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Topic: Painfree CH? (Read 371 times) |
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Bond007
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Painfree CH?
« on: Aug 29th, 2006, 2:44pm » |
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Yeah, that's right. I've got my typical symptoms: left nasal congestion, bloodshot left eye, constricted left pupil, post-nasal drip, left ear is on fire (as well as left side of face), etc., but no pain for the most part. I've had some twinges of CH pain throughout the day, but nothing's lasted. I've heard of painfree migraines. My dad gets those fairly regularly. Has anyone heard of or does anyone get a painfree CH?
Jamie
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Sometimes life bites you in the ass -- that's what drugs are for!!
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Bob_Johnson
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Re: Painfree CH?
« Reply #1 on: Aug 29th, 2006, 3:39pm » |
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Yes. I've seen a couple of medical reports but we're talking about very few people being involved.
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Bob Johnson
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MJ
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Re: Painfree CH?
« Reply #2 on: Aug 29th, 2006, 5:20pm » |
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They are called silent clusters.
For 30 years I suffered frequently with them between the full cycles. daily and frequent silent hits.
All the cluster symptoms, droopy and bloodshot eye, nasal congestion and drip. but no associated pain.
my skin on the face and the temple area would become cold and sweat would pour from my brow. duration of a silent hit would last 30 min to an hour. often times the hits would be accompanied by exhaustion.
Interesting since busting with RC seeds this has not occured in months now for me.
I used to think all CHers suffered these. Guess not. I would certainly prefer the silents over the others.
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MJ
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BobG
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Re: Painfree CH?
« Reply #3 on: Aug 29th, 2006, 7:37pm » |
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They are not un-heard of. Referred to as Phantom Clusters.
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Bond007
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Re: Painfree CH?
« Reply #4 on: Aug 30th, 2006, 8:17am » |
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Thanks for all the info, gang! I was starting to worry about when the pain would set in, but it never did. The symptoms came and went periodically all day yesterday. I was almost afraid to go to sleep last night. However, I still slept like a baby, thank God!
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JohnMcCloy
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Re: Painfree CH?
« Reply #5 on: Aug 30th, 2006, 8:22am » |
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Oooo
I would like to trade mine in for those..lol
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chewy
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Quote:| I would like to trade mine in for those..lol |
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NO SHIT! Where do I sign up?
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pattik
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Re: Painfree CH?
« Reply #7 on: Aug 30th, 2006, 8:57am » |
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Doctors are suspecting that there could be a whole array of assoicated autonomic symptoms that can happen with or without the headache. Our hypothalamus has a huge influence on us. I've been tracking these symptoms in myself, now that I'm becoming aware of them. They're aggravating, but they sure still don't hold a candle to the headaches. 
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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JohnMcCloy
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Re: Painfree CH?
« Reply #8 on: Aug 30th, 2006, 9:11am » |
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I Dont know for some reason i do not think im the only one who believes that when they do figure this thing out it the answer will be something very simplistic and avoidable.
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George_J
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Re: Painfree CH?
« Reply #9 on: Aug 30th, 2006, 9:24am » |
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on Aug 30th, 2006, 9:11am, JohnMcCloy wrote:| I Dont know for some reason i do not think im the only one who believes that when they do figure this thing out it the answer will be something very simplistic and avoidable. |
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Breathing, most likely. 
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Margi
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Re: Painfree CH?
« Reply #10 on: Aug 30th, 2006, 10:14am » |
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Yep. My hubby gets the silent attacks every day while in remission. His eye does the chicken and his ear goes bright red. He can't usually feel it, other than he sometimes stuffs up, but I sure see it. I've got a trained eye for cluster eyes, though - I'm sure most supporters do - and I'm always on the lookout for them.
Every day around 4:30 until about 5:15, his eye is constricted. I'm not sure how many other times during the day this is happening because he's at work and, like I said, often doesn't realize it's happening. It's pretty freaky to watch but, hell - SO much better than the real attacks. However, it's a constant reminder that there is a time bomb ticking in the closet for him and we're never really free of this.
He's been "silent chronic" like this since he first tried the psilocybin treatment. He's due to go into cycle again this fall so we're going to try the seeds this time. He is completely med free and has been since last September (2005) when his last cycle ended. I'll be interested to see if the seeds can also bust this silent stuff.
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chopmyheadoff
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Re: Painfree CH?
« Reply #11 on: Aug 31st, 2006, 8:53am » |
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on Aug 30th, 2006, 9:11am, JohnMcCloy wrote:| I Dont know for some reason i do not think im the only one who believes that when they do figure this thing out it the answer will be something very simplistic and avoidable. |
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i agree, just a feeling.
wish they would bloody hurry up though !! lol
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Chonas
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Re: Painfree CH?
« Reply #12 on: Aug 31st, 2006, 2:00pm » |
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I do have plenty of Phantom Clusters. I don't care too much about them, they also increase their frecuency when I'm getting close to a Cluster Headache cycle in person.
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Here we go again...
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