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Topic: what are these? (Read 533 times) |
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maffumatt
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I have been getting odd headaches for awhile, it feels like my brain is sloshing around in my head. Every movement of the head is painful. It would be around a 5 or 6 on the Kip scale but I can lay down and sleep it off. I don't get many of them maybe 1 a month but if I don't sleep them off they last for hours and hours. I only get them when I am in a CH cycle. When at home they aren't to bad but like tody I had one for around 6 hours while I was at work.
Matt
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Charlotte
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Re: what are these?
« Reply #1 on: Jun 9th, 2006, 8:29pm » |
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Do you get nauseaous and sensitive to light, and are you able to be still and not active? It may be migraine. I get them frequently towards the intense ends of the mini-cycles within the never ending cycle.
Charlotte
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| « Last Edit: Jun 9th, 2006, 8:30pm by Charlotte » |
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maffumatt
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I don't get nausea, but bright lights and sounds are pretty hard to deal with. With CH sounds don't bother me but with these any sound is annoying. I did try a trex injection for one and it did not make it go away.
Matt
edited to add..........if 2 ML works for CH would the same amount work on a migrain? Or would it need to be the full .5 ML in the vial to be effective?
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| « Last Edit: Jun 9th, 2006, 8:45pm by Mattchew » |
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pattik
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Re: what are these?
« Reply #3 on: Jun 9th, 2006, 8:43pm » |
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Matt, Sounds a lot like meegrains  . Any moving around can make them worse, and sleep is usually a good way to get rid of them. Are they on the same side as the CH? At any rate, if you are in a CH cycle, your trigeminal nerve is already hypersensitive. So migraine triggers could happen more easily. You may want to track your eating habits to see if something you're eating could be triggering them. I'm sorry to hear you have one more thing to contend with.
Hugs, Pat
edited to add: if the trex didn't work, then it makes me more concerned.
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| « Last Edit: Jun 9th, 2006, 8:45pm by pattik » |
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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Charlotte
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Re: what are these?
« Reply #4 on: Jun 9th, 2006, 8:47pm » |
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Did your scalp feel like a wasp stung it? Do you have certain sensations that accompany kind of headache. Do they occur at home or at work?
Also, do you have a relationship with a doctor?
I don't have a solution, but if you monitor yourself for some of the things that occur simultaneously and take your triptins as early as possible, it may help, for in the future. If I miss the beginning of one, meds don't help much.
Charlotte
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| « Last Edit: Jun 9th, 2006, 8:50pm by Charlotte » |
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maffumatt
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no my scalp doesn't hurt, it starts like a shadow then progresses from there, it does hurt worse on my CH side, but also at the back of my skull, not the neck. For me CH is pretty predictable, when it starts I get twinges behind the eye, next my upper teeth on my right side start to hurt. If they go numb I know its time to take a shot because in a few min they will start to scream, and i know the CH will be an 8 or up. If they just continue to ache it will only be a 5 to 7 and I don't waste trex on those. With these the teethe ache, I get twinges behind the eye, then within 20 min or so it feels like my brain is sloshing around in my head and it kinda burns, not my scalp but my brain. I know your brain doesn't "feel" pain but thats what it feels like. Ecedrine migraine doesn't work on them, but a BC powder will lessen it for awhile, but untill I go to sleep it will be there. Even a 45 min nap will get rid of them. I've had them at all times of day.
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| « Last Edit: Jun 9th, 2006, 9:14pm by Mattchew » |
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Jonny
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Re: what are these?
« Reply #6 on: Jun 9th, 2006, 9:25pm » |
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on Jun 9th, 2006, 8:43pm, pattik wrote:| Matt, Sounds a lot like meegrains |
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All I can say is.....buy a dress......LMMFAO 
(Its a joke)
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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maffumatt
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on Jun 9th, 2006, 9:25pm, Jonny wrote:
All I can say is.....buy a dress......LMMFAO
(Its a joke)
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can I borrow yours?
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pattik
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Re: what are these?
« Reply #8 on: Jun 9th, 2006, 9:28pm » |
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All I can add at this point is to relate how my migraines were for me (don't get them much anymore). I would describe the pain as "throbbing" from the temple on back. Any movement, especially bending down and picking something up, for instance, would make it a lot worse. Movement is the enemy. Lying still in the dark would be the best thing, and sleep would always get rid of it.
After being caught a few times without any meds on me, I figured out how to deep-breathe them away. Unfortunately, this hasn't worked for my CH.
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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pattik
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Re: what are these?
« Reply #9 on: Jun 9th, 2006, 9:30pm » |
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on Jun 9th, 2006, 9:28pm, maffumatt wrote:
He doesn't like to share his "special" clothes.
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The voyage of discovery is not about seeking new landscapes, it's about having new eyes--Marcel Proust
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maffumatt
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on Jun 9th, 2006, 9:28pm, pattik wrote:
After being caught a few times without any meds on me, I figured out how to deep-breathe them away. Unfortunately, this hasn't worked for my CH. |
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How sweet would that be........
Thanks Pat
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mzrolwes
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Re: what are these?
« Reply #11 on: Jun 14th, 2006, 7:27am » |
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Sounds more like a migraine to me. My migraines start slowly and you don't know how bad they are going to be until too late. I tried Imitrex for them but I could never catch them in time for it to work. Zomig is the only thing (that I know of anyway) that will get rid of a migraine once its already started.
Excedrine migraine doesn't work. Period. Although it works for my husband's migraines. He's lucky enough to get an aura about 30 minutes prior to an attack and can take the excedrine and a coke, close his eyes and it won't start....lucky bastard.
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Marcella
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Katherinecm
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Re: what are these?
« Reply #12 on: Jun 14th, 2006, 3:30pm » |
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For very mild migraines those powdered mixes (I think it's BC Powders?) of caffeine, aspirin, and tylenol help me, especially when swallowed with a caffeinated drink.
For bad migraines nothing has ever helped me except for Topamax. It has terrible side effects, especially if you taper up too fast. But it was somewhat effective for CH for a while. You might try that.
(I have had an intractable migraine along with my CH ever since this episode started more than a year ago).
Katy
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http://www.squidoo.com/clusterheadaches/
"We are not human beings having a spiritual experience. We are spiritual beings that have a human experience." Teilhard de Chardin
"It is not death or pain that is to be dreaded, but the fear of pain or death." Epictetus
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Charlotte
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Re: what are these?
« Reply #13 on: Jun 14th, 2006, 3:52pm » |
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I'm sorry, Katy. There's nothing like a combo plate.
Charlotte
P.S. Guys, I wear pants when I have migraine, not a dress. But please post us a picture when you finally pick one out.
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Katherinecm
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Re: what are these?
« Reply #14 on: Jun 14th, 2006, 4:49pm » |
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on Jun 14th, 2006, 3:52pm, Charlotte wrote:I'm sorry, Katy. There's nothing like a combo plate.
Charlotte
P.S. Guys, I wear pants when I have migraine, not a dress. But please post us a picture when you finally pick one out. |
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LOL. Actually the migraines aren't bad compared to CH. It's almost like having a constant sinus infection with occasional vomiting. Annoying, but in comparision easy to live with. It's frustrating to never feel good though.
I'd like to see the picture too!
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http://www.squidoo.com/clusterheadaches/
"We are not human beings having a spiritual experience. We are spiritual beings that have a human experience." Teilhard de Chardin
"It is not death or pain that is to be dreaded, but the fear of pain or death." Epictetus
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