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   Author  Topic: Shadows and Whistle in the Ear  (Read 395 times)
Boris
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Shadows and Whistle in the Ear
« on: Aug 26th, 2006, 5:26pm »
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Hello - I a an episodic cluster since the age of 19 (am 46 now). My eposides appear every 1-2 years and last between 2-4 months (have gotten longer since I found verapamil) , however these are trends and nothing that is consistant. I am really depressed currently since I am living far away (Fiji) and have long run out of Imitrex and have had a cluster episode lasting almost 5 moths, which is 2 months longer than any other one I have ever had in my life.  I have in the past 4 days , after startign to reduce Verapamil to nil, gotten constant shadows with continuous pain (not the real pain, but continuouis as if a cluster will start) and continuous whistle inside my head. I don't know what to do and or if to start Verapamil again (have taken another pill of 120 mg since I am panicking). Anyone have had this before...? Is there anyone wuith advise or similar symptoms...?
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BarbaraD
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Re: Shadows and Whistle in the Ear
« Reply #1 on: Aug 26th, 2006, 6:10pm »
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Don't know about the whistling in the head, but have you got access to O2? That usually will help shadows. Coffee is also good to abort shadows.
 
check your e-mail...
 
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Re: Shadows and Whistle in the Ear
« Reply #2 on: Aug 28th, 2006, 3:41pm »
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on Aug 26th, 2006, 5:26pm, Boris wrote:
Hello - I a an episodic cluster since the age of 19 (am 46 now). My eposides appear every 1-2 years and last between 2-4 months (have gotten longer since I found verapamil) , however these are trends and nothing that is consistant. I am really depressed currently since I am living far away (Fiji) and have long run out of Imitrex and have had a cluster episode lasting almost 5 moths, which is 2 months longer than any other one I have ever had in my life.  I have in the past 4 days , after startign to reduce Verapamil to nil, gotten constant shadows with continuous pain (not the real pain, but continuouis as if a cluster will start) and continuous whistle inside my head. I don't know what to do and or if to start Verapamil again (have taken another pill of 120 mg since I am panicking). Anyone have had this before...? Is there anyone wuith advise or similar symptoms...?

 
I had this too coming off of verapamil.  It would acutally feel weird when I would walk, and it felt like I had a sinus infection.  The hardest thing to do was avoid popping an imitrex because then that would cause a real rebound instead of the shadow.  It eventually went away and I was CH free.... for a while.  Good luck!
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kevinpix
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Re: Shadows and Whistle in the Ear
« Reply #3 on: Aug 28th, 2006, 5:56pm »
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Sorry to hear your pain.  I'd try really strong coffee, that should help the shadows.  Is there a doctor there that you can go to?  Hope all goes well for ya!  Oh, yea, I've heard the whistle too, kinda weird huh?
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MJ
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Re: Shadows and Whistle in the Ear
« Reply #4 on: Aug 29th, 2006, 2:00am »
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Hi Boris
 
Tinnitus!  
Just a thought. I have heard of a relationship with CH before and dropping verapamil may be an instigator.
 
http://www.mayoclinic.com/health/tinnitus/DS00365/DSECTION=3
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MJ
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Re: Shadows and Whistle in the Ear
« Reply #5 on: Aug 29th, 2006, 2:58am »
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on Aug 29th, 2006, 2:00am, MJ wrote:
Hi Boris
 
Tinnitus!  
Just a thought. I have heard of a relationship with CH before and dropping verapamil may be an instigator.
 
http://www.mayoclinic.com/health/tinnitus/DS00365/DSECTION=3

Could be that MJ is right on this.
I developed Tinnitus about four years ago and it could be as a result of the length of time I worked around compressed air driven machinery without ear protection.
 
I have noticed though that I can just about predict within a day or so that I will get hit as the ringing stops completely and returns when I get a PF period.
Coincidence maybe but with the logging of events no matter how trivial they seem usually gives some indicator if you are able to recognise them.
 
Tinnitus is annoying but I assure you that after a couple of years you become used to it.
 
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Barry
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