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Topic: CH and HEIGHT - A SURVEY (Read 4619 times) |
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BB
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CH and HEIGHT - A SURVEY
« on: Sep 10th, 2006, 9:26am » |
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Hello everyone,
Just one curious question but potentially can be quite interesting and important.
How tall are people who have CH?
The 2 neurologists that we saw both commented that most of their CH patients are very tall, all above average. I also read on one of the research papers that most CH sufferers are the tallest in their family.
This raises an interesting question. Dr Goadsby recently discovered that there is some anatomical abnormality in the cell structures of the hypothalamus of people suffering from CH. Therefore potentially CH sufferers could be born with it. The question then is what triggers the hypothalamus to start to malfunction and when.
I also notice that although the most common age for CH diagnosis in men is about 30 but when looking back into the history many if not all would have symptoms of CH well before that age, just not severe enough to be recognised as CH. This may mean that the hypothalamus starts to malfunction quite earlier on, maybe in the teenage years. As the hypothalamus produces growth hormones as well as other chemicals, if it malfunctions around puberty it could cause excessive growth as in height.
As for women with CH, 2 interesting observations so far, one is that they dont get cluster during pregnancy , secondly the peak occurence time is different to men, either much earlier as in late teens or post menopausal as in after 50s. This indicates hormonal effects on the function of the hypothalamus during a cycle.
I wonder if the medical experts can work out what causes the hypothalamus to malfunction and when, plus what hormones can prevent a cycle as in a pregnant woman, we may come much closer to a cure of a disease or at least to prevent a cycle from becoming full blown.
My DH is certainly the tallest in his family by far at 6'2. Many people here who have posted their height seems to be in the 6ft range as well.
I looked at the survey on the left hand side for this information but didnt see this included.
Would you mind post here about your height to see if we can get some form of a survey, please. I know this is by no mean a comprehensive survey but it may start showing some trend.
The average height for Caucasian women is 5'4 and Caucasian men is 5'8.
Please see this link for reference to the height chart:
http://www.halls.md/chart/height-weight.htm
Thank you very much for all who wish to anticipate. 
Painfree wishes to us all.
Annette
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| « Last Edit: Sep 10th, 2006, 10:57am by BB » |
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nani
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Re: CH and HEIGHT - A SURVEY
« Reply #1 on: Sep 10th, 2006, 9:51am » |
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I think those drs must have a limited perspective...
I'm only tall when compared to 5 year olds. 5'2" when I'm standing very straight.
My first cycle was at age 16, although I have some earlier memories of very bad headaches, but I can't recall how they hurt. I was 2 weeks post partum for the first cycle.
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Melissa
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Re: CH and HEIGHT - A SURVEY
« Reply #2 on: Sep 10th, 2006, 9:53am » |
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Acutally, you'll find on the cluster women's side, they're shorter than average.
I'm just average. 5'7" and episodic.
Oh, and some women DO get ch's while pregnant.
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JohnM
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Re: CH and HEIGHT - A SURVEY
« Reply #3 on: Sep 10th, 2006, 10:05am » |
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5'8"
And you are clutching at straws here!
John
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Theresa
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Re: CH and HEIGHT - A SURVEY
« Reply #4 on: Sep 10th, 2006, 10:14am » |
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5'2" and by far the shortest in my family.
I had my first cluster cycle when I was 20.
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lionsound
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Re: CH and HEIGHT - A SURVEY
« Reply #5 on: Sep 10th, 2006, 10:16am » |
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5'6" Tall and I got clusters while pregnant.
peak times in my teens (and most likely before) , twenties, and thirties.
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unsolved1
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Re: CH and HEIGHT - A SURVEY
« Reply #6 on: Sep 10th, 2006, 10:19am » |
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Started having full blown clusters @ 19 yrs of age. I'm 6'0 - 6'1" ... but I'm not the tallest in the family by far. Both my brothers are taller than me. My 16 yr old nephew is 6'3" & still growin'.
@ 6'1" & 200 lbs ... I'm the little guy !! 
UNsolved
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BB
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Re: CH and HEIGHT - A SURVEY
« Reply #7 on: Sep 10th, 2006, 10:32am » |
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Thank you very much for posting everyone 
I may be barking up the wrong tree here but its worth a try I guess.
Lets see, so far the height thing doesnt seem to hold true with women but lets wait until some of our male friends come in with their measurements ?
Australia has a much smaller population than the US, in fact there is only 14000 cases of properly diagnosed CH here, so the number of CH patients that the neurologists here have wouldnt be very large but I hope to find out more.
Again thank you very much for participating.
Annette
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Brew
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Re: CH and HEIGHT - A SURVEY
« Reply #8 on: Sep 10th, 2006, 10:39am » |
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Male. Started around the age of 28. 5' 11"
And Melly, 5' 7" is above average for a female. Last I heard, the average American female was 5' 4", and the average American male was 5' 8".
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BB
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Re: CH and HEIGHT - A SURVEY
« Reply #9 on: Sep 10th, 2006, 10:52am » |
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Thanks heaps Brewcrew, I should have included the average height for Caucasian males and females to clarify. Original post now modified.
Anyone interested can Google search for the height chart for different ethnic groups and ages.
Annette
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Re: CH and HEIGHT - A SURVEY
« Reply #10 on: Sep 10th, 2006, 10:58am » |
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First full cycle @ 21 diagnosed at 30
Had bad headaches throughout entire life
5'10 with a stretch and about 200lbs
I have brown hair and brown eyes and do not look like a lion
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maffumatt
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Re: CH and HEIGHT - A SURVEY
« Reply #11 on: Sep 10th, 2006, 11:13am » |
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5'11 175 lbs
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starlight
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Re: CH and HEIGHT - A SURVEY
« Reply #12 on: Sep 10th, 2006, 11:15am » |
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Wow--that IS weird!!!
I am 32--female--starting getting clusters when I was 14.
I am the firstborn of five girls.
I am the tallest person in my family at 5 foot 9 inches--even taller than my father!!!!
Maybe you are onto something!
Star
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kcopelin
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Re: CH and HEIGHT - A SURVEY
« Reply #13 on: Sep 10th, 2006, 11:18am » |
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5' weight-appropriate 
age of onset, 25...chronic at 48
kathy
P.S. everyone in my family is taller than I am-except my 9 yr-old son, who is gaining rapidly.
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| « Last Edit: Sep 10th, 2006, 11:19am by kcopelin » |
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starlight
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Re: CH and HEIGHT - A SURVEY
« Reply #14 on: Sep 10th, 2006, 11:21am » |
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Also I am right-handed, dark brown hair, hazel eyes and I don't think I look like a lion (of course I don' know what people are saying behind my back LOL)!!!
One more thing--disregard if unimportant--I had a head injury when I was 2 years old--my mother thinks that is why I get these--I fell out of a shopping cart onto my head in and hit head right above left eye (side of headaches).
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George_J
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Re: CH and HEIGHT - A SURVEY
« Reply #15 on: Sep 10th, 2006, 11:28am » |
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Male, 6'2", 185 pounds. Started when I was thirteen. Episodic. I have two brothers, both taller than I am. Right-handed, left-sided cluster.
Best wishes with the survey,
George
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BB
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Re: CH and HEIGHT - A SURVEY
« Reply #16 on: Sep 10th, 2006, 11:33am » |
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Hi Starlight,
They do say that CH post head injury ihas been recordeed, but not as common as epilepsy.
But if Dr Goadsby can prove that its anatomically determined by the abnormal cell layers in the hypothalamus then head injury may just be a trigger and not a cause.
Definitely not all people with head injury develop CH or epilepsy.
Painfree wishes to you sweetie.
Annette
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Kevin_M
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Re: CH and HEIGHT - A SURVEY
« Reply #17 on: Sep 10th, 2006, 11:33am » |
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Average height differs for various reasons and area.
U.S. appears to be 5' 9.4" M 5'4" F
Australia 5' 10.2" M 5'4.5" F
Average adult height around the world
(scroll down)
http://en.wikipedia.org/wiki/Human_height
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BB
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Re: CH and HEIGHT - A SURVEY
« Reply #18 on: Sep 10th, 2006, 11:46am » |
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Thank you very much everyone for sharing your personal information.
Thank you Kevin for the link, thats very helpful.
If I can deduct something meaningful out of this survey I will bring it up with Professor Spira and the Headache Australia Organisation and contact Dr Goadsby to see if its worth pursuing. I maybe able to apply for funding for serious research into the topic.
So thank you all for participating.
Painfree wishes to all. Take care.
Annette
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Phil L
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Re: CH and HEIGHT - A SURVEY
« Reply #19 on: Sep 10th, 2006, 3:17pm » |
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5'8'' 148lb 64 years old and shrinking.
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DavidEH
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Re: CH and HEIGHT - A SURVEY
« Reply #20 on: Sep 10th, 2006, 3:42pm » |
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26 year old, 5'10, 170lbs, right hand, brown hair/eyes, right sided orbitals (sounds like a skate board move)...
A bit leonine looking as well (I saw this on one site, and got a kick out of it, all I could think of was the thundercats show from the 80s)...
I am the tallest in my family, but tall compared to the population, not really... I can't dunk..
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| « Last Edit: Sep 10th, 2006, 3:44pm by DavidEH » |
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Re: CH and HEIGHT - A SURVEY
« Reply #21 on: Sep 10th, 2006, 4:56pm » |
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6`3", 185 lbs, 29 years old
Tallest in the family, 5 siblings.
First memory of these HA aged 13 diagnosed aged 27.
Dape
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Re: CH and HEIGHT - A SURVEY
« Reply #22 on: Sep 10th, 2006, 4:57pm » |
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jon019
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Re: CH and HEIGHT - A SURVEY
« Reply #23 on: Sep 10th, 2006, 5:18pm » |
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Hi Annette,
It seems we all crave the WHY of this CH crap. Every friggin thing in my lfe has been subject to intense self scrutiny. Know what? I now care less about the WHY than the WHAT.
Wanna know WHY? Cuz the head injury I got being run over by a car at 4 yrs old is NOTHING I can do anything about.
Cuz the hazel eyes I got (supposed prevalent in clusterheads, ha!) is NOTHING I can do anything about.
Cuz the fact that I am 6' 3" and the tallest (ever) in my family is NOTHING I can do anything about.
Cuz this crap started at age 26 with NOTHING previous to indicate it was coming.
Cuz the pot I smoked copiously when young makes me
no different than most of my contemporaries who neither have Ch nor have even heard of it!
Cuz I smoke and drink (not proud of either) like a billion+ others who also have never experienced or heard of CH .
Cuz there is NOTHING I did to deserve this, nor has anyone else.
PLEASE do not take this wrong. I'd love to know the WHY. Maybe it would help others down the line. Just right now I'd really like to know WHAT exactly ch is.
In cycle again right now, tired, bitter, and despondent. Not exactly the best frame of mind to respond to your genuine interest, just venting I guess.
I wish you PF times and knowledge in your quest.
Regards
Jon
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sandie99
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Re: CH and HEIGHT - A SURVEY
« Reply #24 on: Sep 10th, 2006, 5:20pm » |
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OK now... I'm 147cm tall, I had my first cycle at 21 (I'm 26 now). Apparently the average Finnish woman is supposed to be 164cm tall, so I'm below the average. But many women in my family are rather short. My mum is 157cm tall and so are many of my aunts.
Sanna
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