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Topic: chronic and episodic (Read 377 times) |
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bruce802
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chronic and episodic
« on: Aug 10th, 2006, 3:12pm » |
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Hello everyone, I was wondering, do episodic CH sufferers ever end up being chronic sufferers?
Bruce
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Jonny
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Re: chronic and episodic
« Reply #1 on: Aug 10th, 2006, 3:19pm » |
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Yes, but not all.
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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George_J
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Re: chronic and episodic
« Reply #2 on: Aug 10th, 2006, 3:30pm » |
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on Aug 10th, 2006, 3:19pm, Jonny wrote:
They can, all right, but certainly not always. I've been reliably episodic, like a clock, since 1966. I've never become chronic.
The "good" news (if there's anything "good" about this stuff at all) is that the length of time between cycles may widen as time goes by. It's happened to me. I'm three years between cycles for the last three go-arounds. But we'll see. Nothing's written in stone.
Best wishes,
George
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Ah! The foreigners put on such airs
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The pain they inspire
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It all comes to light in the sheer
Debonair.
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Sandy_C
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Re: chronic and episodic
« Reply #3 on: Aug 10th, 2006, 5:46pm » |
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Hi Bruce, and welcome.
Yes, some episodics do go chronic. But, like Jonny said, not all. Jonny started out at a very young age as chronic - right from the get-go. Now, he's PF (and we hope that's a forever!). Many episodics are still episodic. Like George said, nothing is written in stone.
My best advice, if you are worrying about going from episodic to chronic - don't. With CH, whether episodic or chronic, you have to learn to cherish the pain free time you have, whether it's minutes or years. It is what it is.
Sandy
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| « Last Edit: Aug 10th, 2006, 5:47pm by Sandy_C » |
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kcopelin
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Re: chronic and episodic
« Reply #4 on: Aug 10th, 2006, 6:21pm » |
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Hey Bruce,
yes some of us have gone from episodic to chronic. I was episodic for 24 years-and thought I would die if I ever became chronic-not dead yet. One thing though, there are some (and I'm beginning to count myself in this group) who believe the more you medicate this condition, the more you mess with it, the more likely you are to prolong the cycle. This is the first time in 24 that I have asked for pain meds for clusters-and now I'm chronic. Hmmmm, I wonder what will happen once I taper all the way off the pain meds? Maybe go back to episodic?
PFDAN
kathy
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| « Last Edit: Aug 10th, 2006, 6:21pm by kcopelin » |
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Words count, chose carefully.
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maffumatt
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Between 10 and 15 % do, also works the other way too.
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E-Double
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Re: chronic and episodic
« Reply #6 on: Aug 10th, 2006, 7:13pm » |
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10 yrs episodic and now 2+ yrs chronic
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I can't believe that I have to bang my
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But the blows they have just a little more
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kevinpix
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Re: chronic and episodic
« Reply #7 on: Aug 10th, 2006, 8:07pm » |
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I agree maffumatt. Can go either way or even go away on its own. Just do the best you can in the meantime. Good luck and wishes of painfree-dom!!!
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| « Last Edit: Aug 10th, 2006, 8:08pm by kevinpix » |
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lashultz
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Re: chronic and episodic
« Reply #8 on: Aug 10th, 2006, 8:38pm » |
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Yes they do. 7 years eposidic. 6 chronic.
Lee
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unsolved1
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Re: chronic and episodic
« Reply #9 on: Aug 10th, 2006, 10:53pm » |
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12 years episodic, 6 years chronic 
UNsolved
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sandie99
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Re: chronic and episodic
« Reply #10 on: Aug 11th, 2006, 3:20am » |
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Oh yes!
But, luckily for me, it's also possible to return to episodic. 
PF time to all,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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bruce802
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Re: chronic and episodic
« Reply #11 on: Aug 11th, 2006, 8:58am » |
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Wow,
Thats kind of scary to know. I almost wish I didn't ask that question. I guess I'll just be thankfull that I am episodic for now, and hopefully I will never turn chronic.
thank you everyone for your responses.
Bruce
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E-Double
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Re: chronic and episodic
« Reply #12 on: Aug 11th, 2006, 9:02am » |
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Quite a few Chronics includiong myself will tell you that in a way it is easier.
We know what is going to happen.
We do not dread them coming back after a long reprieve.
There is much less anxiety.
Yes breaks are nice when we get them if we do at all.
Some develop high and low periods within a chronic state.
It is all good.
Like anything else some can manage better than others.
This place remains a g-dsend.
Don't worry just live regardless of episodic or chronic
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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Mr H
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Re: chronic and episodic
« Reply #13 on: Aug 11th, 2006, 11:41pm » |
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I agree with e-double... its better in many ways to know whats going to happen and be prepared... in whatever way suits, because we're all different.
I'd rather know than live in fear of 'the day'. Going chronic helped me better understand, live with and try my best to beat the beast in my head.
I don't always win... but I never give in.
There's a lot of good reading on this site...
Good luck!
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| « Last Edit: Aug 11th, 2006, 11:42pm by Mr H » |
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