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Topic: Well then, I just can't wait to be king (Read 579 times) |
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Dave
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Well then, I just can't wait to be king
« on: May 25th, 2006, 9:13pm » |
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I read a long time ago articles that stated that cluster headache sufferers tend to have a "leonine" appearance. In fact, I still see articles about CH's that say this.
Any of you folks have a leonine appearance (whatever the hell that means)?
Any lions out there? Roar.
Anyway, years and years ago my doctor told be this was an absurd load of crap. I wonder why this BS continues to persist. I thought that stereotypes that have no basis in reality were out of vogue these days.
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thebbz
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Re: Well then, I just can't wait to be king
« Reply #1 on: May 25th, 2006, 9:33pm » |
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Ya Dave, we are,"haggard" as well. Whatever that means. 
What do they know anyway.
Haggardly haggard.
jb
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Jonny
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Re: Well then, I just can't wait to be king
« Reply #2 on: May 25th, 2006, 9:50pm » |
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You got a long wait. 
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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Guiseppi
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Re: Well then, I just can't wait to be king
« Reply #3 on: May 25th, 2006, 10:25pm » |
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And we have orange peel skin, a ruddy complexion, taller then average, male, (sorry girls you're all faking it!!!!!!)................this all from the 80's when they first diagnosed me. Old myths die hard.
(And no, I don't think I look like a lion)
Guiseppi
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kcopelin
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good grief
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Re: Well then, I just can't wait to be king
« Reply #4 on: May 25th, 2006, 11:10pm » |
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When I was first diagnosed the neurologist said "This is a classic presentation of clusterheadaches aside from the fact that you are not male, middle-aged, with orange peel skin or leonine features." That was 20 some odd years ago. I'm still not and organge-peel skinned, lion-faced middle aged man. And my husband is very happy about that.
kathy
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| « Last Edit: May 25th, 2006, 11:10pm by kcopelin » |
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Words count, chose carefully.
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Linda_Howell
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Re: Well then, I just can't wait to be king
« Reply #5 on: May 25th, 2006, 11:17pm » |
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There is only ONE king. 
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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wildhaus
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Re: Well then, I just can't wait to be king
« Reply #6 on: May 26th, 2006, 1:10am » |
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on May 25th, 2006, 11:17pm, Linda_Howell wrote:
There is only ONE king.
Linda |
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 the only one is?
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Benjamin_michael
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Re: Well then, I just can't wait to be king
« Reply #7 on: May 26th, 2006, 6:33am » |
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i would say that the headaches would be the king in my life. they rule me. tell me to kick... i kick. tell me to hit my head... i hit my head. the king just has his own way of making me do what he says.
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LeLimey
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Re: Well then, I just can't wait to be king
« Reply #8 on: May 26th, 2006, 7:20am » |
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Michael the King is Jonny.. you'll see!
Benjamin, I can so understand how you feel but it's time to make like the French and guillotine the aristocracy hon. The only king in your head should be you, I understand where you're coming from but we need to get you some fighting spirit 
What meds are you using? Lets see if we can't come up with some suggestions to give you some better quality of life
Helen
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wildhaus
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Re: Well then, I just can't wait to be king
« Reply #9 on: May 26th, 2006, 7:36am » |
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on May 26th, 2006, 7:20am, LeLimey wrote:Michael the King is Jonny.. you'll see!
it's time to make like the French and guillotine the aristocracy hon. The only king in your head should be you,
Lets see if we can't come up with some suggestions to give you some better quality of life
Helen |
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Helen, The only king (queen) I have is my wife, she tells me what to do, when and how, she even tells me when I have my CH, get my meds.... O2 (can do) what ells, is there eny thing left, and Helen I cant use the guillotine for this one.......... sorry Jonny, you have to take a second seat.... oops Ill be alone at the convention..... who will think for me.....?
Michael
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LeLimey
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Re: Well then, I just can't wait to be king
« Reply #10 on: May 26th, 2006, 7:56am » |
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Michael it sounds like you'll be in trouble with no one to look after you! LOL I'm glad you recognise who is boss in your house. It's so refreshing to meet a man who knows his place
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Guiseppi
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Re: Well then, I just can't wait to be king
« Reply #11 on: May 26th, 2006, 12:01pm » |
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Lelimey, my wife laid it out for me 26 years ago, in writing cuz I'm kinda slow. My place:
1: Reproduction
2: Car repair
3: Lawn maintenance
If I haven't screwed up lately I get to hold the TV remote. (I really like that)
Guiseppi
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sandie99
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Re: Well then, I just can't wait to be king
« Reply #12 on: May 26th, 2006, 12:58pm » |
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on May 26th, 2006, 12:01pm, Guiseppi wrote:Lelimey, my wife laid it out for me 26 years ago, in writing cuz I'm kinda slow. My place:
1: Reproduction
2: Car repair
3: Lawn maintenance
If I haven't screwed up lately I get to hold the TV remote. (I really like that)
Guiseppi |
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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LeLimey
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Re: Well then, I just can't wait to be king
« Reply #13 on: May 26th, 2006, 3:24pm » |
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Guiseppi I like your wife!
now she's posting here too its even better.. tell her to get online more please!
Helen
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Linda_Howell
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Re: Well then, I just can't wait to be king
« Reply #14 on: May 26th, 2006, 9:16pm » |
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Helen? He ain't slow...he's smart. I met this guy in Sacramento at the meet-n-greet. He's almost as funny as Chewy, Randy or Jonny.
Linda
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Kindness, is gladdening the hearts of those who are traveling the dark journey with us.
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mischki
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Re: Well then, I just can't wait to be king
« Reply #15 on: May 28th, 2006, 12:06pm » |
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Richard's a Leo, does that count??
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KJ
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Re: Well then, I just can't wait to be king
« Reply #16 on: Jun 5th, 2006, 5:51pm » |
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I'm not sure if I'm leonine, but I actually do fit all the rest...orange peel skin, ruddy complextion, tall, male, and don't forget the hazel eyes. Surprisingly, all of this info helped in my diagnosis back in the stone age before computers (80's).
PS. It's all kind of subtle...I don't look like a tall, skinny orange with a tomato for a head, and olives for eyes!
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Charlotte
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Re: Well then, I just can't wait to be king
« Reply #17 on: Jun 5th, 2006, 6:42pm » |
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Well, I really wanted to meet someone with orange peel skin, but I don't think a tall skinny orange with a tomato head and olive eyes is orange peel skin, so I'm still waiting.
What I want to know is how many people are color blind. At the Sacramento meet n greet, there were 7 clusterheads and 4 of us were partially color blind. Also, about split down the middle for episodic or not.
No orange peel skin yet, though, although Nani once said she had some on her posterior.
Charlotte
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| « Last Edit: Jun 5th, 2006, 6:43pm by Charlotte » |
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Bob P
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Re: Well then, I just can't wait to be king
« Reply #18 on: Jun 5th, 2006, 6:45pm » |
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Quote:| (sorry girls you're all faking it!!!!!!)................ |
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You're learnin' Joe!
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AussieBrian
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Re: Well then, I just can't wait to be king
« Reply #19 on: Jun 6th, 2006, 12:48am » |
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on Jun 5th, 2006, 6:42pm, Charlotte wrote:| No orange peel skin yet, though, although Nani once said she had some on her posterior. |
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She told me that was hail damage.
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KJ
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Re: Well then, I just can't wait to be king
« Reply #20 on: Jun 6th, 2006, 5:50pm » |
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Hey Charlotte...really, orange peel skin. Not dimpled, like a hail damaged butt, but kind of groovy like a ruffles potato chip. I swear!
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