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Topic: GATOR;MONITORS@LIGHT (Read 1534 times) |
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Mr.YL
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GATOR;MONITORS@LIGHT
« on: Mar 7th, 2006, 10:36pm » |
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 Hay I have been in contact with a eye Dr. who may have found the research and prescription for the lens we seek to filter out those trigger rays. Let me know at this post if you want more info a Gator and I have discussed this and I KNOW alot of us suffer from the light thing. Sincerely yours all CH suffers MR.YL
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tessa_c2
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Re: GATOR;MONITORS@LIGHT
« Reply #1 on: Mar 7th, 2006, 11:53pm » |
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are you talking about the rose tinted glasses?
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Mr.YL
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Re: GATOR;MONITORS@LIGHT
« Reply #2 on: Mar 8th, 2006, 10:21am » |
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have not yet picked up the RX glasses yet though I will let you know..The Dr. did alot of research on the subject and our affliction. So the new technology may have just arrived.LETS ALL HOPE...
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Guiseppi
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Re: GATOR;MONITORS@LIGHT
« Reply #3 on: Mar 8th, 2006, 11:24am » |
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Ummm, do any clusters suffer from a light trigger? This is a new one on me. I suffer from alcohol triggers, sleep deprivation triggers, stress triggers, but I've never heard of a light trigger. Sunglasses to stop my clusters is an interesting angle.
Guiseppi
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nani
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Re: GATOR;MONITORS@LIGHT
« Reply #4 on: Mar 8th, 2006, 11:25am » |
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Light (into that eye) is a HUGE trigger for me. Even strobe like lights and shadows (like under a ceiling fan). 
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Gator
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Re: GATOR;MONITORS@LIGHT
« Reply #5 on: Mar 8th, 2006, 12:02pm » |
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Actually, quite a few people here have reported that they suffer from sensitivity to bright lights. For me, more than 30 minutes in front of a television or computer screen will trigger an attack. Bright light (more specifically glare from bright light) during the day or headlights while driving at night seem like lasers beaming straight through my right eye and will trigger a hit.
Here is an article from PubMed about photophobia and phonophobia in cluster headache:
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed &list_uids=9673803&dopt=Abstract
From the American Family Physician website:
http://www.aafp.org/afp/20050215/717.html
Quote:| The absence of aura, nausea, or vomiting has helped distinguish cluster from migraine headaches, but recent studies indicate that 14 percent of patients with cluster headache experience aura, 51 percent have a personal or family history of migraine, 56 percent report photophobia, 43 percent report phonophobia, and 23 percent report osmophobia. |
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(osmophobia is an intolerance of odors)
Another PubMed article that says photphobia SHOULD be recognized as part of the clinical spectrum of CH.
http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed &list_uids=12876249&dopt=Abstract
There are lots more out there.
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ArCane
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Re: GATOR;MONITORS@LIGHT
« Reply #6 on: Mar 8th, 2006, 12:56pm » |
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Ive noticed if I look at a glare from the sun, like on my kitchen floor, it will trigger a CH. I dont know if its directly from the light or because it just annoys me. When Im annoyed I get stressed, and when Im stressed I get hit. The last couple of cycles I have worn sunglasses from when I wake up till the sun sets. Don't know if its a placebo effect or not but it helps a little.
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Dragnlance
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Re: GATOR;MONITORS@LIGHT
« Reply #7 on: Mar 8th, 2006, 3:28pm » |
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Quote:| Even strobe like lights and shadows (like under a ceiling fan). |
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Ditto for me, big time
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Karla
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Re: GATOR;MONITORS@LIGHT
« Reply #8 on: Mar 8th, 2006, 7:14pm » |
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Thanks for clarifying that I was really confused. Lights don't effect my ch at all. They do my migraines but not ch. Sound is a factor I get real sensative to during ch.
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Karla
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MJ
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Re: GATOR;MONITORS@LIGHT
« Reply #9 on: Mar 8th, 2006, 8:52pm » |
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Glaring lights, bright reflected lights or a sudden change in lighting types have allways been a huge trigger for me.
Not sure how a specific lens would correct that though.
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MJ
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AussieBrian
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Re: GATOR;MONITORS@LIGHT
« Reply #10 on: Mar 8th, 2006, 9:04pm » |
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I've long relied on glasses in regard to CH, filled to the brim with beer.
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BlueMeanie
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Re: GATOR;MONITORS@LIGHT
« Reply #11 on: Mar 8th, 2006, 11:21pm » |
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on Mar 8th, 2006, 11:24am, Guiseppi wrote:| Ummm, do any clusters suffer from a light trigger? |
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When in cycle, I never go anywhere without Trex & Sunglasses. Yes, light is a big trigger for me, along with aromas and alcohol. 
Sounds make no difference at all. In fact, I usually turn up the music during an attack so people in the house can't here me scream and moan. 
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ivanov
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Re: GATOR;MONITORS@LIGHT
« Reply #12 on: Mar 9th, 2006, 12:00am » |
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I would appreciate any info you can send my way since I am trying to work this same problem out with my eye doctor.
Coincidentally my next appointment is this coming tuesday - to once again try to solve this problem along with a focus double vision thing.
I would really like to know what kind of filter your Dr. has discovered.
Dan
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jackieg
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Re: GATOR;MONITORS@LIGHT
« Reply #13 on: Mar 10th, 2006, 10:05am » |
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When I enter a store or building where there is a great deal of artificial light, I start to feel shadows. Natural sunlight actually has a healing effect on me. I never was sensitive to light during an attack until recently. Now, when I am in the middle of O2 teatment, I have to be in complete darkness and no one can come near me.
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pattik
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Re: GATOR;MONITORS@LIGHT
« Reply #14 on: Mar 10th, 2006, 10:32am » |
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on Mar 8th, 2006, 9:04pm, AussieBrian wrote:| I've long relied on glasses in regard to CH, filled to the brim with beer. |
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My glasses are filled with cabernet.  Light has only been a trigger for my migraines. After 26 years of CH, the only triggers I have identified is time of year and time of day.
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Mr.YL
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Re: GATOR;MONITORS@LIGHT
« Reply #15 on: Mar 23rd, 2006, 2:33pm » |
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The RX is a ultraviolet coating with a dark brown tint going to a lighter brown on the bottom. From my understanding by using the brown this enhences the red and yellow rays of the light spectrum while the UV filters the other light in the spectrum as to lessen the intensity and strain on the eyes. I have yet to get them as I am having a slight problem finding the proper frames for a full wrap as to not let any of the rays come through the sides or top. I am confident that this may work as my Dr. did alot of research. I reccomend that you speak with your optomitrist regarding any RX for sight adjustment. My vision is near perfect. Hope this helps. Mr.YL
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Bob P
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Re: GATOR;MONITORS@LIGHT
« Reply #16 on: Mar 23rd, 2006, 4:12pm » |
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Quote:| the lens we seek to filter out those trigger rays. |
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Well now that explains all those middle of the night (during sleep) attacks that we get. It's the light rays!
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
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LadyElaine
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Re: GATOR;MONITORS@LIGHT
« Reply #17 on: Mar 23rd, 2006, 4:32pm » |
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Light doesn't trigger my clusters but if I am outside and get hit the sun light seems to really bug me. Now when I am in cycle I do keep a black curtain in the bathroom to keep sun from coming in through the window.
Shut Up Bob
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sailpappy
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Re: GATOR;MONITORS@LIGHT
« Reply #18 on: Mar 23rd, 2006, 4:33pm » |
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Actually, Birght sun light causes me to sneeze repeatedly until my eye's adjust, and pulsating lights trigger my Clusters. Lately they also trigger seizures!
Long Lost Pappy
Ms Elaine, I bought the home in South Augusta, Terri,The Grandkids and I will be moving up there on the 30th! So Howdy Neighbor!! 
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| « Last Edit: Mar 23rd, 2006, 4:35pm by sailpappy » |
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LadyElaine
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Re: GATOR;MONITORS@LIGHT
« Reply #19 on: Mar 23rd, 2006, 4:48pm » |
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Pappy check your PM I don't want to hijack this persons thread!
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Bob P
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Re: GATOR;MONITORS@LIGHT
« Reply #20 on: Mar 23rd, 2006, 6:39pm » |
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Quote:| I don't want to hijack this persons thread! |
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Why the hell not! The guy is saying sun glasses will stop your clusters.
Pappy - good to see ya. Ya'all be careful livin' around that snake killin' babe - Elaine.
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Mrs. Barlow, I never, and I repeat never, ever pissed in your steam iron.
"SHUT UP HUB!"
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Jonny
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Re: GATOR;MONITORS@LIGHT
« Reply #21 on: Mar 23rd, 2006, 6:46pm » |
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on Mar 23rd, 2006, 4:12pm, Bob P wrote:
Well now that explains all those middle of the night (during sleep) attacks that we get. It's the light rays! |
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ROTFFLMMFAO!!!!!
"Its the light rays".....LMMFAO!!
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It is up to YOU to educate yourself and then help your doctor plan your treatment. If you just sit down in front of your doctor and say "make me better" you are setting yourself up for a great deal of pain.
- Guiseppi
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LadyElaine
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Re: GATOR;MONITORS@LIGHT
« Reply #22 on: Mar 23rd, 2006, 7:03pm » |
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Cause I am a nice person well except when I met a snake ! Then I am a killer
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thenucman
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Re: GATOR;MONITORS@LIGHT
« Reply #23 on: Mar 23rd, 2006, 7:03pm » |
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Just because you close your eyes, doesn't mean the photons go away. They keep going and going and going ....
As I have seen all over this forum ..YMMV Good luck YL.
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Gator
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Re: GATOR;MONITORS@LIGHT
« Reply #24 on: Mar 23rd, 2006, 7:08pm » |
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on Mar 23rd, 2006, 6:39pm, Bob P wrote:
Why the hell not! The guy is saying sun glasses will stop your clusters.
Pappy - good to see ya. Ya'all be careful livin' around that snake killin' babe - Elaine. |
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No, what he's saying is that these glasses may help him deal with a particularly bothersome trigger he has. And in case you hadn't noticed, several others here have said they had the same triggers, not to mention the research that says 56% of cluster headache sufferers report being photosensitive. If light does not bother you you are in the MINORITY.
The sarcasm was not only misplaced, it was totally unnecessary. Just because you don't trigger off of light doesn't mean no one else does. Sheesh
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