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Topic: Life goes on (Read 242 times) |
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sailpappy
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Life goes on
« on: May 21st, 2006, 4:27am » |
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Here I sit after the 4th cluster tonight, as usual I have given up on sleep and come to check and see who else is still with me?
I made a trip to Florida to pick up my Daughter and the newest Grandson, only to have fate step in and ruin it all again. After a grueling 12 hour drive with my trusty Ice Bag and 6 visits from Mr. Cluster we were preparing to order some diner and out of no where my daughter had a GrandMall seizure, fell dropping Baby John and stopped breathing for 5 minutes.
I would live in constant pain if only she didn't have to go through this now in her life.
John Michael is fine, but I will never get ovr thinking she had passed away on that floor.
After so much Drama with the clusters in our lives, a reality check snaps you right out of self pity mode when its presented like this was!
She's OK now, a one time event so far, I just started breathing normally again myself. OMG---back to the shower for #5
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| « Last Edit: May 22nd, 2006, 1:32am by sailpappy » |
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Jasmyn
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Each day will be a new trick in life's journey
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Re: Life goes on
« Reply #1 on: May 21st, 2006, 5:08am » |
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Pappy, firstly what a precious and beautiful grandson you have and I am so glad that he is fine after the fall.
My sister also has GrandMall epilepsy and it is very scary because after years and years she now usually end up in a coma for 2 - 3 days at a time after a seizure. What I know is that my CH cannot compare to a life like that and that I am the lucky one. If I could I would also rather have constant pain than have her go through this condition. Any excitement or stress out of the norm results in a seizure for her.
I'm sorry your daughter had to go through this and you as a parent.
Hang in there and keep on rowing, life is not always what we want but our kids stay a blessing and our condition keeps us humble.
Hope you get a break soon. 
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Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
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E-Double
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Are we ourselves?
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Re: Life goes on
« Reply #2 on: May 21st, 2006, 7:05am » |
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Best of luck!
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I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
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BobG
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Re: Life goes on
« Reply #3 on: May 21st, 2006, 11:30am » |
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Sorry to hear about your daughter (and you) having to
go through that experience. Glad everthing worked out
OK.
Good looking tyke you have there. He takes a really big picture! 
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Stay stressed. Never relax. Never sleep. Ever.
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