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Topic: relief??? (Read 283 times) |
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jamieann
New Board Newbie
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hi, i am new here but have been suffering from what i believe to be episodic cluster headaches for about 8 years
i wont get into what a nightmare it is to try to get a reasonable diagnosis from the quacks i have been to...
i am just trying to find treatment options because although some things provide temporary partial relief, nothing really works to stop them
butalbital has helped to an extent, mostly because it knocks me out... but for that same reason i cant take when i need to work
if i combine anti-inflammitories with a hot shower when it is just beginning sometimes it provides some partial relief and sometimes delays the inevitable for a little while...
aside from that nothing else seems to work
any suggestions you have would be greatly appreciated
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Sean_C
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Hi Jamie, there's a number of things you can try to abort a cluster.
Some good info on the left side of the board
Sean................................
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AussieBrian
New Board Hall of Famer
Got beer?
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Re: relief???
« Reply #2 on: Jun 18th, 2006, 10:24pm » |
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Yeah, what Sean said. Oxygen is a great place to start, along with the water x 3. Also, the first post in CH Specific, "Hints" is well worth a read.
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| « Last Edit: Jun 18th, 2006, 10:27pm by AussieBrian » |
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Vulcrania horrendus - twice daily, then two at night in lieu of sleep.
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Bob_Johnson
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Re: relief???
« Reply #3 on: Jun 19th, 2006, 7:16am » |
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This is the best single source of info on current therapies.
Here is a link to read and print and take to your doctor. It describes preventive, transitional, abortive and surgical treatments for CH. Written by one of the better headache docs in the U.S. (2002)
http://www.brightok.net/~mnjday/chtherapy.pdf
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Bob Johnson
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Redd
CH.com Alumnus
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Re: relief???
« Reply #4 on: Jun 19th, 2006, 9:00am » |
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Hi Jaime,
Sorry you needed to find this place, but there is 100's of years worth of cumulative experience here. None of us are doctors, and we cant diagnose, but we are expert patients.
Many of us have had difficulty in getting diagnosed over the years as well, and have suffered in ignorance of what we really had. Now first things first I want you to understand that there are conditions that can mimmic CH, and some of the meds we use can be dangerous and/or downright deadly for someone who doesn't actually have CH. Print out that onfo from the link Bob posted, take it to your Doctor and demand a referal to a headache specialist Neurologist. From there, he will do a few tests to rule out any other organic cause of the headaches and get your diagnosis figured out so you can start a treatment program. Many conditions that mimmic CH are much more easily treated, and for your sake I hope this is the case for you. If not, and you actually have this horror called CH...Welcome home.
Keep us posted as to the progress with your treatment.
Pegg
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| « Last Edit: Jun 19th, 2006, 9:01am by Redd » |
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I saw an act of faith today. A man was on his knees, not in a pew in a Church, but in a garden planting seeds. ~~Unknown
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