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Topic: please read me (Read 426 times) |
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no1ino
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please read me
« on: Aug 9th, 2006, 8:01pm » |
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hey everyone. My boyfriend has been diagnosed with cluster headaches because he's had them since he was 13, but I have one big question for everyone.
I've noticed that all the postings it seems that you guys have pain in just one side of your head and or behind your eyes.
His aren't like that. DOES ANYONE OUT THERE HAVE HEADACHES IN THE CENTER (TOP) OF THEIR HEAD?
thanx so much, look forward to your reply.
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BMoneeTheMoneeMan
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Re: please read me
« Reply #1 on: Aug 9th, 2006, 8:48pm » |
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Hi No1,
That does seem weird. I dont know of anyone with that type of pain. I wonder if he was misdiagnosed.
Does he get the watery eye and the stuffed nostril?
have you read the cluster traits on the left of the screen?
PF wishes to your boyfriend
B$
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"Fool me once, shame on, shame on you. Fool - can't get fooled again"
Think of how stupid the average person is, and then realize half the population is stupider than that.
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George_J
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Re: please read me
« Reply #2 on: Aug 9th, 2006, 8:52pm » |
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Cluster follows the pathway of the trigeminal nerve on one side of the head. That's why it presents in most of us as a one-sided pain that centers around the eye. I've never heard of it causing an attack in the center of the head.
The intensity sounds familiar, though.
Perhaps he needs a second opinion?
Best wishes to you and your boyfriend,
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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MJ
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Re: please read me
« Reply #3 on: Aug 9th, 2006, 8:57pm » |
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Answer is No.
clusters are allways on one side or the other.
Occasionally both sides but not the top of the head. He has been misdiagnosed.
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MJ
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E-Double
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Are we ourselves?
  
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Re: please read me
« Reply #4 on: Aug 9th, 2006, 8:58pm » |
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pain sucks and I am so sorry that your bf is in it and thus you are too.
There are different HA types that may present similarly but differ in location, intensity and duration as well as responsiveness to meds.
Icepik HA for example feel like you're being electricuted literally hundreds of times and these may be unilateral OR all over the F-en place. I get these too.
Research different HA types as well.
Check out our Canadian contingent who may guide you towards HA clinics/specialists in your area.
http://www.clusterheadaches.ca/DesktopDefault.aspx
Hugs and good luck
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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no1ino
New Board Newbie
I love YaBB 1G - SP1!
Posts: 6
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Re: please read me
« Reply #5 on: Aug 9th, 2006, 9:14pm » |
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Thank you everyone for your help.
I had a feeling he was misdiagnosed because his dad has cluster headaches, but his have all the right symptoms.
thank you so much for your support and help. You are all wonderful people
xoxoxo
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kevinpix
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treat others with respect
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Re: please read me
« Reply #6 on: Aug 10th, 2006, 12:39pm » |
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Do they radiate down into his jaw bone?
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Margi
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Re: please read me
« Reply #7 on: Aug 10th, 2006, 1:32pm » |
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hey, No1 - I see you're in Red Deer. I'm in Calgary. 
I agree - location of your b/f's pain sounds like it could be something else going on. There's a great headache clinic here in Calgary at the Foothills. Dr. Becker runs it - you should be able to get a referral to it. They deal with all types of h/a there.
We also have a Canadian website if you want to check us out, link at the bottom of my post here. Feel free to visit.
So, I gotta ask...I ask everyone from Red Deer this. Flames or Oilers?
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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LeLimey
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Re: please read me
« Reply #8 on: Aug 10th, 2006, 2:07pm » |
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psssst.... say Flames for goodness sake! 
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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Margi
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Re: please read me
« Reply #9 on: Aug 10th, 2006, 3:01pm » |
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LMAO Helen - I dunno - Red Deer folks can go either way. MOB's wife is from Red Deer and she cheers for the Oilers.
(FYI, Red Deer is almost exactly half way between Calgary (Flames) and Edmonton (Oilers) and is a smaller city than either of our two and the poor buggars don't have a hockey team of their own, so they have to pick either south (Flames) or north (Oilers). Let's hope this gal knows what's best (Flames).)
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http://askusaboutourgrandkids.photosite.com/
And, on the Eighth Day...God created Beer (to stop the Canadians from taking over the world)
source unknown
IMHO (which in my universe is correct)
kathy copelin, ch.com 8/8/06
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drivin_blind
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Re: please read me
« Reply #10 on: Aug 10th, 2006, 4:36pm » |
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Red Deer want the Red Wings?
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The true measure of a hero is when a man lays down his life with the knowledge that those he saves....will never know.
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chopmyheadoff
New Board Old Timer
Its only a headache, deal with it - SMACK
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Re: please read me
« Reply #11 on: Aug 14th, 2006, 6:48am » |
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i went the shop and asked for a can of red deer, he didnt know what i was talking about 
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LeLimey
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OUCH-US - Less "ME" and more "WE"
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Re: please read me
« Reply #12 on: Aug 14th, 2006, 7:23am » |
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Chop if Margi doesn't get you I will.
You do not take a person's passions in vain mate and mocking ice hockey'll get the puck kicked out of you
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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chopmyheadoff
New Board Old Timer
Its only a headache, deal with it - SMACK
Gender:
Posts: 481
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Re: please read me
« Reply #13 on: Aug 14th, 2006, 10:09am » |
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on Aug 14th, 2006, 7:23am, LeLimey wrote:Chop if Margi doesn't get you I will.
You do not take a person's passions in vain mate and mocking ice hockey'll get the puck kicked out of you |
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pmsl
i thought i was quite funny
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