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Topic: new member (Read 463 times) |
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Sam Rothman
New Board Newbie
I love YaBB 1G - SP1!
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Posts: 4
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Hi everyone,
Until I found this site, I honestly thought I was possessed by some kind of demon out to destroy my life, now I know there are many others fighting the devil.
I am new but wanted to share some info. I am taking "Amerge" (naratriptan hydrochloride) and it is working. I can feel the pain starting, take half of a 2.5mg tab and it usually stops the attack in its tracks.
Sam
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Jonny
CH.com Alumnus
New Board Hall of Famer
Give me a shovel Ill dig my own grave!
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Posts: 26213
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Re: new member
« Reply #1 on: Jun 21st, 2006, 7:05pm » |
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on Jun 21st, 2006, 6:57pm, knucklehead wrote:| I honestly thought I was possessed by some kind of demon out to destroy my life |
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You are, we call it "The Beast"
On this site you will learn how to battle the beast and take your life back.
Sorry you have to be here, but welcome to the family.
The folks will be by soon to welcome you.
Never give up!!!!!
............................jonny
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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medic1852
CH.com Alumnus
New Board Hall of Famer
This will only hurt for a little while!
 
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Posts: 923
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Re: new member
« Reply #2 on: Jun 21st, 2006, 7:11pm » |
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Hidy ho Sam. Sorry your here but glad to meet you.. Read up and hopefully you will find what you need and friendship to boot.
Rodger
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Shoot Low Sherrif He's Riding a Sheltland Pony!
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Linda_Howell
CH.com Alumnus
New Board Hall of Famer
Hearing is one thing. Listening is another.
 
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Posts: 6721
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Re: new member
« Reply #3 on: Jun 21st, 2006, 8:53pm » |
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Welcome to the jungle-gym Sam,
Amerge is one of a group of drugs called Triptans and it's great, but takes a while to take effect in the pill form. Might want to ask your Dr. for Imitrex nasel spray or injections.
We're a contentious bunch but we don't bite and we'll all try to help you in any way we can.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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Mattrf
New Board Hall of Famer
Thank god for my wife and kids who keep me alive.
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Re: new member
« Reply #4 on: Jun 21st, 2006, 9:36pm » |
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Welcome aboard Sam and welcome to the funny farm, feel free to ask questions and vent all you want if there is one thing we understand on this site, it’s each other and our pain.
Matt
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There is no stronger a person then one who can deal with brain pain and still function.
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BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
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Re: new member
« Reply #5 on: Jun 22nd, 2006, 6:48am » |
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Welcome to Clusteville Sam. Grab a chair and READ READ READ.
someone is here 24/7 if you have a problem or need to vent. And most of us have "been there - done that" so we KNOW how you feel.
Hugs BD
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What don't kill ya, Makes ya stonger!
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Sandy_C
CH.com Alumnus
New Board Hall of Famer
Burn that bra!
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Posts: 2585
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Re: new member
« Reply #6 on: Jun 22nd, 2006, 1:00pm » |
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Hi Sam, nice to meet ya!
Make sure you read up on the oxygen tips to the left. O2 has worked miracles for so many people here, and it's not a drug, it's safe, has no harmful side effects, and will abort a hit in minutes.
I haven't tried Amerge tabs, but I do have Imitrex (Sumatriptan) tabs that I do take. Both are slow acting. I'm one of those scarey cats who just can't fathom sticking myself with a needle, so I haven't tried the injections yet. But, I am/have tried alternative meds. Go to the Medications board and read up on Kudzu - it's been very helpful to many of us, and go to
clusterbusters.com where you'll find info on other alternative meds.
Welcome home, Sam. You've found family that you never thought you'd have.
Sandy
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Lean on me when you're not strong
And I'll be your friend
I'll help you carry on
For it won't be long
Till I'm gonna need
Somebody to lean on
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George_J
CH.com Alumnus
New Board Hall of Famer
White-Breasted Nuthatch
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Posts: 4222
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Re: new member
« Reply #7 on: Jun 26th, 2006, 12:12pm » |
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Welcome, Sam.
Nope, you're not alone. I understand what you're saying about being possessed--the odd thing about these nasties is that it's as if you're being attacked by something outside, and not within. Why is that such a common perception, I wonder?
Anyway, look around and judge for yourself as far as this site is concerned. I've gotten better information and advice here than anywhere else I've ever been.
Wishing you many PF nights and days.
George
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Ah! The foreigners put on such airs
Wearing the tangerine suits
And their harlequin eyes.
The pain they inspire
Draws in harmonica melodies
And the feathers of birds
Which flame up at their touch.
It all comes to light in the sheer
Debonair.
(Ellen)
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Bob P
New Board Hall of Famer
Shut up Bob!
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Re: new member
« Reply #8 on: Jun 26th, 2006, 2:54pm » |
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Hi Sam. Good you've found an abortive that works. Now time to work on a preventative. May ask about:
Verapamil
Topomax
Prednisone
Clusterbusters
Good luck to ya.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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BlueMeanie
CH.com Alumnus
New Board Hall of Famer
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Posts: 1178
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Re: new member
« Reply #9 on: Jun 27th, 2006, 7:51pm » |
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Hi Sam & Welcome,
I agree Amerge works pretty good, but you have to take it immediately as soon as the "oh shit" feeling comes.
I get Amerge refills only because the insurance don't cover enough Trex. Sprays and Injections are much much faster. (If you get more than one type of Triptan, NEVER take them both within at least 24 hours of each other). It is very dangerous to mix Triptans.
It's funny how we all think there is a Beast out there even before we find this site. 
Take care & PFDAN vibes to ya. Hope your cycle is short.
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Charlie
CH.com Alumnus
New Board Hall of Famer
Happy to be here
  
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Posts: 14968
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Re: new member
« Reply #10 on: Jun 27th, 2006, 9:24pm » |
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Welcome Sam and I'm sorry you have to deal with this horror. I'll leave the drug treatments to the others but here something that worked well for me. I may sound strange but give it a shot.
35 years ago, I met a no-nonsense neurologist and he was a godsend. I had just begun seeing him for my epilepsy when my fall CH cycle began I made an extra appointment hoping hecould help me deal with this horror. He could and he did.
Dr. Wright’s Circulatory Technique:
I am not sure what mechanism is triggered by this but whatever it is, at least indirectly helps kill the pain. I do know that this technique has nothing to do with meditation, relaxation, or psychic ability. It is entirely physical and takes some work. It involves concentrating on trying to redirect a little circulation to the arms, hands, or legs. It can described as a conscious circulatory flexing. Increased circulation will result in a reddening and warming of the hands. Try to think of it as filling your hands with redirected blood. The important and difficult part is that it has to be done without interruption through the pain. Do not give up in frustration. It may not work on the first try. Every now and then it will work almost immediately. I lived for those moments. Try experimenting between attacks. You will find that it gets easier with practice.
I was given less than five minutes instruction in the use of method. The doctor, while placing his arm on his desk, showed me that he could slightly increase his arm and hand circulation. After several attempts, I was able to repeat this procedure and use it successfully. I have had about a 75% success rate shortening these attacks. My 20 minute attacks were often reduced to 10 minutes or less. Once proven that I had a chance to effectively deal with this horror, I always gave it a try as I had nothing to lose but pain.
Perhaps it will help if you think of it as trying to fill the arm as if it is were an empty vessel. I used to try to imagine I was pushing blood away from my head into my arm. Use your imagination. There is one man who wrote that his standing barefoot on a concrete floor shortened his attacks. This may be similar as it draws some circulation away from the head. Cold water, exercise, or anything affecting circulation, seems to be worth a try. My suggestion is to not let up immediately when the pain goes. Waiting a minute is probably a good idea. So long as you do not slack off, this has a chance of working.
This technique is very useful while waiting for medication to take effect or when none is available. It costs nothing, is non-invasive, and can be used just about anywhere. It is not a miracle but it helped me deal with this horror. It can be a bit exhausting but the success rate was good enough for me and a cluster headache sufferer will do just about anything to end the pain. It gives us a fighting chance.
Charlie
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There is nothing more satisfying than being shot at without result---Winston Churchill
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Jasmyn
CH.com Alumnus
New Board Hall of Famer
Each day will be a new trick in life's journey
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Re: new member
« Reply #11 on: Jun 28th, 2006, 4:15am » |
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Hi Sam, I'm glad you found us. This is a great place and a hell of a support group. 
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Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
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