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Topic: ch video (Read 556 times) |
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chopmyheadoff
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Its only a headache, deal with it - SMACK
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on the cluster busters web site there is a video of someone during an attack. at the start it says that the video is an excert from a documentry about cluster headache.
does anyone know where i can find the full doc ??
would be interesting to watch
pfdan
chop chop
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LeLimey
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Re: ch video
« Reply #1 on: Aug 5th, 2006, 8:34pm » |
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Its still in production, its not finished yet but it will be!
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The arsehole I'm divorcing needs to get a life and stop stalking mine
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chopmyheadoff
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Its only a headache, deal with it - SMACK
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Re: ch video
« Reply #3 on: Aug 6th, 2006, 8:01am » |
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oh wow cheers 
but my coumputer wont install quicktime propperly,  have u got a link to the mpg?? i really wanna see this !!
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the_old_man
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Re: ch video
« Reply #4 on: Aug 6th, 2006, 9:03am » |
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I went to the site and found it to be very well done. I read the information and watched the videos, and cried all the way thru it. It is a beautiful, sensitive, accurate portrayal of what CH is all about. It made me proud to be a CHer, and proud to be a part of this board. It gave me strength to continue the fight during this intense cycle I'm in, and the knowledge that I am one of the special ones who can withstand the most intense pain known to man and still come out a winner. I look forward to the finished product, and have copied the url to pass on to those...even in my own family...who still say, "it's only a headache!". I applaud the courage and selflessness of all who were involved in this, and thank you from the bottom of my heart.
NEVER GIVE UP!
The Old Man
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big guy
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Re: ch video
« Reply #5 on: Aug 6th, 2006, 9:55am » |
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I couldn't agree more Old Man. I will be showing this video to a few people also. Very moving. I also cried all the way through it. Perhaps I can get my boss to watch it. (Don't really think so)
Big Guy
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serendipity
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Re: ch video
« Reply #6 on: Aug 6th, 2006, 11:12am » |
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Wow. Those videos are amazing. I didn't expect to have such an emotional response, but having never met another CH sufferer in real life, I feel like I just did.
By the way, does anyone here know Chuck from the video?
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roy21302
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Re: ch video
« Reply #7 on: Aug 6th, 2006, 12:33pm » |
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Just watched this, it's pretty powerful stuff, I hope it gets finished soon I can think of a few people who would benifit from seeing it, my ex line manager and some of the git I worked with--------------Cheers Roy
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nani
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Re: ch video
« Reply #8 on: Aug 6th, 2006, 11:16pm » |
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on Aug 6th, 2006, 11:12am, serendipity wrote:
By the way, does anyone here know Chuck from the video? |
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That's our very own ClusterChuck.
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Others may come and go, but MY power is MINE.
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Weatherman
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Re: ch video
« Reply #9 on: Aug 7th, 2006, 1:45am » |
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Nice job Justin!! Very moving....very well done.
I find it amazing how much Chucks hit affects me even though I've watched it several times. It's like looking in a mirror...except I never have anyone with me and I have shorter hair 
Chuck, if you read this, God Bless you man!! And God Bless all of you who are chronic. You know how it's impossible for someone that's never had CH to understand what it's like? That's how I feel being an episodic trying to understand what it must be like to be a chronic. Every day? Every week? Every month? Every year? MAN!!!
I just finished a cycle and am now enjoying not only being pain free but med free too. But I have to say, I feel a little guilty. Just doesn't seem fair. God Bless you all!!!
Anyway, thanks again Justin. Great work!
Doug
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TxBasslady
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Re: ch video
« Reply #10 on: Aug 7th, 2006, 1:59am » |
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on Aug 6th, 2006, 11:12am, serendipity wrote:
By the way, does anyone here know Chuck from the video? |
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The video was shot at the 2004 OUCH Convention in Nashville.
Just in case any are wondering....that video is real.
Justin is a clusterhead, and brought his film crew to Nashville, in hopes that he would obtain permission to film an attack. Chuck volunteered.
Taping this video was not easy for Justin....
He has since met with us in Davenport, Iowa at our annual meet & greet. He has filmed individual CH'ers stories about their experiences with CH.
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas! 
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chopmyheadoff
New Board Old Timer
Its only a headache, deal with it - SMACK
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Re: ch video
« Reply #11 on: Aug 7th, 2006, 2:05am » |
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managed to get it working
Boy its strange "meeting" someone like me after all this time thinking i was the only one.
I hope a full documentry is made like this , would be good for others to be informed about ch.
there are probly people out there suffering right now who dont know what they have and a show like this being on telly could help them get the help they need.
good work
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The mad viking
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Re: ch video
« Reply #12 on: Aug 7th, 2006, 2:17am » |
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I am one of the really few that has a copy of this tape of Chuck.
Its a really hard tape to see for all of us
Im using the tape for all its worth in educating the healthsystem and people in Norway about Clusterheadaches
The tape has really open doors to the medical community over here that i did not know exist before Chuck did let us film him during a hit
The tape tells more then a million words
The very best from Svenn
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Always Look on The Bright Side of Life
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TxBasslady
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Re: ch video
« Reply #13 on: Aug 7th, 2006, 2:23am » |
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I would like to say, there's nothing in this World even close to the feeling you get from meeting another who suffers from CH.
If you haven't had the chance to do so, please try and find the time. You will never regret it.
It will amaze you at how strong of a bond you will experience. It's like you have known each other forever.
I have met so many who suffer. This experience is what gives me the strength to cope with CH. I have learned so much....found lifelong friendships....and more love than I deserve.
Much love,
Jean
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How lucky I am... to have known someone who was so hard to say goodbye too.
Take a kid fishin
www.takemefishin.org
I adopted a Vietnam POW/MIA from El Paso, Texas!
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The mad viking
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Re: ch video
« Reply #14 on: Aug 7th, 2006, 2:33am » |
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on Aug 7th, 2006, 2:23am, TxBasslady wrote:I would like to say, there's nothing in this World even close to the feeling you get from meeting another who suffers from CH.
If you haven't had the chance to do so, please try and find the time. You will never regret it.
It will amaze you at how strong of a bond you will experience. It's like you have known each other forever.
I have met so many who suffer. This experience is what gives me the strength to cope with CH. I have learned so much....found lifelong friendships....and more love than I deserve.
Much love,
Jean
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Could not agree with you more on what you just said here Jean
You just said it like it is
Hugs
Svenn
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Always Look on The Bright Side of Life
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Cinder
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Re: ch video
« Reply #15 on: Aug 7th, 2006, 12:22pm » |
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I will never feel like a fool again!
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Sandy_C
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Re: ch video
« Reply #16 on: Aug 7th, 2006, 12:35pm » |
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I've seen the video of Chuck twice, once many months ago through a post on this site, and again at the Milcon 2006 convention. I had tears in my eyes watching it on my computer screen. Then, at Milcon, I met Chuck. When they showed the video on a large screen, I felt so much helplessness and sadness watching my new friend going through such pain. It was heartbreaking this time, because I new the man, the brand new grandfather, who was such a joy to meet, so much fun, so interesting to talk with. Seeing him in pain this time made such a huge difference in me, personally. I'm sorry, I can't explain it well enough.
Sandy
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The mad viking
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Re: ch video
« Reply #17 on: Aug 7th, 2006, 2:59pm » |
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Sandy_C my dear friend.
I think you said it really well indeed
But it also seems that most of US seems to forget the value of a tape like that when we try get the awarness of clusterheadaches known out there
I feel that i know Chuck as a really good and personal friend and brother,and of course i do react pretty much the same way as you but i also see the tape as a tool to get the word out.
Sorry but i have to repeat myself here but that tape are worth its weight in gold for us
Take care my friend
Svenn
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Always Look on The Bright Side of Life
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BB
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Re: ch video
« Reply #18 on: Aug 7th, 2006, 4:50pm » |
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Can someone please help me as to how I can watch it on computer or getting the video tape of this documentation?
Annette
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The mad viking
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Re: ch video
« Reply #19 on: Aug 7th, 2006, 5:24pm » |
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on Aug 7th, 2006, 4:50pm, BB wrote:Can someone please help me as to how I can watch it on computer or getting the video tape of this documentation?
Annette |
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Go to http://www.clusterbusters.com/
Download the windows mediaplayer file or quicktime version if you prefer that.
I am not allowed to copy the tape im using so thats all i can help you with.So sorry
But what you will see is the most importent part of the tape
Svenn
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| « Last Edit: Aug 7th, 2006, 5:25pm by The mad viking » |
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BB
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Re: ch video
« Reply #20 on: Aug 8th, 2006, 7:15am » |
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Thank you very much for that.
It brought tears to my eyes and pain to my heart as its just like my DH during one of his attacks.
I will give the link to his family to watch as they are interstate and they are struggling to understand what he is going through.
Thank you again.
Annette
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catherinelane
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Re: ch video
« Reply #21 on: Aug 8th, 2006, 5:19pm » |
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well im absolutley stuck for words to witness somebody else go through what we do is dumbfounding i also feel for the man helping him through it ive seen that look in my husbands eyes so many times, its hard for the carers too.
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Tattoo
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Re: ch video
« Reply #22 on: Aug 11th, 2006, 3:56pm » |
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Im new here but I felt so bad for Chuck . I had to stop it and come back to see the rest . To watch him going thru the hell of a bad CH was moving to say the least. These "just a head ache" people realy piss me off . I get that at work sometimes , I am lucky I may only get 1 hit durning my work hours & my boss is very understanding .
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