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CHAIN
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NEED AN ANSWER ASAP PLEASE!
« on: Sep 6th, 2006, 7:24pm »
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I have been informed all my life that something that could cause my episodes is Caffeine. However I have read some of the messages and they all include coffe to prevent the episodes. I am confused....I am in the middle of 3-4 episodes a day of CH and I wanted some input. Should I drink coffee before the episode or is this going to make it worse???
 
Thank you for your input!!!
 
Ciao
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #1 on: Sep 6th, 2006, 7:49pm »
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Hello and welcome
 
Caffeine is a natural brain stimulant and vasoconstrictor.
 
When you drink coffee, it constrics the blood vessels in the brain as well as in the body, but more in the brain. If you drink TOO MUCH coffee, the blood vessels stay constricted for too long reducing blood flow to the brain but then they will have to eventually relax, and then they tend to rebound ie swell instead of just going back to normal size, this causes increased pressure in the brain as well as sudden surge of blood flow, which can cause headaches.
 
But thats normal headaches we are talking about.
 
CH is not your normal everyday headache. Its caused by a malfunction hypothalamus where for some unknown reasons it starts to produce an abnormal amount of serotonin, histamines and other chemicals called neurotransmittors. These chemicals cause the blood vessels inside the brain to swell up to TWENTY times the normal size, leading to excruciate pain. Plus the largest blood vessel , the carotid, when swollen up too big will squash the trigeminal nerve next to it producing intense nerve pain plus other symptoms like droopy eyelid and teary eye.
 
So in cluster headache, one needs to vasoconstrict as quickly as possible to stop the attack, pure 02, imitrex, caffeine etc all do this. Thats why they are used as abortive treatments.
 
One needs to take them really quickly and early though as if the blood vessels have swollen to a certain degree its too late, nothing will work and the attack will continue until the hypothalamus decides to vasoconstrict by itself.  
 
It seems to take the hypothalamus more than 1 hour mostly to realise whats its doing to the body to cause this terrible pain and to do something about it.
 
So if you have CH, caffeine is your friend, but beware of rebound if you use too much or too late.
 
Hope this helps.
 
Painfree wishes to you.
 
 
Annette
« Last Edit: Sep 9th, 2006, 1:13am by BB » IP Logged
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #2 on: Sep 6th, 2006, 7:51pm »
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Coffee is my friend.
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #3 on: Sep 6th, 2006, 7:58pm »
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on Sep 6th, 2006, 7:51pm, maffumatt wrote:
Coffee is my friend.

yuppers
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #4 on: Sep 6th, 2006, 7:58pm »
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on Sep 6th, 2006, 7:51pm, maffumatt wrote:
Coffee is my friend.

 
Yep, me too. Smiley  I try to keep my caffeine consumption fairly low when not in a headache cycle so that when I really need it, I wont need too much to get the job done.  Coffee and ice are my two first lines of defense.
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #5 on: Sep 6th, 2006, 8:05pm »
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Buy a Red Bull drink and slam it down when you feel one coming....that will tell you if its going to help or not.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.

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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #6 on: Sep 6th, 2006, 8:08pm »
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I've gotten to the point where I don't trust people who don't drink coffee. Grin
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #7 on: Sep 6th, 2006, 8:15pm »
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Caffeine and or allmost any safer stimulant is good, seems to kick the hypo thingy into gear as well as what BB says.  
 
Outside of a CH cycle caffeine overdose can cause headaches as well as withdrawal headaches but not CH.
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #8 on: Sep 7th, 2006, 12:49am »
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on Sep 6th, 2006, 7:51pm, maffumatt wrote:
Coffee is my friend.

 
Oh yes, indeed.
 
George
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #9 on: Sep 7th, 2006, 4:59am »
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Annette, I have never seen cluster headaches explained like that, I guess I mean in layman's terms.  I am going to try to remember that the next time somebody looks at me with a yeah it's just a headache look.
 
Hello again Chain, coffee I guess like anything can be overused, but I personally have never had an attack caused by it.  Unless it takes 3 hrs later for it to happen.
Hmmmmmmmmmm
 
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #10 on: Sep 7th, 2006, 5:14am »
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Coffee and ice packs to the head help me keep the early morning shadows from becoming full blown CH
 
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #11 on: Sep 7th, 2006, 7:50am »
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i think your being confused by the fact that caffine is a trigger for MIGRANE, not CH !!! as is cheese etc etc
 
as said above any vasoconstrictor is our friend !!
 
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #12 on: Sep 7th, 2006, 7:57am »
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I will happily take a caffeine rebound over a CH.  I usually drink large amounts of coffee anyway, so a little more doesn't affect me too much in a negative way.
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #13 on: Sep 7th, 2006, 2:41pm »
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I don't know where you live, but here in N.O. we have something called "Cool Brew" that is a highly concentrated coffee usually used to make iced coffee.  I would think a few shots of this would give you a nice boost of caffine asap.  I also wonder if you dissolved a few No-Doze if that my help.  I was actually drinking an iced coffee when a cluster hit today.  Oh, the irony.
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #14 on: Sep 7th, 2006, 2:46pm »
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People who DON'T get Clusters, DON'T have a clue. You'll learn to ignore their advice.  Grin
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #15 on: Sep 7th, 2006, 3:05pm »
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on Sep 6th, 2006, 8:05pm, Jonny wrote:
Buy a Red Bull drink and slam it down when you feel one coming....that will tell you if its going to help or not.

That's my advice as well. I also drink it ice cold.  
 
Caffeine is my friend.
 
PFwishes,
Sanna
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #16 on: Sep 8th, 2006, 9:04am »
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GUYS THANK YOU VERY MUCH!!!!. YESTERDAY HAD MY FIRST COFFEE IN YEARS AND SO FAR SO GOOD. I AM HAVING ONE RIGHT NOW AND I JUST WANTED TO THANK ALL OF YOU FOR YOUR INPUT.
 
KEEP STRONG!!!!!!
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #17 on: Sep 8th, 2006, 9:09am »
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on Sep 8th, 2006, 9:04am, CHAIN wrote:
KEEP STRONG!!!!!!

Keep strong, brew strong!
 
Bottoms up!
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #18 on: Sep 8th, 2006, 9:34am »
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I resent the implication that my hypothalumus is of less then average intelligence!  
 
Chain, I made an incorrect assumption that coffee was causing my hedaaches when I first started getting them in the 80's  cuz they always hit at about 9:00am, about half an hour after finishing my morning coffee! What everyone else said about advice from migrainers, "thank you for your kind advice"..then back away slowly!!!!
 
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #19 on: Sep 9th, 2006, 1:15am »
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on Sep 8th, 2006, 9:34am, Guiseppi wrote:
I resent the implication that my hypothalumus is of less then average intelligence!  
 
Guiseppi

 
Sorry Guiseppi for my warped sense of humour,  Tongue , above post modified now.
 
Cheers
 
Annette
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #20 on: Sep 9th, 2006, 4:54am »
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CheesyWhen I read BB's reply I thought, Finially someone who knows what is really going on. That was some good reading, but back to the issue.
 ShockedBring on the STRONG coffee before, during, and after an attack. When I said before, I mean when I smell the beast. Embarassed
Oh yeah, for future reference coffee and cigarettes are always bad for you and cause every thing wrong in your body. laugh
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Re: NEED AN ANSWER ASAP PLEASE!
« Reply #21 on: Sep 11th, 2006, 6:36am »
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never a day without a gsllon of the stuff even if i am mainly pf now
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plenty of time to sleep now me headaches aint too badSmiley
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