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Topic: Looking forward to get older? (Read 847 times) |
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Guiseppi
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Re: Looking forward to get older?
« Reply #1 on: May 26th, 2006, 7:37pm » |
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I kept hoping I'd grow out of them. There are people in their mid 70's on this board, they still haven't stopped. Then there is Jonny, all of a sudden stopped after being chronic forever. So hope for the best, prepare for the worst. Good luck.
Guiseppi
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BlueMeanie
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Re: Looking forward to get older?
« Reply #2 on: May 26th, 2006, 8:08pm » |
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1st 14 years: 2 cycles a year. (6 months of CH's annually).
Next 7 years: 1 cycle a year (4 months of CH's annually).
Next 7 years: 1 cycle every other year (2 months of CH's annually).
Coincidence ?? Dunno, but I have had less and less each year. 
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Guiseppi
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Re: Looking forward to get older?
« Reply #3 on: May 27th, 2006, 11:18am » |
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I still haven't decided if I'm getting better at managing these or they have gotten less intense over the years. Obviousley in the 70's, when it was only aspirin and tylenol, I was running pretty much naked. Now I have oxygen, cafergot, prednisone, imitrex and lithum! And I did just finish a 2 year remission, the longest ever.
I'm still hoping to pull a "Jonny" and wake up one day without them!!
Guiseppi
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Jonny
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Re: Looking forward to get older?
« Reply #4 on: May 27th, 2006, 11:48am » |
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on May 27th, 2006, 11:18am, Guiseppi wrote:| I'm still hoping to pull a "Jonny" and wake up one day without them!! |
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I hope that for you as well, My friend!
It is heaven without the pain, but it is hell whenever I feel the slightest twinge in my head. I never had to deal with the fear of them coming back all those years I was chronic, now, I worry every time I feel anything in my head.
It still beats the pain though!, never give up folks.....this could happen to you!!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Barry_T_Coles
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Re: Looking forward to get older?
« Reply #5 on: May 27th, 2006, 9:09pm » |
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This is a strange beast that makes its own rules.
Up until I was fifty one I had nothing more than a decent hangover then I got my first battle with the beast that lasted around ten weeks and went away just as quick as it came on.
Five years latter it was back and this time with a vengeance; the cycle lasted close on 13 weeks before I got a break from the big hits and settled in to 1 or 2 a week with constant shadowing, turned chronic and have been now for the last 17 months.
If it goes away with age then one should expect that I’m going to live to be a hundred. 
Good Luck in the battle
Kind Regards
Barry
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Dave
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Re: Looking forward to get older?
« Reply #6 on: May 27th, 2006, 9:59pm » |
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I imagine that 89 and 91 are strange out of the ordinary instances of CH syndrome.
But instances like these might contain clues to the cause. It might be useful to investigate what the heck could have brought this on at their age.
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sailpappy
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Re: Looking forward to get older?
« Reply #7 on: May 28th, 2006, 8:49am » |
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ClusterBud,
I havebeen hearing that about many health problems, It started at 19 when the golden age was 21, I'm 55 and still waiting for that golden Age!
I don't mean to sound anti Old but I don't know anyone in their 90's that has a computer, but I have been wrong before!!
Pappy
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chewy
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Re: Looking forward to get older?
« Reply #8 on: May 28th, 2006, 12:21pm » |
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Ch began at 19 YO. Annual cycles until I turned 44 YO.
I have been cycle free (not pain free) for the last 4 years.
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Jasmyn
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Re: Looking forward to get older?
« Reply #9 on: May 28th, 2006, 3:20pm » |
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This Beast is unpredictable at best. Cycles within cycles, shorter, then longer then shorter. I don't know if I'm Hansel or Grethel anymore, so I decided to stick with what I don't know about CH...
Somewhere, somehow, someone will eventually get enough scientific evidence together so that I can, someday make sense of this all, for now I just take it one day at a time. 
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Jazz 
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SophiaK
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Re: Looking forward to get older?
« Reply #10 on: May 28th, 2006, 4:32pm » |
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I'm in my 6th month, I have not had one day without HA's. I'm what they term 'old age onset'
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Phil L
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Re: Looking forward to get older?
« Reply #11 on: May 30th, 2006, 6:11pm » |
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You just never know with CH. Mine started in my 60's and continue unabated to this day. Go figure.
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When I get up in the morning and have to look down to see the grass
I know it's going to be a great day.
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Charlotte
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Re: Looking forward to get older?
« Reply #12 on: May 30th, 2006, 8:25pm » |
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Age is relative. I'm 56 and I would like to make it to 100, even with ch. I'm hoping we get some breakthroughs in the next few years.
I wish depression wasn't so common amongst us.
Charlotte
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Jack_of_Diamonds
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Re: Looking forward to get older?
« Reply #13 on: May 30th, 2006, 8:34pm » |
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i don't know, my headaches have been going down (from what i can tell) over the past 3 years...maybe it's my turn for a free cycle soon?
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Sandy_C
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Re: Looking forward to get older?
« Reply #14 on: May 31st, 2006, 12:41pm » |
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I guess I'm a "late bloomer" too. First ever CH was at age 53. Episodic (thank God), with cycles every 1-1/2 to 2 years, lasting anywhere from 9 to 16 weeks.
With the King's permission, I would like to make a suggestion. From this day forward, the goal of every CH sufferer in the world is to "Pull a Jonny". Do I hear any aye's?
Sandy
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Lean on me when you're not strong
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seasonalboomer
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Re: Looking forward to get older?
« Reply #15 on: May 31st, 2006, 12:43pm » |
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on May 31st, 2006, 12:41pm, Sandy_C wrote: From this day forward, the goal of every CH sufferer in the world is to "Pull a Jonny". Do I hear any aye's?
Sandy |
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Is that anything like pulling one's "willie"? If so, I already do so regularly.
Scott
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Barry_T_Coles
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Re: Looking forward to get older?
« Reply #16 on: Jun 2nd, 2006, 7:15am » |
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on May 31st, 2006, 12:41pm, Sandy_C wrote:I guess I'm a "late bloomer" too. First ever CH was at age 53. Episodic (thank God), with cycles every 1-1/2 to 2 years, lasting anywhere from 9 to 16 weeks.
With the King's permission, I would like to make a suggestion. From this day forward, the goal of every CH sufferer in the world is to "Pull a Jonny". Do I hear any aye's?
Sandy |
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Sandy
You got all the aye's from me.
Scott you are a sick puppy
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Worry is like a rocking chair it gives you something to do but gets you nowhere.
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Bob P
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Re: Looking forward to get older?
« Reply #17 on: Jun 2nd, 2006, 9:52am » |
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From age 20 to age 40 - 1 cycle every 8-9 months.
At age 40 remissions jumpped to 2 years in duration.
Each successive remission was 3 months longer.
Now age 55, last remission was 3 years 3 months long.
Kicker is that for those first 20 years each cycle was 4-6 weeks. Now they are anywhere up to 5 months in duration.
It's my contention that people who develope ch later in life tend to be chronic.
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KJ
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Re: Looking forward to get older?
« Reply #18 on: Jun 4th, 2006, 8:16pm » |
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You know, there is a lot of bad news, and bad experiences on this thread. I feel your pain, but I'm 44 and have had a great reduction in CH. Chronic for a while in my late 20s, and less ever since. So I hope to God that my large pain is over...it may be true, and that helps.
Keep the faith!
JBB
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Guiseppi
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Re: Looking forward to get older?
« Reply #19 on: Jun 5th, 2006, 2:14pm » |
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Stories like yours, Jonnies and others are what keep many of us hoping!!!
Guiseppi
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cluster
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Re: Looking forward to get older?
« Reply #20 on: Jun 9th, 2006, 5:31am » |
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Quote:
Name: Jonny
Posts: 18321
Position: CH.com Alumnus
Date Registered: Jan 20th, 2005, 8:35pm
------------------------------------------------------------------------ --------
ICQ:
AIM:
YIM:
Email: jonnymule@comcast.net
Website: Mule's house
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Gender: Male
Age: 99
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(Source)
Jonny,
at what age did you become painfree then?
PF Wishes!
Friedrich
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