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   Author  Topic: Still Averaging 2 Maxalts A Day  (Read 446 times)
Superirish2005
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Still Averaging 2 Maxalts A Day
« on: Sep 6th, 2006, 9:57am »
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Talked to my doctor and told him I get 1 cluster around 10:00am and 1 in middle of night and even sometimes I get one around 6:00 or 7:00pm.
 
Some days I take 1 maxalt and some days up to 3 but I have averaged 2 maxalts a day and am down to my last few pills.....
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Re: Still Averaging 2 Maxalts A Day
« Reply #1 on: Sep 6th, 2006, 11:54am »
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What are you taking as a preventitive?
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Re: Still Averaging 2 Maxalts A Day
« Reply #2 on: Sep 6th, 2006, 12:39pm »
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And STILL no talk of getting ahold of some oxygen....
 
You know something? God helps those who help themselves, and until you stop all this nonsensical jabber about "will this work, what about this, I'm running low on this, blah, blah, blah..." I'm about done trying to help you.
 
Here's what you need to do:
 
1. Get your doc to write a prescription for oxygen through a non-rebreather mask at the rate of 10-12 liters per minute. If he won't or your insurance won't pay for it, get welder's oxygen and PM Jonny here on this board on how to set it up so you can use it.
 
2. Get the Rx for verapamil filled and start taking it.
 
3. Talk to your doc about possibly getting a high dose Rx (60-80mg/day) of prednisone that tapers off when the verapamil has built up to theraputic levels.
 
4. Did I mention getting your hands on some oxygen?
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Superirish2005
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Re: Still Averaging 2 Maxalts A Day
« Reply #3 on: Sep 6th, 2006, 1:35pm »
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WOW, sorry brewcrew I did not relazie I was such a pest here. see you guys.
 
I am sure I will figure something out but this cycle is driving me in sane....
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Re: Still Averaging 2 Maxalts A Day
« Reply #4 on: Sep 6th, 2006, 1:55pm »
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on Sep 6th, 2006, 1:35pm, Superirish2005 wrote:
WOW, sorry brewcrew I did not relazie I was such a pest here. see you guys.
 
I am sure I will figure something out but this cycle is driving me in sane....

It's just that you refuse to take sound advice from experienced veterans.
 
I hope your Maxalts last for the rest of the year.
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Re: Still Averaging 2 Maxalts A Day
« Reply #5 on: Sep 6th, 2006, 2:37pm »
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brewcrew I have 3 maxalts left bud and they will be gone by friday. I am not in the best of moods and driving myself crazy but I am outta here because I have been a major pest. I am sorry!
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Re: Still Averaging 2 Maxalts A Day
« Reply #6 on: Sep 6th, 2006, 3:00pm »
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Here's what I don't get - you cling to this notion that rizatriptan (Maxalt) is the only thing that will combat the beast. Until you start listening to what everyone else is telling you (in case you forgot, it's OXYGEN and Verapamil), it's like talking to a brick wall for us.
 
Blow up all your previous notions about how to fight this war, then go back and reread the things people have told you. We don't think you're a pest - we think you're ignoring us, and there's no quicker way to turn your audience against you.
 
From the bottom of my heart, please believe me when I say we want to help you with your suffering. Every single one of us has been down the road you're on right now. Don't let your pride stand in the way of feeling better.
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Re: Still Averaging 2 Maxalts A Day
« Reply #7 on: Sep 6th, 2006, 3:32pm »
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Is your cycle over & you no longer need this site?
 
Did you learn anything you can use for your next cycle?
 
Charlotte
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Re: Still Averaging 2 Maxalts A Day
« Reply #8 on: Sep 6th, 2006, 3:45pm »
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Irish,
Brewcrew is giving you great advice, but he is wearing down, Irish!  
Sometimes, you need to clear your head of all that is "normal' to you........ie: the stuff you've BEEN doing, and listen to the ideas presented here.
Noone here is attacking you, but just like you might be a bit on edge, THEY could be too...after all, they are trying to help you .
Noone is a pest here. Noone posts too much or asks too many questions, or foolish questions. CH, in itself, is a trial and error sport
  Undecided.
Please don't leave, please open up to the suggestions here, and please find a way to be PF!
Charlotte's question...are you suddenly out of cycle.I doubt it, and I suspect you are exhausted, depressed, in dire need of sleep and quite frustrated....oh, and, not to forget, in pain! I dont want to see you that way.....I want you to find your magic amulet.something that TRULY helps you abort.
Please don't leave, and please let CH.com give you all the suggestions they have....till you find YOUR right one!
 
One of the most famous phrases around here,
"Take what you need, and leave the rest".very important right now that you understand, and you get the help you need!
 
BYW-Verap will take awhile to build up in your system, hence, the pred.....which will give you relief till the Verap kicks in.follow the directions, then let us all know how you're doing.
I hope you have far better days ahead, Irish!
Wishing you PF  
Cathi
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Re: Still Averaging 2 Maxalts A Day
« Reply #9 on: Sep 7th, 2006, 1:39pm »
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on Sep 6th, 2006, 3:00pm, brewcrew wrote:
Until you start listening to what everyone else is telling you (in case you forgot, it's OXYGEN and Verapamil), it's like talking to a brick wall for us.

 
Brew,
 
Just my 2cents here.
 
Just because O2, Verap & Pred work for you, stop shoving it down people's throats. What works for you may or may not work for someone else.
 
I for one believe Verap extends a cycle. Prednisone did squat for me. Oxygen, on the other hand, is a lifesaver.
 
Yes, Superirish asks a lot but doesn't do much. I remember my resistance to O2. I battled the beast with imitrex for many years and it worked great. Do you know how much courage it took that first time I decided NOT to take trex and instead suck on O2, hoping it would work? I had read about plenty of people for whom O2 did nothing. Irish is not there yet, but he may get there on his own time.
 
Don't feel compelled to respond to every thread. If you want to stop helping this dude, just ignore his posts.
 
And by the way, my Fish just did a double sweep of your Crew Wink
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Re: Still Averaging 2 Maxalts A Day
« Reply #10 on: Sep 7th, 2006, 1:52pm »
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on Sep 7th, 2006, 1:39pm, marlinsfan wrote:

 
I had read about plenty of people for whom O2 did nothing.

 
I've also read about people for whom O2 did not work, that when given the right equipment (non-rebreather, or even a clustermasx and 10-15 lpm reg) that they found "religion" too.
Yes, there are still those that O2 doesn't do anything.
 
scott
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Re: Still Averaging 2 Maxalts A Day
« Reply #11 on: Sep 7th, 2006, 2:22pm »
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on Sep 7th, 2006, 1:39pm, marlinsfan wrote:
Just because O2, Verap & Pred work for you, stop shoving it down people's throats.

 
Just because it doesn't work for you, you think people shouldn't suggest it as a possible way to deal. Oh... 02 works so it's o.k. to suggest that one. We all use different meds that work. Hell, there's even people drinking colon cleaner out there.  laugh (Not that I would suggest trying it.)
 
Trex rocks !!!
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Re: Still Averaging 2 Maxalts A Day
« Reply #12 on: Sep 7th, 2006, 11:49pm »
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I think verapamil made me chronic. O2 doesn't work for me either. Imitrex at a full dose makes me worse, at 2mg helps a little but the rebounds are worse than the first attack.  
 
But that doesn't mean it's not what I'm going to encourage someone to try first- because even though they don't work for me (or for lots of us, for that matter), they are what seems to have the best chance of helping for everyone.
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