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Topic: Are you in cycle right now? (Read 654 times) |
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sandie99
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Are you in cycle right now?
« on: Jul 15th, 2006, 2:38am » |
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I was just wondering that who is in cycle now? Who is in remission? How are our chronics taking take summertime?
I'll start. I'm back being episodic (yahoo!) and I consider myself to be PF. The heat did bring little shadows with it, but it's okay. I did get hit two weeks ago, but luckily for me, it didn't last long (I'm grateful about that because I was in a car during the hit and no Red Bull/any other ch meds around). I keep caffeine tablets with me now and a can of energy drink in my fridge, just in case.
Wishing PF summerdays to all,
Sanna
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George_J
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Re: Are you in cycle right now?
« Reply #1 on: Jul 15th, 2006, 3:02am » |
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Very glad you're doing well now, Sanna.
I'm episodic, recently finished a cycle, and am in full remission right now.
Best,
George
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Debonair.
(Ellen)
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unsolved1
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Re: Are you in cycle right now?
« Reply #2 on: Jul 15th, 2006, 3:30am » |
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I'm chronic  October will make it 6 years straight 
Enjoy your pain free times.
UNsolved
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frizzle
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Re: Are you in cycle right now?
« Reply #3 on: Jul 15th, 2006, 6:35am » |
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6 weeks into a cycle I'm trying to be as med free as possible.
I'm at the just-shoot-me-in-the-face stage.
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alchemy
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Re: Are you in cycle right now?
« Reply #4 on: Jul 15th, 2006, 7:15am » |
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I'm chronic. The last few days have been 115-116 definate head banging weather
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jenrob2006
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Re: Are you in cycle right now?
« Reply #5 on: Jul 15th, 2006, 8:50am » |
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I am in a cycle that according to previos ones, should be ending in two to three weeks. No telling. We just moved from FLorida to SC and it started. I would not think there would be too much difference in the summer weather between the two states.
My heart breaks for the chronics.  Much love you guys! 
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E-Double
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Re: Are you in cycle right now?
« Reply #6 on: Jul 15th, 2006, 9:08am » |
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Since March 2004.
I have high and low cycles within that are even more defined since off meds.
I feel better about it that I atleast get a clear cut few days off here
Life's good
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| « Last Edit: Jul 17th, 2006, 6:05am by E-Double » |
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Guiseppi
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Re: Are you in cycle right now?
« Reply #7 on: Jul 15th, 2006, 11:37am » |
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I THINK I'm still episodic since by definition I have to go 4 more months without a break before I am officially chronic. My cycles usually go for two to three months, this one should have left me by January. Every time I go pain free for 4 weeks I am supposed to go off my lithium. Everytime I've gone off my lithium I get SLAMMED! I don't know if it's the weird weather this year, me getting older, or the Chinese sending radio waves into my brain. But for now I am the comfortable resting place for his royal pain in the ass, the beast!
Guiseppi
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walkertexasranger
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Re: Are you in cycle right now?
« Reply #8 on: Jul 15th, 2006, 12:31pm » |
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Episodic, cycle began 8 days ago. 
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ShaneM
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Re: Are you in cycle right now?
« Reply #9 on: Jul 15th, 2006, 3:03pm » |
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Episodic. Following Drs orders to the letter for the first time ever (Meds that is) and starting to think that it is just dragging the cycle out. I am in the duration of year for the cycle but it usually only last 6 wks. I am on my 10th wk. The only reason I am PF at the moment is because of a high taper of prednisone. I should be off of that next wk and we will know for sure. Still shadowy though, not really pain, but there is a pressure of sorts in the HA temporal area. Any thoughts?
Shane
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kcopelin
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Re: Are you in cycle right now?
« Reply #10 on: Jul 15th, 2006, 3:09pm » |
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Episodic from 1981 until March 2005-chronic daily since March. On the positive side, I don't have to be anxious about the next cycle or hit-they come every day. Fortunately, melatonin and benadryl have knocked off the night time hits-otherwise I would not be posting.
Hope everyone get a break, for goodness sake!
PFDAN,
Kathy
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kcopelin
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Re: Are you in cycle right now?
« Reply #11 on: Jul 15th, 2006, 3:13pm » |
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Guiseppi,
thought you were out of cycle-did the beast return? I'm so sorry to hear that my friend. PF wishes for you, bro.
Kathy
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Guiseppi
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Re: Are you in cycle right now?
« Reply #12 on: Jul 15th, 2006, 5:56pm » |
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Went 8 days pain free and started doing my end zone, life is good, happy dance!^%$^$&%$&$##^% Apparently I was only on the 5 yard line. On the plus side, the lithium is still mostly holding it at bay so relative to many on this board I can't bitch. But it is starting to look like I may be turning the chronic corner.
Guiseppi
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Thomas_Martin
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Re: Are you in cycle right now?
« Reply #13 on: Jul 15th, 2006, 6:12pm » |
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Chronic and been hit hard these last few days.
Had 3 kip 8's within a space of 4 hours in the night. I blame it one the weather and my allergies.For some reason I usually get hit harder while my hayfever rages.
That was one of does days where you actually feel more tired when you wake up then when you went to bed.
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| « Last Edit: Jul 15th, 2006, 6:13pm by Thomas_Martin » |
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rhino
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Re: Are you in cycle right now?
« Reply #14 on: Jul 15th, 2006, 11:05pm » |
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Episodic for thirty years, now I am four months into a cycle and no end in site.
My Neurologist put me in the hospital for three days saying that would knock it out, No luck with that.
I have taken about every med I have read about on this site, no luck.
The thought of being chronic makes me sick to my stomach,, how do you deal with this shit on a full time basis.
Randy 
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FRANKYT1963
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Re: Are you in cycle right now?
« Reply #15 on: Jul 15th, 2006, 11:45pm » |
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 ABOUT 2 WEEKS INTO CYCLE. I GET 1 CH IN AM, 1 IN AFTERNOON, AND USUALLY 1 OR 2 AT NIGTH,  . I' VE BANGED MY HEAD AGAINST THE WALLS SO MANY TIMES, I RAN OUT OF SPACKLE  . DAMN HEAT SEEMS TO BRING ON MORE CH'S, AND IT SEEMS LIKE IT'S ONLY GOIN TO GET WORST .
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HANG IN THERE!!!
RED BULL RULES!!!
CYCLES SUCK!!!!!
BEST OF LUCK!!!!!
FRANK
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TimJohnson
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Re: Are you in cycle right now?
« Reply #16 on: Jul 17th, 2006, 12:02am » |
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Randy, where are you located?
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TxBasslady
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Re: Are you in cycle right now?
« Reply #17 on: Jul 17th, 2006, 1:13am » |
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Episodic
No definite cycle. My hits are random....can come anytime...but most always at night. I use Excedrin Migraine for shadows....that has worked very well for me. Also a cup of hot tea will kick a shadow for me.
Always happy to hear that one is pf, Sanna. 
Jean
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Melissa
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Re: Are you in cycle right now?
« Reply #18 on: Jul 17th, 2006, 9:04am » |
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Episodic. Unexpected cycle was Dec.05'-Jan06'. Used to get my cycle every 18 months or so, now I'm worried it'll be every year or completely sporadic.
Guess I'll just have to wait and see!
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BobG
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Re: Are you in cycle right now?
« Reply #19 on: Jul 17th, 2006, 11:53am » |
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No.
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noneya
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Re: Are you in cycle right now?
« Reply #20 on: Jul 18th, 2006, 1:02am » |
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Episodic for bout 13 years (since age 16). Use to come every year for 8 to 10 weeks until a 4th of July celebration where I ate some shrooms to brighten the fireworks show. Ever since my cycles have been every 2 years.
unsolved1, alchemy, E-Double, kcopelin, Thomas_Martin, rhino and all you other chronics out there...I don't know how you do it. You guys and gals are some really strong people...much stronger than me!
BJ
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| « Last Edit: Jul 18th, 2006, 1:02am by noneya » |
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toonzboss
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Re: Are you in cycle right now?
« Reply #21 on: Jul 18th, 2006, 1:11am » |
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Definitely Sanna, I had been PF from 02 to about 10 weeks ago and I think I am coming out of a cycle simply because they are coming at noon, late afternoon and into the late nights, at least I'm hoping that is indicating the END of the cycle.
I didn't keep any journal on ch when they started in 86/87 and went for a long time between 2002 and this year so I really don't have a written history to establish frequency and time of day/night etc.....
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That Is All.
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pattik
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Re: Are you in cycle right now?
« Reply #22 on: Jul 18th, 2006, 9:48am » |
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Sanna, I'm episodic, and finished up a cycle in May. Hope that's it for a while.
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danm
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Re: Are you in cycle right now?
« Reply #23 on: Jul 18th, 2006, 10:36am » |
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Episodic.....had my worst cycle ever earlier this year. It lasted about 4 months, ended in May. PF since then, thank god. PF wishes to all.
Dan
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these things suck!!!!
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Charlotte
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Re: Are you in cycle right now?
« Reply #24 on: Jul 18th, 2006, 8:23pm » |
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chronic. I'm doing very well on kudzu & a red bull or 2 a day and an occasional 1/4 tab of maxalt mlt. I would so like not to be chronic. What is the criteria. I'm all the way down to shadows. If I keep this up for a month, do I graduate out of chronic?
Charlotte
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