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Topic: No CH's (Read 274 times) |
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Patrick_A
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If i could get my hands on that wascally Wabbit
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Hey, My name is Patrick Alexander to those here who don't know me. I suffered with Episodic Ch's since the age of 16, I am now 47. The 1st 22 years of this dreadful disease, I suffered it in silence. Wasn't much I could do other than the home remedies. Then Imitrex came out. Originally I thought this was my saviour. It allowed me to function during my episodes, but, I soon realized that Imitrex causes "Rebounds", and Rebounds can cause headaches that can be worse than the CH's.
I am sorry, I regress.
This site probably saved my life. I was suicidal when I found it. I was in a cycle that was absolutely brutal. After it was over, I soon quit coming here. Then about 1 year later I started a new cycle, and made a quick move back here. I soon started reading of remedies that had worked for people here and then persuaded my Neurologist to put me on a verapamil and prednisone cocktail. It immediuately stopped my CH's and with my fingers crossed I am here to tell you.
I am painfree for 3 years
Thank you to everyone here. You know who you are. Without some of you, I would probably be taking a dirtnap now!
Good luck to all of you that are searching for the answer.
Patrick R. Alexander
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sandie99
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Wish it, dream it, do it - inspite the pain!
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Re: No CH's
« Reply #1 on: Aug 2nd, 2006, 8:28am » |
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Patrick,
first of all: congratulations! 
It's always exciting to hear that a fellow clusterhead is PF. And 3 years, wow! I do hope that you'll be PF for years to come.
I also do hope that we'll see you here, just hanging out... 
Best wishes & PFdays,
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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chopmyheadoff
New Board Old Timer
Its only a headache, deal with it - SMACK
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Re: No CH's
« Reply #2 on: Aug 2nd, 2006, 8:32am » |
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CONGRATS !!
I have just been diagnosed after suffering chronic for 7 years 
My neuro has put me on verapamil and same as you i have now not had a CH for 4 weeks !!!
your post has given me the encouragement i needed coz i thought that this verapamil was too good to be true and it was gonna stop working 
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vig
CH.com Alumnus
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CHit Happens
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Re: No CH's
« Reply #3 on: Aug 2nd, 2006, 9:09am » |
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cooooooooool!
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never, Never, NEVER quit. -Winston Churchill
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LeLimey
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OUCH-US - Less "ME" and more "WE"
 
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Re: No CH's
« Reply #4 on: Aug 2nd, 2006, 10:42am » |
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Thats lovely news Patrick, thanks for sharing it. It always gives hope to others to hear of some of us getting good times
Helen
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kevinpix
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treat others with respect
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Re: No CH's
« Reply #5 on: Aug 2nd, 2006, 5:45pm » |
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It's great to hear!! Hope it lasts forever!!!
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Bond007
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Re: No CH's
« Reply #6 on: Aug 2nd, 2006, 5:50pm » |
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Congrats man! Perhaps there's hope out there for the rest of us, too. Here's to hoping!!! 
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Sometimes life bites you in the ass -- that's what drugs are for!!
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Ladybug314
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The Devil Made Me Do IT!!!!!
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Re: No CH's
« Reply #7 on: Aug 2nd, 2006, 9:41pm » |
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Way 2 go,
Hey Patrick what is the dose you are taking on Verapamil? I'm on 240mg a day. I'm not sure if that is enough because was getting them from 8 CH's a day down to about six since I started last Friday on Verap.
Thanks and again Congrats 
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What did we do to deserve such pain?
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Patrick_A
New Board Hall of Famer
If i could get my hands on that wascally Wabbit
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Re: No CH's
« Reply #8 on: Aug 2nd, 2006, 11:26pm » |
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I no longer take the Verapamil or the Prednisone. They tapered me up and then back down. I was originally taking 960mg's of Verapamil and 80mgs of Prednisone, and they tapered that down to none.
Patrick
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