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Topic: Migraine or CH? (Read 284 times) |
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patmat
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Migraine or CH?
« on: Oct 12th, 2006, 11:46am » |
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Just discovered the site, lots of news to me! Thanks all.
I'm going in to see my doc tomorrow, looking for some moral support here... I think my headaches of some 25 years now might be cluster not migraine, even though Doc previously diagnosed migraine (after previous doc told me to see a shrink!).
Anyway, here's why I think I might have CH. Anyone agree/disagree that the symptons are in the realm of CH?
- Eyeball wants to explode out of my head.
- Always have sinus congestion at same time.
- ALWAYS on one side only (left).
- Pain is uncomfortable, but NOT high KIP… maybe a 5? Just keeps me from concentrating on tasks, etc.
- It's been the same pain level for all these years.
- Some periodicity- often random, other times, will get 1 attack per day at about same time for a week.
- Longest period with no attacks: maybe 3-4 days.
- Untreated, discomfort lasts a few hours.
- May be accompanied with pain in left temple, left/back neck, nausea.
- Never had auras.
- Usually responds well to triptan (Zomig), but may take an hour for full relief.
- Nope, never tried any of the others abortives, and Toprol & Topamax do nuthin'.
Thanks,
Patrick
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BigCoffinHunter
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Re: Migraine or CH?
« Reply #1 on: Oct 12th, 2006, 11:49am » |
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The fact that it's not a high kip makes me wonder. Usually they are so wrechedly painful that I am rolling on the floor whimpering. The pain also rarely lasts hours. What kind of tests have been done so far? Some symptoms sound clusterish...others not so much.
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Richr8
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Re: Migraine or CH?
« Reply #2 on: Oct 12th, 2006, 11:56am » |
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Patrick,
Hello and welcome. It sounds like you have many the classic symptoms for CH. Have you taken the cluster quiz on the left? This will hep you determine whether or not you really have CH. Also, before you go to the doc, read up here:
http://www.brightok.net/~mnjday/chtherapy.pdf
Many of the best treatments are captured although there is no known cure. I would also suggest that you read al of the information about Oxygen (also on the left panel)as it brings relief to many of us in aborting attacks. If it is determined that you do have CH, do not leave his office without a script for Oxygen.
Please read all that you can and just ask any questions you may have. There is usually someone here 24/7.
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| « Last Edit: Oct 12th, 2006, 11:58am by Richr8 » |
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
"Med free"- A few seeds and lots of O2-LG but not great.
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TxBasslady
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Re: Migraine or CH?
« Reply #3 on: Oct 12th, 2006, 1:16pm » |
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I agree with Rich.
Take the quiz. Let us know how it turns out.
Even though your symptoms have some classic CH characteristics, there are other type headaches you may be suffering with.
Doesn't sound like migraines to me...but I'm not a doc.
Best of luck to you, Patrick. Let us know what you hear from your doc.
Jean
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lionsound
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Re: Migraine or CH?
« Reply #4 on: Oct 12th, 2006, 4:17pm » |
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Hi Patrick,
Is the doc you are seeing a neurologist?
It may be time to get yourself to a headache specialist. You could have CH or migraine or both. I get both and and few extra  . And when they are all mixed up it's hard to sort them out. A good doc can do that and get you proper treatment.
You can also read about Oxygen here on this site, ask the doc about it and that may help you abort the headaches. With me it can abort my CH and sometimes my migraines.
please let us know how you make out.
be well and PF,
lionsound
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patmat
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Re: Migraine or CH?
« Reply #5 on: Oct 12th, 2006, 4:28pm » |
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Thanks all for the comments, hope to learn more shortly.
Lionroar, he's my HMO guy, his job is to prevent me from seeing a specialist.
Pat
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