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Tom K
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Passing CH on?
« on: Apr 14th, 2006, 1:12pm » |
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Ok, I'll be the first to admit that I haven't searched, because my 'puter it too damn slow and I'm impatient. Since we have been dealing with this for a looonnnngggg time, I'm sure some of us have had kids. Well...the wife is in the "way" if you get my drift...Not through the 1st tri yet, so not trying to jinx anything yet. Anyhow, has anyone seen this CH thing of our's passed onto their children? I would feel so damn guilty if my kids got this from me. I have had no luck in finding anyone in my family that has CH, I guess I'm the lucky bastard, so could I possibly get that lucky and not pass it on?
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AfraidOfTheDark
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Re: Passing CH on?
« Reply #1 on: Apr 14th, 2006, 1:55pm » |
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I'm curious about this too. My mother said she suffered from clusters as well. But she also claimed it was kinda a stress thing because they disappeared as soon as she left her husband.  She also said she would lie in a dark room for hours and cry. Doesn't sound like clusters at all.
My uncle (mom's brother) was diagnosed as having clusters, he had some sort of nasal surgery that stopped his clusters, or whatever they were. I dunno, I should ask them. 
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Karla
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Re: Passing CH on?
« Reply #2 on: Apr 14th, 2006, 2:11pm » |
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2 of my 3 kids have migraines like me. One of my identical twins gets clusters also. He is eposodic where I am chronic.
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Karla
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Icey
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Re: Passing CH on?
« Reply #3 on: Apr 14th, 2006, 2:23pm » |
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Scarey yeah . I know some of my relatives get migrain but never heard of CH in my family , i'm the only one that I know of .. Having said this my youngest son suffers terrible travel sickness and tells me he gets dizzy spells ( he's 11 ) I read somewhere that this can be one of the signs of CH appearing
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Guiseppi
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Re: Passing CH on?
« Reply #4 on: Apr 14th, 2006, 5:13pm » |
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I'm one of 14 kids, none of my siblings or anyone on either my mom's or my dad's side ever had clusters. Several sisters have moderate to severe migrains, generally cycle related.
My daughters are 20 and 22 years old and ,(knocking furiously on wood), neither child seems to have "caught" them yet!!!!
Guiseppi
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BarbaraD
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Re: Passing CH on?
« Reply #5 on: Apr 14th, 2006, 5:41pm » |
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My grandmother, father and son have migraines but so far no clusters except me. My son shows signs, but won't go to the damn doc. I'm hoping his don't turn into CH, but so far he can still sleep them off so I think it's still migraines.
This is something we all worry about. There are some (a very few) who have clusters in families, but not that many. As far as we know they are not heritary (like migraines). That's another mystery about them.
Someday (probably when we're all dead and gone) we'll have all the answers. But until then, we can just sit back and wonder.
Hugs BD
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Tom K
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Re: Passing CH on?
« Reply #6 on: Apr 14th, 2006, 7:28pm » |
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Thanks for the quick responses, everyone. Lets me worry about one less thing. 
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Jasmyn
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Re: Passing CH on?
« Reply #7 on: Apr 15th, 2006, 6:52am » |
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Tom, yes, it is not going to help you or your wife to worry about it.
Some people here like Helen, has a son that also has CH.
My daughter has had symptoms and was diagnosed with CH a few years ago but for the past 2 years it seems more like migraines. So we are hoping that it is migraines and not CH... not that you want any child to suffer any type of illness.
My Father seems to have CH but he refuses to see a doc/neuro and believes it is his back that causes these. His answer to this is Chiropractors , although they haven't done a thing to improve his condition.
There might surely be a genetic link but so far it is not that common and there is no real evidence.
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mynm156
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Re: Passing CH on?
« Reply #8 on: Apr 15th, 2006, 2:11pm » |
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My mother had what my Dad calls SEVERE headaches regulary after a bouched up root canal. My Son and Daughter (different mothers) have issues with migraine however, my son started demonstrating classic CH a little over a year ago. In fact we just finished (HOPFULLY) his second season. The doctors pretty much treat him the same way as me except he take enderal everyday with his verapimil I take lopressor. He also has Butabitol for his migraine we both get Stadol for the clusters he almost never uses his. In fact the doctor and I agreed to dilute his a little. We added three cc's of saline. He is 17, 5'11'' 175lbs but still one full shot of that stuff and I am checking his breathing for the next two hours as he sleeps. Atleast this way he doesnt OD on it.
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lionsound
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Re: Passing CH on?
« Reply #9 on: Apr 15th, 2006, 5:36pm » |
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My two oldest boys get migraines like me. They wake up a lot like me. They also smile just like me and laugh like me and are smart like me too. 
You pass on a lot to your kids. Some you like and some you don't. The stuff you like is much stronger than the rest.
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| « Last Edit: Apr 15th, 2006, 5:38pm by lionsound » |
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Charlotte
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Re: Passing CH on?
« Reply #10 on: Apr 18th, 2006, 8:25pm » |
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I have 5 kids, none with cluster. None of my siblings or half siblings or nieces, nephews, cousins, aunts or uncles have clusters. Lots of headaches but no clusters.
I had a great aunt (paternal) who may have had clusters. My mom told me about them but I never saw them. My grandmother (paternal) never claimed to have headaches but my husband thinks she had them, now that he knows what "dancing with the beast" means. He said he saw her in that state, similar to mine.
I'm also the only partially colorblind one in the famliy. In Sacramento at the meet n greet, I asked if anyone else was color blind. Out of 7 of us, 4 were.
Charlotte
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| « Last Edit: Sep 5th, 2006, 3:27pm by Charlotte » |
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kaz101
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Re: Passing CH on?
« Reply #11 on: Apr 19th, 2006, 3:07pm » |
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I have an older brother who suffers from ch and my 21 year old son was diognosed with severe migrane from the age of 14 to 16 then they went alomost like clusters. Im not sure if im an episodic or chronic I had the 15 years ago and they come back last august only a few between august and december since when they have become almost constent im confused !
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Ming
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Re: Passing CH on?
« Reply #12 on: Apr 19th, 2006, 5:55pm » |
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My father had clusters almost identical to my own. My maternal grandmother had migraines.
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Killroy 2.0
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Re: Passing CH on?
« Reply #14 on: Apr 21st, 2006, 12:04pm » |
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I had a doctor tell me that there is a genetic marker for CH. Now does this mean that you will pass it on? It depens, I am not an expert on genetics but your child gets hafe your genetics and hafe your wifes and they have to combine just right in order for your child to end up with CH. You and your wife could have 20 kids they could all have ch, none could have ch or just 1. it is all in how the jeans combine.
Gena 
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floridian
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The genetic component is relatively weak compared to cystic fibrosis, sickle cell, or MD. There is an increased risk, but an overwhelming majority of kids of clusterheads do not end up with cluster headaches.
http://www.med-owl.com/clusterheadaches/tiki-index.php?page=Genetics
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| « Last Edit: Apr 21st, 2006, 1:46pm by floridian » |
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ArCane
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Re: Passing CH on?
« Reply #16 on: Apr 21st, 2006, 2:19pm » |
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My grandfather has CH, my great aunt has em, my aunt has em, my father has em, and I have em. Probably goes further back then that but no one knows. Looking at my relatives I would say roughly 66% of my offspring will have CH (when I actually have them). Ive talked to my father several times about this and how I wouldnt wish them on my worse enemy let alone my children. When we get on this subject he asks me if I would rather have not been born. Of course my answer is no. Dont let CH scare you. If your child doesnt get them, great, but if they do they will get through it, just like you. Life has its shares of ups and downs. Its all part of the game. One possitive is that you have CH and you can support your child and know what they are going through. I cant tell you how many times my father has helped me out and put things into perspective. Its great to have a supporter so close to you and so knowledgable about the pain. I wish you the best with your new arrival.
Best Wishes,
Allen
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boybath
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Re: Passing CH on?
« Reply #17 on: Apr 21st, 2006, 3:13pm » |
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Dads got it only found out what it was when I go diagnosed. Im the only one of 4 sons with it but time will tell how my 3 sons go as they are all 3 or under.... so yes I think we do
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Jbrigham77
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Re: Passing CH on?
« Reply #18 on: Apr 21st, 2006, 10:40pm » |
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I'm not sure either. My father, mother and sister all get migraines, I had them as a teenager,(more than 10 yrs ago now) Dads went away. he was my age when he got them, but seeing me now, he thinks it might not have been just migraines(but we're talking 20 some yrs ago now) mom's went away for the most part, my sisters just started, but they think her's are Hemaphlegic migraines(I'm scared of them), maternal g-mother has optic migraines, but she had had eye surgeries and has other health problems. But so far, I am the only one.
Odd thing is in my family, My mom, sister and I tend to have the same health problems, and my sister and I have the same allergies to medication. And no one in my family is "text book" anything, the normal methods just don't work for us, I had a HA from my 1st Trex injections early thursday morning, until a lil while ago.
PFN to everyone.
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Patrick_A
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Re: Passing CH on?
« Reply #19 on: Apr 30th, 2006, 10:52pm » |
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My Dad was diagnosed with CH's. His started fading away at the age of 44, Mine started coming on at about that same time. Ironic that his were leaving as mine were coming on. But whats even more eeeerie, I am 46 now and haven't had a CH since 8-2003. I am hoping my cycles are over.
Got my fingers crossed, Patrick 
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LeLimey
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Re: Passing CH on?
« Reply #20 on: May 1st, 2006, 5:43am » |
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There is a big gene research project going on here in Leicester University.. apparently they have isolated gene's/markers etc for CH but I haven't heard an update for a while. The thinking from there is that it IS hereditary and my son and I have both given blood samples for it.
Helen
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BlueMeanie
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Re: Passing CH on?
« Reply #21 on: May 3rd, 2006, 9:41pm » |
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My son is turning 23 this year and so far so good. NO CH. There are 8 kids in my family and lucky me... I'm the only one. At the Nashville convention the speaker said that people with parents of Clusterheads do have a greater chance of getting CH's. I think he said it was 1:11 greater chance than a normal person which is still very slim concidering it's 0.04 % in the first place.
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Katherinecm
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Re: Passing CH on?
« Reply #22 on: May 15th, 2006, 12:00pm » |
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My dad was never formally diagnosed but I am certain he had Chronic CH. I remember as a child him having HA many times during the day & night. He popped Goody's powders (powdered tylenol, aspirin, caffeine) constantly. He refused to see doctors about it by the time I was old enough to ask about it- he blamed it on the steel plate in his head from Vietnam.
What convinced me it was CH is that after he died I found some letters my mom wrote detailing his pain as focused in his left eye, with details about how severe they were. He apparently got all sorts of allergy shots, eyeglasses, and contact lenses hoping to cure the eye pain. His pain was on the same side as his injury.
Neither of my siblings has CH so far. The common denominator between my father & me is that we'd both had head/brain injuries on the same side as our pain.
I can tell you that if I decide to have children, they will be avoiding contact sports. I read some book called "Change Your Brain, Change Your Life: The Breakthrough Program for Conquering Anxiety, Depression, Obsessiveness, Anger, and Impulsiveness" by Daniel G Amen (a neurologist) shortly after I was diagnosed that discussed how brain injuries compound each other. IE: the fever induced seizures I had as a toddler, falling on my head in gymnastics, every time I got a gooseegg from my various childhood tomboy activities, heading the ball in soccer, and finally the car accident I was in where I was knocked unconscious all compounded each other. This neuro's policy for his own kids was NO CONTACT SPORTS to avoid brain injury. He also avoided giving them drugs entirely.
It didn't help me with CH, but I can't say I thouroughly gave his reccomendations a try, either. I was on prescription drugs and I didn't try every natural remedy he suggested... To be honest I was burnt out on alternative treatments at the time and only cared about the brain injury info...
Katy
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seasonalboomer
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Re: Passing CH on?
« Reply #23 on: May 15th, 2006, 12:14pm » |
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on May 15th, 2006, 12:00pm, Katherinecm wrote:I can tell you that if I decide to have children, they will be avoiding contact sports. I read some book called "Change Your Brain, Change Your Life: The Breakthrough Program for Conquering Anxiety, Depression, Obsessiveness, Anger, and Impulsiveness" by Daniel G Amen (a neurologist) shortly after I was diagnosed that discussed how brain injuries compound each other. IE: the fever induced seizures I had as a toddler, falling on my head in gymnastics, every time I got a gooseegg from my various childhood tomboy activities, heading the ball in soccer, and finally the car accident I was in where I was knocked unconscious all compounded each other. This neuro's policy for his own kids was NO CONTACT SPORTS to avoid brain injury. He also avoided giving them drugs entirely. time and only cared about the brain injury info...
Katy
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I wouldn't feed them either -- they could get poisoned from either chemicals in the food from pesticides or germs from the preparation in the ktichen
And I'll never take them in the car -- they could be killed in an accident
Nor, would I let them ride a bike -- more accidents than just about anything else.
Skateboards, nope.
Swingsets, nope.
What a fun childhood.....
Scott
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Katherinecm
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Re: Passing CH on?
« Reply #24 on: May 15th, 2006, 1:03pm » |
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Now that's not nice. There are plenty of non-contact sports. Track, Tennis, Baseball, Basketball, and more.
I didn't say I was going to be a completely overprotective loon, just that I wouldn't want them to risk the brain injuries that come from contact sports.
If you were chronic, and you were certain your dad was, and the link (besides genetics) was both several head injuries, you might feel the same way.
To each his own.
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"We are not human beings having a spiritual experience. We are spiritual beings that have a human experience." Teilhard de Chardin
"It is not death or pain that is to be dreaded, but the fear of pain or death." Epictetus
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