Author |
Topic: Chronics pain free? (Read 408 times) |
|
MJ
New Board Hall of Famer
Gender: 
Posts: 911
|
 |
Chronics pain free?
« on: Apr 8th, 2006, 6:54pm » |
 Quote  Modify
|
Chronics past and present
I know chronic is 1 year with no more than 30 days pain free. When I had my short chronic stints (3 yrs) my CH never changed and never more than a day or 2 off.
The Question is, how often if at all do you ever get a day completely free of CH?
If pain free days how many?
Thanks MJ
|
|
 IP Logged |
MJ
|
|
|
CHTom
Guest
|
Chronic since 1996 with a one-year break from 2001-2002, then chronic again since then with no more than a couple of pain free hours every now and then. I did have 5 pain free days after my DBS operation last year, but that was due to the trauma of the surgery.
|
|
IP Logged |
|
|
|
burnt-toast
New Board Hall of Famer
Gender:
Posts: 1686
|
|
Re: Chronics pain free?
« Reply #2 on: Apr 9th, 2006, 6:58am » |
Quote Modify
|
I'm a recently former chronic -a little over two months now and magically - mysteriously no real attacks although I've had a few good scares that never got off the ground.
While chronic, a day or three without an attack per week was a good week. For more than 3.5 years I averaged a little over 1.5 day per week without an attack.
Keep in mind this is an average - you have to consider the cycles within the cycle.
In my case:
It was not unusual for CH to not miss days between December and July.
It was not unusual to go PF free for three and sometimes four days between July and August, however this last July and August really sucked.
Frequency/severity would then ramp up September through November.
This year it didn't ramp back up in the fall/early winter and then dissappeared completely at the end of January.
These are my experiences, CH seems to manifest itself differently in everyone. Keep a good journal - it will help you better understand your condition, work more effectively with doctors and give you real insight into the effectiveness of medications and treatments.
Tom
|
|
IP Logged |
Would the owner of the propane torch, egg beater, pipe expander and vise grips please claim these items. They're lodged in my head and I need the space.
|
|
|
kayarr
New Board Hall of Famer
 
Gender: 
Posts: 906
|
|
Re: Chronics pain free?
« Reply #3 on: Apr 9th, 2006, 7:36pm » |
Quote Modify
|
Proxy answer:
(he's thinking about coming to the site though
Jeff has been chronic since 96' and he has had 5 days off in a row once in 5 years and once or twice a year he gets 1 day PF. Other than that a good day is only three in the day and two at night. The bad days are "headaches" every 20 minutes.
|
|
IP Logged |
Nothing is impossible! Just believe!!!!!
|
|
|
BarbaraD
CH.com Alumnus
New Board Hall of Famer
Hugs to ya
Gender:
Posts: 5164
|
|
Re: Chronics pain free?
« Reply #4 on: Apr 10th, 2006, 7:56am » |
Quote Modify
|
I very seldom have a day without at least having shadows (4-5), but the high cycles come usually in winter and autum (sometimes in summer and sping). They just come and I never known when or why -- I think it has to do with the barometer - my theory.
PF to me is a day with only shadows... those I can handle with coffee or Red Bull - no drugs. After about an 8, I hit the cafergot.
Hugs BD
|
|
IP Logged |
What don't kill ya, Makes ya stonger!
|
|
|
Charlotte
CH.com Alumnus
New Board Hall of Famer
I love YaBB 1G - SP1!
Gender:
Posts: 1932
|
|
Re: Chronics pain free?
« Reply #5 on: Apr 10th, 2006, 2:13pm » |
Quote Modify
|
I never really have a pf day. I have relatively pf days. I'm in a low cycle now and 3 times in the past 2 weeks I have been awakened because I was totally pf - it was like total silence, but it didn't last a day.
The end of a high cycle always feels like pf. Total is not necessary.
Also, isn't it odd how a 7 in a high cycle doesn't feel as bad as a 7 in a low cycle?
Charlotte
|
| « Last Edit: Apr 10th, 2006, 2:20pm by Charlotte » |
IP Logged |
|
|
|
Roxy
CH.com Alumnus
New Board Hall of Famer
Gender:
Posts: 2282
|
|
Re: Chronics pain free?
« Reply #6 on: Apr 10th, 2006, 3:26pm » |
Quote Modify
|
Chronic for five years now. Never have PF days. The few days I have had PF were due to the fine minds at clusterbusters and my orthopedic surgeon.
Even taking preventative meds....they would only knock me down to 3-4 ch's a day. Normal is 8-12 a day. But, I never, ever go a day without at least 2-3 hits.
Long acting triptans will give me PF time, but I don't have enough of them to use very often.
I just consider 3-4 a day as PF......  .
|
|
IP Logged |
Only two things are infinite, the universe and human stupidity, and I'm not sure about the former. (Einstein)
I used to have a handle on life....but it broke.
|
|
|
E-Double
CH.com Alumnus
New Board Hall of Famer
Are we ourselves?
 
Gender:
Posts: 6458
|
|
Re: Chronics pain free?
« Reply #7 on: Apr 10th, 2006, 9:26pm » |
Quote Modify
|
According to the old criteria my cycle wopuld have been broken a few times, however I would have had the equivalent of 7-8 cycles per year.
I have recently had a near 2 week reprieve yet it returns and always seems to over the past 2 years.
I have PF days and I have days with a lot of activity.
High cycles, low cycles, motor cycles 
|
|
IP Logged |
I can't believe that I have to bang my
Head against this wall again
But the blows they have just a little more
Space in-between them
Gonna take a breath and try again.
|
|
|
alchemy
CH.com Alumnus
New Board Hall of Famer
get out of my head
Gender:
Posts: 1639
|
|
Re: Chronics pain free?
« Reply #8 on: Apr 11th, 2006, 11:59am » |
Quote Modify
|
two years now without a pf day. still hoping it will break. jim
|
|
IP Logged |
|
|
|
mynm156
New Board Hall of Famer
hope life isn't a big joke, because I don't get it
Gender:
Posts: 1708
|
|
Re: Chronics pain free?
« Reply #9 on: Apr 16th, 2006, 2:00am » |
Quote Modify
|
I dont thin that I ever have a TOTALY PF day I might go one or two days without a CH but I am usually occupied by shadows on those days. BUT I'LL TAKE EM!!! I'LL Take em it when they dont stop and I am in pain basically ALL THE TIME that sucks!
Good Vibes
Your Brother in Pain
MYNM156
|
|
IP Logged |
"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
|
|
|
gore2424
New Board Hall of Famer
Camero's "RULE"
  
Gender:
Posts: 697
|
|
Re: Chronics pain free?
« Reply #10 on: Apr 16th, 2006, 9:35am » |
Quote Modify
|
last year 2005 total of only 3 pain free days almost always at 3-4 pain level and sometimes worse so far this year 0 days pain free "FµÅßÇàöG" clusters Terry
|
|
IP Logged |
what the hamsalad was that ¿?¿
I said your hair looks nice Ü
|
|
|
MJ
New Board Hall of Famer
Gender:
Posts: 911
|
|
Re: Chronics pain free?
« Reply #11 on: Apr 20th, 2006, 1:35am » |
Quote Modify
|
You all are an inspiration.
Thanks for the input.
|
|
IP Logged |
MJ
|
|
|
|
|
|
Home
Help
Search
Members
Member Map
Login
Register
Reply
Notify of replies
Send Topic
Print
Remove
test rss