oct 14th, 2006, 6:26am » |
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Ghostwriter, welcome. I am glad that you've come across something which helped you with your ch. Like it has been said, one thing does not work on us all. But personally I'm always ready to read about new success stories. I hope that your wife's receipe keeps on working for you!
best wishes,
Sanna
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Brew
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Re: My Cluster Cure
« Reply #23 on: Oct 14th, 2006, 8:39am » |
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Quote:| The main ingredients thats going to "cure" the headache must remain a family secret! |
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Ancient Chinese secrect, eh? Calgon?
(for those over the age of about 45 or so)
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kcopelin
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Re: My Cluster Cure
« Reply #24 on: Oct 14th, 2006, 10:09am » |
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Wow Annette, now that was real detective work there. Dang interesting that he wouldn't tell ya what was in the concoction. I am not one to bash Chinese medicine since it has been around longer than"western medicine". And I guess, truth be told, I don't know the ingredients in my zomig-well I can read them but that doesn't mean I know what I'm reading. How much did one dose cost ya? Anyway to have it analyzed?
Could you send it to ghostwriter and see if its the same stuff?
Annette, thank you for being here!
kathy
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