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Topic: S.O.S. - UPDATED !! (Read 599 times) |
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unsolved1
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"The seering pain still catches me off guard" ... You'd think after years of this, I'd be 'used to it' by now ... but the fact is, I can't stand the intense pain anymore. I can't stand it physically or mentally.
I've called my neuro's emergency # and I'm going back into the hospital again. I'll probably be in for days if not weeks.
The madness has to stop! Wish me luck.
UNsolved
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| « Last Edit: Mar 31st, 2006, 9:44pm by unsolved1 » |
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Sean_C
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Thats sour Mike  I've never gotten used to the pain either, I feel your pain bro.
Keep us posted bud, let us know how you make out.
Sean...............................
Mike check your pm's
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SophiaK
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Re: S.O.S.
« Reply #2 on: Mar 26th, 2006, 10:39am » |
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We'll be praying for you and hope you'll be PF today.
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kimmiedawn81
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Re: S.O.S.
« Reply #3 on: Mar 26th, 2006, 10:41am » |
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I know how you feel. We never get used to the pain. Please feel better soon.
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rapunzel
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Re: S.O.S.
« Reply #4 on: Mar 26th, 2006, 11:36am » |
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the pain is what prompted me to ask how y'all handle the mental part (other thread).
You don't "get used to" the pain. Each and every time is pure hell- but thankfully, here at this site, we have people who truly know what pain it is that we are referring to. No more of that desperate alone feeling- or only having someone say"I know how you feel, I hate getting a headache". We all know that searing pain and the suffering that we go thru each time. It doesnt get any easier-how nice if it would just go numb, or be anywhere besides in our head/eye.
It IS hell. You have my sympathies, and understanding.
Good luck, I hope that you find some relief and that the drs can help.
Kim
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Karla
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Re: S.O.S.
« Reply #5 on: Mar 26th, 2006, 1:34pm » |
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God be with you and may you find the relief you are looking for. You will continue to be in my prayers. So sorry you are going through all this.
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Karla
suffer chronic ch
ch.com groupie since 1999
Proud Mom of Chris USMC Semper Fi
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mynm156
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hope life isn't a big joke, because I don't get it
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Re: S.O.S.
« Reply #6 on: Mar 26th, 2006, 1:40pm » |
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Good Luck Bro!!!
We TOO know how you feel ! Keep us posted!!
GOOD VIBES!!!!!
MYNM156
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"Half of the modern drugs could well be thrown out of the window, except that the birds might eat them."
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kcopelin
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good grief
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Re: S.O.S.
« Reply #7 on: Mar 26th, 2006, 7:31pm » |
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Mike,
What do they plan on doing with you on an inpatient basis? Will is be trying different meds, or knocking you out? Will be praying that you get a break from the pain.
Thought are with you-let us know how things work out. My experience withinpatient was not pleasant-repeated shots -thus a very sore butt-and still getting hit. Hopr your is 1,000 times more productive!
PFDAN
Kathy
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Bethany1
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Re: S.O.S.
« Reply #8 on: Mar 26th, 2006, 8:37pm » |
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Good luck Mike...
Sending up loads of prayers for ya.
hang in there...
Beth 
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Grandma_Sweet_Boy
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Re: S.O.S.
« Reply #9 on: Mar 26th, 2006, 8:41pm » |
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Good luck Mike! So sorry to hear you're having this much trouble again. You sure could use a break.
Carol
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thebbz
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Re: S.O.S.
« Reply #10 on: Mar 26th, 2006, 8:46pm » |
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Ow,Ow,Ow
Hope they can get you some relief.
jb
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sandie99
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Re: S.O.S.
« Reply #11 on: Mar 27th, 2006, 2:37am » |
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Good luck!
Lots of vibes & wishes for PF time are on your way. I hope that you'll be PF soon!
Sanna
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CH happends, Live anyway! PF days to us all!
"Do what you can and let God take care of the rest. Leave your heart wide open and always wish for the best" (Sanna Hillu)
"No matter how far out your dreams are, it's possible" (Marketa Irglova)
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nani
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Re: S.O.S.
« Reply #12 on: Mar 28th, 2006, 10:19am » |
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 Dammit... I wish you'd get a permanent break.
Stay strong, Michael. I'm sending everything I've got your way.
hugs, nani
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superhawk2300
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Re: S.O.S.
« Reply #13 on: Mar 28th, 2006, 4:43pm » |
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So many people here have it so much worse that I do....
I don't know you but I am thinking about you and KNOW that I would take ONE of your attacks away and go through it myself for you, if I was able to help you be PF in a small way.
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unsolved1
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A quick update. I'm in Floyd Memorial Hospital. Been here for most of March. I've done everything ... Steriods, DHE, Pain meds, O2, Imitrex, etc. I've only had 1 major attack, and it was a WAMMY !! There were 2 nurses and 3 student nurses from Ivy Tech State College in Sllersburg, IN. They all witnessed a true KIP 10 ! I was SCREAMIN', Yellin', Cussin' praying for death, bangin my head on the bathroom sink. They gave me 125mg of Demerol IV and it did nothing! They finally gave me 3 mg of Imitrex which helped in 15 - 20 minutes. I think I freaked them all out. After it was over, I had a printout from OUCH .. THe "letter to collegues & friends" and THe "Kip Scale" and I gave it to them. I edumacated a whole class of nurses! 
I gotta go. Be here til the 4th then going to visit Dr. Diamond on the 5th. I snuck onto a comp at the nurses station so I can't write back now. Thanks for the Letters Jill and Sean, I'll get with you as soon as I can!
Miss all of you ...
Don't forget me!
Mike
AKA
UNsolved
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MJ
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Re: S.O.S. - UPDATED !!
« Reply #15 on: Apr 1st, 2006, 2:01am » |
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Be well Mike and best of luck.
I think we all get caught off gaurd no matter how many hits and how many years. The mental part is the tough part.
125mg demerol for hard CH is kinda like giving a horse an aspirin.
MJ
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MJ
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Kris_in_SJ
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Re: S.O.S. - UPDATED !!
« Reply #16 on: Apr 1st, 2006, 8:00pm » |
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Hang in, Michael!
You know there's not one of us here that's not rooting for you. I'm with Nani ... sending all I have your way!
Hugs,
Kris
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Kate in Oz
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Re: S.O.S. - UPDATED !!
« Reply #17 on: Apr 2nd, 2006, 7:51am » |
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Ditto to what Kris said.
Thinking of you and hope that you get some blessed, long term relief soon.
All the best Mike
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marlinsfan
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Re: S.O.S. - UPDATED !!
« Reply #18 on: Apr 2nd, 2006, 2:00pm » |
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Hang in there mike. We're praying for you.
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Sandy_C
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Re: S.O.S. - UPDATED !!
« Reply #19 on: Apr 2nd, 2006, 2:48pm » |
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Hang on, Mike. Hoping things get better for you. But, if there's a silver lining around your cloud, you did edumucated a bunch of nurses! This can only help others, because now, maybe, just maybe, one of those pretty little girls will remember what she saw and know how to help.
Wishing you PF
Sandy
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dejay
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Re: S.O.S. - UPDATED !!
« Reply #20 on: Apr 2nd, 2006, 4:26pm » |
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Hang in there Mike. I haven't had an attack in weeks, started cutting back on verapamil yesterday and between that and reading your post don't know if I'm more scared or grateful.
dejay
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Mr.YL
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Re: S.O.S. - UPDATED !!
« Reply #21 on: Apr 2nd, 2006, 5:12pm » |
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remember who you are and know that it will pass... I know it is tough though we are here for you and you know that we know. Please take care ... Mr.YL
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keep livin clean...
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nani
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Re: S.O.S. - UPDATED !!
« Reply #22 on: Apr 5th, 2006, 10:57pm » |
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You're still in my thoughts and prayers, Michael. Check in when you can. hugs, nani
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Jasmyn
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Re: S.O.S. - UPDATED !!
« Reply #23 on: Apr 6th, 2006, 2:15am » |
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You hang in there Mike and I hope they'll give you something that will give you some relief soon.
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Jazz 
Madness is proclaimed by society’s inability to accept its own infallibility
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unsolved1
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After 26 days in 2 different hospitals, I'm no better. I've had 3 major attacks so far today. They're sayin' i'm in "Triptan rebound" mode ... but what am I to do ... it's truley the only thing that helps. I can't stop using it, not even with massive pain meds. I'm closing in on the end of my rope.
And if that's not enough stress, my pyschotic sister is pissed off at me and came over to my house while I was in the hospital and trashed my computer. I'm going to try and salvage the hard drive and memory sticks, the rest is garbage. Needless to say, I won't be checking in as much for awhile.
Thanks for the well wishes. I'll miss reading all the posts. I'll check in when I can.
PF wishes everyone
UNsolved
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