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Topic: Question on length of attacks, remission (Read 651 times) |
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danm
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Question on length of attacks, remission
« on: Apr 5th, 2006, 10:26am » |
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I guess this would only apply to episodic sufferers like myself but I am curious.
What was your longest cycle? Shortest?
What was your longest period of remission? Shortest?
I am just getting over my longest cycle ever....a little over 3 months...shortest was probably about a week.
Longest remission was about 18 months, shortest was about 2 months.
Here's to all of us finding peace 
Dan
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these things suck!!!!
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BobG
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Re: Question on length of attacks, remission
« Reply #1 on: Apr 5th, 2006, 10:41am » |
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Longest cluster, 12 weeks.
Shortest, 4 weeks
Longest remission period, one year.
Shortest, one year.
But, I like to think that I've been in remmision for the last 6 years. Every year for the last 6 years I've had a 6 to 8 week cluster of shadows, KIP 1 to 3. Mostly just irritating as hell so I don't count them as real clusters.
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burnt-toast
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Re: Question on length of attacks, remission
« Reply #2 on: Apr 5th, 2006, 10:42am » |
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Roll the dice question here Dan.
Virtually everyone is going to have different cycle/remission periods which are as unique as the indivudual(s) suffering from this disorder.
Tom
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Richr8
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Re: Question on length of attacks, remission
« Reply #3 on: Apr 5th, 2006, 10:43am » |
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on Apr 5th, 2006, 10:26am, danm wrote:I guess this would only apply to episodic sufferers like myself but I am curious.
What was your longest cycle? 4 months Shortest? 3 months
What was your longest period of remission? 8 months, Shortest? 6 months
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Also, Check the survey results on the left. They include all of the questions you asked.
pf wishes my friend,
Rich
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pf wishes,
Rich
...because yesterday is history and you never know what tomorrow will bring.
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danm
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Re: Question on length of attacks, remission
« Reply #4 on: Apr 5th, 2006, 11:12am » |
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Sorry, I should have looked around harder first. The survey tells alot.
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these things suck!!!!
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MJ
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Re: Question on length of attacks, remission
« Reply #5 on: Apr 5th, 2006, 11:59am » |
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on Apr 5th, 2006, 10:26am, danm wrote:
What was your longest cycle? Shortest?
What was your longest period of remission? Shortest?
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My longest cluster cycles was just over 3 years.
Shortest cluster 4 months.
Longest remission from pain 3 years.
shortest remission was around 6 weeks.
Average cycles
4-5 months
between no average but used to be every 11 months first 10 years or so. Next 10 yrs closer cycles. Next 10 years remission times no logic.
In cycle the attacks seldom vary and allways 8-12 hits daily.
I just now decided that I am going to quit having clusters if they cant redevelop some predictability. Thats it I quit. If they cant play fair and stop sneaking up on me, then I'm not playing at all.
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MJ
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Chonas
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Re: Question on length of attacks, remission
« Reply #6 on: Apr 5th, 2006, 2:54pm » |
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Longest cycle 6 months, shortest 2 months.
Longest remission was about 24 months, shortest was about 4 months.
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NotH20
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Re: Question on length of attacks, remission
« Reply #7 on: Apr 5th, 2006, 3:43pm » |
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I've been like clockwork since 1980 when I was diagnosed. Cycles last aprpox 4 months and then I break for anywhere from 18 months to 2 years. Then I start all over again. One time I'll have them in the fall and the next time in the spring (or there-a-bouts).
Mia
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Kris_in_SJ
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Re: Question on length of attacks, remission
« Reply #8 on: Apr 5th, 2006, 6:45pm » |
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I'm just like Mia - pretty predictable so far.
Average length of each cycle about 12 weeks. Time of remission between 4 and 5 years.
However ... I'm well aware that the Beast could change at any time - cycles could become longer or shorter - remissions could become longer or shorter.
Therefore, that explains the stash of Imitrex and Verapamil in the basement cabinet. Don't want to be caught short when the monster comes calling.
PF Wishes and Hugs,
Kris
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Jasmyn
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Re: Question on length of attacks, remission
« Reply #9 on: Apr 6th, 2006, 2:25am » |
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on Apr 5th, 2006, 10:42am, burnt-toast wrote:Roll the dice question here Dan.
Virtually everyone is going to have different cycle/remission periods which are as unique as the indivudual(s) suffering from this disorder.
Tom |
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I'm with Tom on this one. I am episodic but my last cycle was close to 15 months, then it stopped and now 1 and a half months later the shadows are back.
This thing is so unpredictable and individual.
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Jazz
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I Cant Dance
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Re: Question on length of attacks, remission
« Reply #10 on: Apr 8th, 2006, 3:56pm » |
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Almost like clock work...Every September/October for five straight years, though these are like mostly shadows 2x day and up to like kip 6 for two months.
Two of the last five years my real rippers occur March/April. I am in week five right now, which is the longest I have dealt with in the spring. Different this time also. Started with shadows and more migraine like for a week before the true clusters. Started at 2 times a day for 1-2hrs each with one worse than the other. Progressed to three and just went to four times a day. 1-2 hours long. Occur just like clock work. I am getting tired, I hope they quit soon.
Sorry for the ramble, this is probably not the right place for it. Thanks for listening.
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MJ
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Re: Question on length of attacks, remission
« Reply #11 on: Apr 8th, 2006, 6:18pm » |
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on Apr 8th, 2006, 3:56pm, Eye Dee 10 Tee wrote:
Sorry for the ramble, this is probably not the right place for it. Thanks for listening. |
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This is the right place teacher.
Welcome aboard.
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MJ
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StressFree
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Re: Question on length of attacks, remission
« Reply #12 on: Apr 11th, 2006, 1:39pm » |
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This is an aproximate break down of my CH history:
Age 15-20 chronic, hit once a day in AM, started at KIP 6/7 ended up with frequent 10's.
Age 20 finally diagnosed as CH, chronic cycle broken with verap & cafergotPB.
2 year break and then a six week cycle, nothing helped. Imitrex and Oxygen seemed to make cycle worse with multiple high KIP attacks day and night.
4 year break and then a six to eight week cycle, Prednisone helped a lot but it took a while for cycle to stop. Pain drugs quit working and had bad KIP 10's at end of cycle. Also KIP 10's lasting many hours!
6 year break and then a six week cycle. Maxalt, Stadol, Prednisone taper, and Verapmil seemed to keep it to only a few KIP 10's. Cycle seemed shorter with less frequent attacks than the last two rounds.
If trend continues, next cycle should be in 12 years - or never! Thank you God!!! Please give PFDAN's for all, Amen.
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thomas
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Re: Question on length of attacks, remission
« Reply #13 on: Apr 11th, 2006, 4:34pm » |
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What was your longest cycle? 4 months
Shortest? 3 weeks.
What was your longest period of remission? 2 Years.
Shortest? 4 months.
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E-Double
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Re: Question on length of attacks, remission
« Reply #14 on: Apr 11th, 2006, 8:32pm » |
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1 month
2 yrs and still going
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Bigsouth1999
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Re: Question on length of attacks, remission
« Reply #15 on: Apr 13th, 2006, 3:39pm » |
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Longest cycle: 7 weeks and still going.
shortest cycle: 1 week. My first cycle as well.
Longest period of remission: March of 1996 to March of 2004. Odd how they seem to pop up at about the same time but different years..
My shortest: 2 years..
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I pray that all of you have a cluster free night!!!
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GuitarBill
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Re: Question on length of attacks, remission
« Reply #16 on: Apr 16th, 2006, 4:37am » |
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My longest remission has been 4 to 5 years, pushing even 6...but I can't really tell you how long my cycle is off the top of my head because when I'm in cycle, it seems like forever....
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chewy
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Re: Question on length of attacks, remission
« Reply #17 on: Apr 16th, 2006, 9:44am » |
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Longest: 9 months Shortest: 4 weeks
Currently in 4th year of remission
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FramCire
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Re: Question on length of attacks, remission
« Reply #18 on: Apr 17th, 2006, 11:13am » |
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longest cycle: 5 months (and counting)
shortest: 6 weeks
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Bob P
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Re: Question on length of attacks, remission
« Reply #19 on: Apr 17th, 2006, 2:44pm » |
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Quote:What was your longest cycle? Shortest?
What was your longest period of remission? Shortest? |
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20 weeks, 4 weeks
3 years 3 months, 8 months
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pattik
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Re: Question on length of attacks, remission
« Reply #20 on: Apr 17th, 2006, 8:40pm » |
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Longest-eight weeks
Shortest-3 weeks
Longest remission-2 years
Shortest-9 months
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