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   Author  Topic: AT WHAT AGE DID YOU FIRST MEET THE BEAST?  (Read 1466 times)
kevinpix
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AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« on: Aug 1st, 2006, 12:19pm »
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I heard that most start in their thirties and grow out of it in their sixties.  The more I read, the more I begin to wonder.  Is there an age when this begins exactly??  Thanks for your input.  Kevin
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #1 on: Aug 1st, 2006, 12:21pm »
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I started about 17.  
 
At least that's the first memory I have of what I now know is a CH- of sitting in spanish class feeling like I should be bashing my head into the desk but just crying because I thought I was going to die.  
 
I'm 36 now and get cycles every 3 years.
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #2 on: Aug 1st, 2006, 12:27pm »
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Thirteen.  I'm 52 now.
 
They've always been seasonal--twice a year for twenty years, then once a year for ten years.  The last three cycles have been three years apart.
 
I don't believe for a minute that I'm done with them, though.  Not any more.
 
Best,
 
George
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #3 on: Aug 1st, 2006, 12:29pm »
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I got my first hit at age 32.
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #4 on: Aug 1st, 2006, 12:39pm »
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At 17 I started getting what I thought was just bad migraines.  They were always on the same side then.  But they were very infrequent.  At 24 they became steadly episodic.  Twice a year for 6 weeks at a time.  I am 37 now and they have changed little since.
 
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #5 on: Aug 1st, 2006, 1:22pm »
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I was 36... a decade ago
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #6 on: Aug 1st, 2006, 2:38pm »
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15
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #7 on: Aug 1st, 2006, 2:51pm »
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I was 38
My son was 3.
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kevinpix
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #8 on: Aug 1st, 2006, 2:57pm »
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Did you pass it to him or just bad odds??
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #9 on: Aug 1st, 2006, 3:05pm »
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kevin, there doesn't seem to be any clear statistical evidence that CH is inherited. There is however quite a bit of conjecture and anectdotal evidence that something is happening. My father has CH. I have CH. Others state the same types of stories here. A similar link is how you see Migraines seem to run in certain families.  
 
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #10 on: Aug 1st, 2006, 3:20pm »
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age started 32 - missed 6 years then bang last 2 years. No family history.  
 
I've noticed - Dr.'s never admit not knowing what we have so all the uneducated ones come up with some off the wall treatment mostly used for migrains. My first doctor visits, I have enough pain killers to start dealing...
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #11 on: Aug 1st, 2006, 3:34pm »
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17 was the first year. Then it went away for a few years. 6 years ago it came back and I've had it every year since then...but last year was the mildest year so far. I'm 27 now, and I'm hoping it will be the first PF year in a long time.
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #12 on: Aug 1st, 2006, 3:36pm »
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16
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kevinpix
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #13 on: Aug 1st, 2006, 3:37pm »
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Yea, my doctor first said it was my teeth,  I was dumb and had most taken out, only to wear a mouth piece that sucks.  I'm 36 with dentures, how about that for sucking?  Then they thought I was having migranes,  My Mom finally went to this site and diagnosed me with chronic clusters, took the CH test, took the results to him, and the rest is history!!
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #14 on: Aug 1st, 2006, 3:45pm »
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18
now 30
many yrs left to go  
 
 
Turts
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #15 on: Aug 1st, 2006, 3:47pm »
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I was probably 7-9. Got them very infrequently. Became chronic around 1985. I can remember my dad telling me everybody gets headaches, quit being such a baby. I knew what a regular headache was, I had them almost daily, as I still do, but nothing like the "Beast". I wished so many times he'd get one, just to spite him. Eh, he's 81 now, but every once in a while, I wish I had a cluster in a hand bag I could give him and be able to tell him to "Buck Up" everybody gets them!
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #16 on: Aug 1st, 2006, 3:47pm »
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Age 33,  currently 51.
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #17 on: Aug 1st, 2006, 4:29pm »
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I was 17 (and a half) when I started.
 
I am now 41.
 
They were first diagnosed as sinus headaches.  In my early 20ss a doctor suggested CH, but wouldn't give a definite because I didn't have insurance and he wanted me to have a CT.
 
A couple of years later (mid 20s), I got the "official" word.
 
I always hope that because I started CH "early" that they would leave earlier than normal.  One can hope. mellow
 
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #18 on: Aug 1st, 2006, 4:36pm »
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5th grade so 10ish. Full blown hits every day at same time for a month, then was gone. again 9th grade, then back again in 11th grade.
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #19 on: Aug 1st, 2006, 7:18pm »
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26
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #20 on: Aug 1st, 2006, 7:49pm »
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1st cycle started 1 month prior to my 19th  birthday, so 18 years old...  
 
36 now.
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #21 on: Aug 1st, 2006, 10:00pm »
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26.
 
Now 59 and still get one or two KIP 4's a month. Always been eposodic. Haven't had a true cluster cycle for 7 years.
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #22 on: Aug 1st, 2006, 10:05pm »
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Do you fish Kev??
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #23 on: Aug 1st, 2006, 11:37pm »
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23 - now I'm 36
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Re: AT WHAT AGE DID YOU FIRST MEET THE BEAST?
« Reply #24 on: Aug 1st, 2006, 11:43pm »
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age at on set:25, episodic for 24 years-now-at the half century mark-chronic.  
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